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Iron levels.
Hi . I've had 12 transfusions after internal bleeding and surgery in April. My hb was at 6 before the transfusion. My levels are as below. Is this sufficient or would I still need a supplement. I am weaned off pramipexole now but while is hospital I was given tramacet and that was helping my legs.
Hi . I've had 12 transfusions after internal bleeding and surgery in April. My hb was at 6 before the transfusion. My levels are as below. Is this sufficient or would I still need a supplement. I am weaned off pramipexole now but while is hospital I was given tramacet and that was helping my legs.
AzraCG
in
Restless Legs Syndrome
12 days ago
arranging iron infusion
Hello, I’m having a remote consultation with Dr Toby Richard’s on Thursday with a view to having an iron transfusion in London on 31st May. I am wondering if other people have experienced any negative reactions / side effects from iron infusions ….. or indeed any really positive results! positive stories
Hello, I’m having a remote consultation with Dr Toby Richard’s on Thursday with a view to having an iron transfusion in London on 31st May. I am wondering if other people have experienced any negative reactions / side effects from iron infusions ….. or indeed any really positive results! positive stories
Drls
in
Restless Legs Syndrome
16 days ago
Momelitinib
Is anyone here with MF taking momelitinib.I'd like to know how you're doing on the drug and if you have any side effects? I may qualify to take it....I've received a letter from my haematology doctor and meet up with him soon.At the.moment I am transfusion dependant . I am Jak 2. Thanks Lynn.
Is anyone here with MF taking momelitinib.I'd like to know how you're doing on the drug and if you have any side effects? I may qualify to take it....I've received a letter from my haematology doctor and meet up with him soon.At the.moment I am transfusion dependant . I am Jak 2. Thanks Lynn.
champ30
in
MPN Voice
20 days ago
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Iron results - what would you do?
In the seemingly endless quest to feel properly well I had a full iron panel done. The last one I had done was 2 years ago, 6 months after an iron transfusion. I've got a bit of a mixed bag here so I'd be grateful for some thoughts. It's getting worse, generally, I'm just not sure if now is the right
In the seemingly endless quest to feel properly well I had a full iron panel done. The last one I had done was 2 years ago, 6 months after an iron transfusion. I've got a bit of a mixed bag here so I'd be grateful for some thoughts. It's getting worse, generally, I'm just not sure if now is the right
WitchingHour2point0
in
Thyroid UK
21 days ago
Hi, Im new here! Stage IV Ovarian Ca champion
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Hello, My name is Nicole. Im 42 and live in Florida with my husband and our two children 8&9. i had battled and won stage I breast cancer when I was 26 years old in 2009. I had been complaining of all the symptoms in 2022 only to be brushed off and not taken seriously. When my OBGYN took me seriously
Nlehrer
in
SHARE Ovarian Cancer Support
21 days ago
Sadly Not Just Thyroid Patients
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
I've been following the infected blood scandal with interest, basically thousands of patients in the 70's, 80's and early 90's were given blood transfusions/ products that were cheaply imported, often from USA, and not screened for Hep C. This was to save the NHS money. Unfortunately many people became
Sparklingsunshine
in
Thyroid UK
21 days ago
iron clinic - transfusions
hello - has anyone accessed an iron transfusion via the Harley street iron clinic? Despite all my other iron readings being fine my ferritin level remains at 56 …. I have tried repeatedly to access a transfusion via the nhs but to no avail - has anyone had experience of going privately via this London
hello - has anyone accessed an iron transfusion via the Harley street iron clinic? Despite all my other iron readings being fine my ferritin level remains at 56 …. I have tried repeatedly to access a transfusion via the nhs but to no avail - has anyone had experience of going privately via this London
Drls
in
Restless Legs Syndrome
22 days ago
Any guidance appreciated!
