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Diagnosis?
How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my blood tests have come up negative. But I still have the dry mouth, which is progressively getting worse, I have salivary issues, dry eyes and body
How do you get rheumatologists to take you seriously? I am almost convinced I have Sjogrens, but after seeing threee rheumys, they say no, because all my blood tests have come up negative. But I still have the dry mouth, which is progressively getting worse, I have salivary issues, dry eyes and body
peachtreepiggy
in
The Australian Sjögren's Syndrome Association
2 months ago
Cycle #5 tested negative 8dp5dt. Is it over for me?
Tomorrow is mother's day in the UK so I wanted to test today. I'm cooking Sunday lunch for my extended family tomorrow and I just thought either wait until Monday or test today. It ended up being today and it was negative with the second pee of the day. I'm absolutely gutted and trying to hold it together
Tomorrow is mother's day in the UK so I wanted to test today. I'm cooking Sunday lunch for my extended family tomorrow and I just thought either wait until Monday or test today. It ended up being today and it was negative with the second pee of the day. I'm absolutely gutted and trying to hold it together
Mikki100
in
Fertility Network UK
2 months ago
isolated waking headache
hello lovely people I hope you don’t mind me posting as I do “stalk” this forum and it’s always helpful 😊 Every morning without fail , anytime between 3am and 6am I am woken up by throbbing headache which disappears within 20 minutes of me getting up and walking around . If I stay laid down headache
hello lovely people I hope you don’t mind me posting as I do “stalk” this forum and it’s always helpful 😊 Every morning without fail , anytime between 3am and 6am I am woken up by throbbing headache which disappears within 20 minutes of me getting up and walking around . If I stay laid down headache
Tiggywoos
in
National Migraine Centre
2 months ago
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Down regulation - blood test?
Hi All, I am nearly at the end of the down regulation phase and will have my first scan next Tuesday to confirm if my ovaries have switched off. The reason why I had to go through the down regulation route is that my first IVF, which was a short protocol, failed miserably. I was bleeding and lost all
Hi All, I am nearly at the end of the down regulation phase and will have my first scan next Tuesday to confirm if my ovaries have switched off. The reason why I had to go through the down regulation route is that my first IVF, which was a short protocol, failed miserably. I was bleeding and lost all
Blueberryshrub
in
Fertility Network UK
2 months ago
Potential ET diagnosis
HI All, I’ve been on this forum a few months now but this is my first post. After a routine blood test last October I found out my platelets were just over 500, then after a subsequent jak2 test I can confirm I have it at a percentage of 2%. I’ve now just had a bone marrow biopsy to hopefully get more
HI All, I’ve been on this forum a few months now but this is my first post. After a routine blood test last October I found out my platelets were just over 500, then after a subsequent jak2 test I can confirm I have it at a percentage of 2%. I’ve now just had a bone marrow biopsy to hopefully get more
Joshy87
in
MPN Voice
2 months ago
levothyroxine
hi .. this could be just me clutching at straws .. a couple of weeks before Christmas I was taking 50 micro grams of levothyroxine ,after a blood test it was raised to an extra 25 micro grams every other day .. slowly since then I have developed joint and muscle pain and wonder if there is a connection
hi .. this could be just me clutching at straws .. a couple of weeks before Christmas I was taking 50 micro grams of levothyroxine ,after a blood test it was raised to an extra 25 micro grams every other day .. slowly since then I have developed joint and muscle pain and wonder if there is a connection
Hillman51
in
Thyroid UK
2 months ago
Stem Cell transplant register search goes on…
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
Unfortunately my next appointment with Consultant has been delayed until early April as they are no further advanced in their search for matches on transplant register. The Nuclear medicine tests that I have just had will be added to MyChart which Addenbrookes uses to show appointments, test results
LFCLove
in
MPN Voice
2 months ago
cabg graft failure?