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
Hi everyone, My Dad (77) diagnosed in January w/ stage 4 PC, mets to L5 spine. PET scan showed no other spots elsewhere. PSA was 19 at time of diagnosis, Gleason 10. BRCA negative. PSA is now at 0.2 since starting hormone therapy. Feeling good, no pain. Still works (owns his own company). Started
LDC2024
in
Advanced Prostate Cancer
26 days ago
Gabapentin and liver resection
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
The help I have been given from this forum has been invaluable, I don't know where I would be without it. I have weaned myself off of Pramipexole and am now using Gabapentin, I don't think I have suffered anything like some of the other members. My question is, I need to up the dose, I am taking 1 x
Ozzey
in
Restless Legs Syndrome
29 days ago
Need advice on clinical trial RO7656594
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
I have updated our profile, but in a nutshell we've gone through abiraterone, Xtandi, docetaxel, Pluvicto , cabazitaxel and carboplatin. My husband's most recent PSA on 4/12 was 79.52. His MO has put a hold on chemo our last 3 appointments due to pancytopenia. He's received 2 blood transfusions on his
Yadifan
in
Advanced Prostate Cancer
2 months ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
2 months ago
New Drug may be relevant to MF, ET
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
A new drug for pulmonary hypertension, (PAH) Sotatercept, has just been approved. PAH is not a typical MPN worry, but it has side effects that may be relevant to MPN. It can increase Hb and decrease PLT. These are listed as adverse effects in the label. Some researchers made the MPN connection.
EPguy
in
MPN Voice
2 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
3 months ago
Please advise - symptoms worsening
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Hi all, As you may remember from previous posts, I’m still borderline anaemic and so I increased my iron dosage as per instructions several weeks ago. My FT3 has also plummeted from a decade average of 6 to now 4.8 (range 3.1-6.8) I’m getting horrific migraines (they start with blinding auras). I stopped
Suzanneharb
in
Thyroid UK
3 months ago
Still on hold for stem cell transplant
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
David has now completed 3 cycles of Vidaza. He had a bone marrow biopsy several weeks ago. At first we thought the results were good, that his cancer cells had been reduced sufficiently to proceed with transplant. After our local oncologist spoke to the transplant specialist at Mayo, we received word
dwolden
in
CLL Support
3 months ago
Is there hope despite the pain? Is Cabometyx worth it?
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
My 63 year old husband LD stopped Cabo (Cabometyx) when we had Covid (because we took Paxlovid). Now he doesn't want to start up again because of side effects we believe are caused by the Cabo: jaw pain and numbness, body aches, tingling in extremities, pain in the shoulder joint emanating down his arm
Chris_Ali
in
Advanced Prostate Cancer
3 months ago
Never give up !!!
My name is Vicki, I am a waiting for my second kidney transplant. Both of my kidneys failed when I was 32 years, my children were 1 @ 2 years. I was on hemodialysis in center for 2 years and then got a lifesaving transplant. My life was wonderful, I had 27 years and then in 2020 my son passed and I was
My name is Vicki, I am a waiting for my second kidney transplant. Both of my kidneys failed when I was 32 years, my children were 1 @ 2 years. I was on hemodialysis in center for 2 years and then got a lifesaving transplant. My life was wonderful, I had 27 years and then in 2020 my son passed and I was
bubbaboo2
in
Dialysis Support
3 months ago
Ruxalinitib for MF2
I would love to hear anyone’s experience with Rux. How soon did you notice a difference? Which were the most obvious side effects? How low did they allow platelets to go and other bloods, before dose adjustments or transfusions? Any replies much appreciated!
I would love to hear anyone’s experience with Rux. How soon did you notice a difference? Which were the most obvious side effects? How low did they allow platelets to go and other bloods, before dose adjustments or transfusions? Any replies much appreciated!
artydutch
in
MPN Voice
3 months ago
Better Understanding
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
I knew and expressed here that I was fearful of crashing this winter as I have since 1995 to varying degrees. I had set a marker of April 01 as a measure. I was successful although I will wait until April 01 to see it in my rear view mirror, and have a celebration although I am already celebrating. Some
WIZARD6787
in
Pernicious Anaemia Society
3 months ago
blood transfusion prep
I completed exactly one year on Olaparib today. I had high grade serous OC stg4, brca1, and started in op after chemo and surgery was very effective. My HB count dropped to 5.5 and platelets to 80, wbc 2400 (all are at their lowest, even lower than during chemo). I took the blood work today as I have
I completed exactly one year on Olaparib today. I had high grade serous OC stg4, brca1, and started in op after chemo and surgery was very effective. My HB count dropped to 5.5 and platelets to 80, wbc 2400 (all are at their lowest, even lower than during chemo). I took the blood work today as I have
Goodgirl98
in
My Ovacome
11 months ago
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