Dear all I had an 3 X cabg last summer ( I am only 44) and now I am experiencing chest discomfort and have had high pulse (apple watch) with minium effort. I went through blood tests and ekg and echo which all came in fine. This does not feel normal to me, has anyone experienced same symptoms and
Dear all I had an 3 X cabg last summer ( I am only 44) and now I am experiencing chest discomfort and have had high pulse (apple watch) with minium effort. I went through blood tests and ekg and echo which all came in fine. This does not feel normal to me, has anyone experienced same symptoms and
F_H_D
in
British Heart Foundation
2 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
2 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
2 months ago
In need of some help/suggestions please
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall.I don't want to write too long a post so will try and keep the background brief. Basically I was diagnosed with Fibromyalgia by my GP back in 2010 following
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall.I don't want to write too long a post so will try and keep the background brief. Basically I was diagnosed with Fibromyalgia by my GP back in 2010 following
Wispymisty
in
Fibromyalgia Action UK
2 months ago
Low B12
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
My private blood test shows low B12 at 48.1 pmol/l. Is this something my GP should follow up with? I take daily B12 supplements but obviously this isn’t sufficient. Many thanks.
Maldeerum
in
Thyroid UK
2 months ago
How Off Would Blood Levels Be If Tested Without Fasting Beforehand?
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
Hiya. I would appreciate thoughts on this. This morning I had to go for an Inflammatory Marker Blood test for something which isn't related to thyroid issues. Unknown to me, my GP had requested a thyroid blood test anyway so I wasn't prepared by fasting from my meds the day before, and I took a multivitamin
MindfulMoments
in
Thyroid UK
2 months ago
Methatrexate side effects
Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg was 60mg in the pricess of decreasing, which is going ok. But I have experienced and experiencing such severe side effects I suffer IBS anyway
Good morning..looking for advice please.I was put on Methatrexate last week, took my first dose on Monday ...8 tablets=20mg and I am still on prednesolone 40mg was 60mg in the pricess of decreasing, which is going ok. But I have experienced and experiencing such severe side effects I suffer IBS anyway
Den73
in
Sjogren's Support
2 months ago
Advice for pelvic pain please!!
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
I'm a 29 year old female who has been suffering with issues with my bladder for around 5 years. I've not had any children and never been pregnant. 5 years ago I started getting re- occuring UTI's quite regularly and was referred to a urologist. I, then, started to get bladder incontinence- I was sent
DisneyLover1994
in
Pelvic Pain Support Network
2 months ago
A medical professionals responsibility
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
PeterSmith1998
in
British Liver Trust
2 months ago
Statins
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
I have AF but it’s controlled so far with daily flecainide and bisoprolol. I get a three monthly blood test for iron overload but this week the doctor advised me to get a cholesterol blood test as well. All of my results for cholesterol were within the ranges but my doc advised that it’s recommended
Profound15
in
Atrial Fibrillation Support
2 months ago
blood tests
hi, had blood test results and they’re all abnormal. Speaking to GP on Monday but wondered if anyone knows if a CRP result of 11 indicates polymyalgia?
hi, had blood test results and they’re all abnormal. Speaking to GP on Monday but wondered if anyone knows if a CRP result of 11 indicates polymyalgia?
scooby96
in
PMRGCAuk
2 months ago
Germantara
HI EVERYONE I've had awfull time my daughter Saturday morning complaining her wrist was extremely painful when I looked her wrist and hand fingers were very swollen as day went on her had was bluish and bit purple so I said a e went 6 o clock at night she got bloods done had xray no broken
HI EVERYONE I've had awfull time my daughter Saturday morning complaining her wrist was extremely painful when I looked her wrist and hand fingers were very swollen as day went on her had was bluish and bit purple so I said a e went 6 o clock at night she got bloods done had xray no broken
Germantara
in
Lung Conditions Community Forum
2 months ago
'Helpline' number - so this doesn't happen again
Diagnosed with Sjorgens July 2023 and I started hydroxychloroquine in August 2023. I was told to have monthly blood tests and they would see me in February follow up after six months. I've only just found out today that I was supposed to be calling a number after each blood test to inform nurses to look
Diagnosed with Sjorgens July 2023 and I started hydroxychloroquine in August 2023. I was told to have monthly blood tests and they would see me in February follow up after six months. I've only just found out today that I was supposed to be calling a number after each blood test to inform nurses to look
Quinni
in
NRAS
2 months ago
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