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Prefer pain to steroids!
in 2019 I was diagnosed with fibromyalgia, in 2023 following a dexa I was diagnosed with osteoporosis. Today a rheumatologist told me despite negative blood tests he was pretty certain I have PMR and after further blood tests wants me to start taking prednisone. I chose not to take meds for the osteoporosis
in 2019 I was diagnosed with fibromyalgia, in 2023 following a dexa I was diagnosed with osteoporosis. Today a rheumatologist told me despite negative blood tests he was pretty certain I have PMR and after further blood tests wants me to start taking prednisone. I chose not to take meds for the osteoporosis
Plas
in
PMRGCAuk
5 months ago
Serum Ferrotin levels
Hello All Cant find my last blood test or remember the numbers ☹️. Can anyone remind me what the ideal levels should be for awful RLS please ? Thanks
Hello All Cant find my last blood test or remember the numbers ☹️. Can anyone remind me what the ideal levels should be for awful RLS please ? Thanks
kmc12
in
Restless Legs Syndrome
5 months ago
Help with T3
I would really appreciate some advice please. I have included my original post below. So last week I went to see another Endocrinologist, they confirmed what I was told by the first Endocrinologist who I saw earlier that week - basically as my TSH levels are within range, I did not need an increase
I would really appreciate some advice please. I have included my original post below. So last week I went to see another Endocrinologist, they confirmed what I was told by the first Endocrinologist who I saw earlier that week - basically as my TSH levels are within range, I did not need an increase
Flo1000
in
Thyroid UK
5 months ago
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Polymyalgia and Rheumatoid arthritis
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
I was diagnosed with PMR in June 2014. Over a period of about 7 years I managed to come off prednisone but after a time the PMR returned. Since 2022 I have managed to get down to 7mg daily and then have a flare. Back to 10 down to 8 and another flare. I live in France and it seems PMR is not as common
Deemar
in
PMRGCAuk
9 months ago
virtual appointment
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
Hi, I’m hoping and would be grateful for any advice from this knowledgeable group.. I’m due to have a virtual 6 monthly review tomorrow following blood tests and US. I have been diagnosed with cryptogenic cirrhosis with no known cause. This was following a fibroscan result of 17kpa. When I had the
0range5520
in
British Liver Trust
5 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
2 months ago
There is an article in the Mail: “Blood tests say my hypothyroidism is under control. So why do I feel so exhausted? Ask DR MARTIN SCURR”
There is an article in the Mail: “Blood tests say my hypothyroidism is under control. So why do I feel so exhausted? - Ask the GP DR MARTIN SCURR” [Publ: 12:04, 1 April 2024) I thought some of you might want to jump on it and comment or help some of the other commenters i.e. how/where /cost to get
There is an article in the Mail: “Blood tests say my hypothyroidism is under control. So why do I feel so exhausted? - Ask the GP DR MARTIN SCURR” [Publ: 12:04, 1 April 2024) I thought some of you might want to jump on it and comment or help some of the other commenters i.e. how/where /cost to get
joiaz
in
Thyroid UK
5 months ago
Deiodinase 2 (DIO2) DNA blood test
Apologies if this is already been discussed at length. I'm just wondering if anyone on here has had this test? If so, where? Was it useful in your diagnosis? There only seems to be one place in the UK that does it. I'm a little dubious as it's only £15 according to their website!!
Apologies if this is already been discussed at length. I'm just wondering if anyone on here has had this test? If so, where? Was it useful in your diagnosis? There only seems to be one place in the UK that does it. I'm a little dubious as it's only £15 according to their website!!
Agitator23
in
Thyroid UK
5 months ago
Confused
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
UPDATE: April 5, 2024 Yesterday was very disappointing as my husbands PSA increased again by 183 points, last month his PSA was 1546 and now it is 1730. All his other CBC results were good. His Alkaline Phosphatase increased 6 points, last month 127 and now 133 but still in range of 40-150. Questioned
MsHope
in
Advanced Prostate Cancer
5 months ago
Help with timing of NDT prior to blood tests
Hello. Would any of you knowledgeable people be able to advise me of the best time to take NDT prior to blood tests. I take Armour 1 grain twice a day. The first is usually around 6am and the second around 3pm. Does the same convention for blood tests when on Levo and Lio apply to NDT? Is 9am still
Hello. Would any of you knowledgeable people be able to advise me of the best time to take NDT prior to blood tests. I take Armour 1 grain twice a day. The first is usually around 6am and the second around 3pm. Does the same convention for blood tests when on Levo and Lio apply to NDT? Is 9am still
Piglet1956
in
Thyroid UK
5 months ago
Update after 6 and a half years of treatment with triptolerin (Decapeptyl)
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
My dad has been on biannual Decapeptyl injections since october 2017, when he was diagnosed with metastatic prostate cancer. The PSA readings over the last 6 years have been the following: 0.21 (January 2018) 0.07 (May 2018) 0.05 (November 2018) 0.04 (May 2019) 0.03 (October 2019) 0.03 (May 2020
nereabg
in
Advanced Prostate Cancer
5 months ago
Advanced Thyroid Function Blood Test
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
I have been suffering from frequent aura migraines ever since I had my covid jabs in 2021. (sometimes daily). I had a brain MRI which was normal and all bloods taken at the time were normal. I have recently discovered that migraines go hand in hand with hypothyroidism. I also have a huge number of
Berryquilter
in
Thyroid UK
5 months ago
Diagnoses
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
Has anyone been diagnosed with an autoimmune condition without having positive blood tests? I've been trying in vain since 2006, got most of lupus symptoms but Ana either 1:180 or negative and other tests negative .
catblue1865
in
LUPUS UK
5 months ago
Monomil xl
Hi all ,After having to call ambulance out friday evening due to severe chest pain light headed and aches and heaviness to arms hot and clay a 20 stay in A&E Usual blood test ecg done and results normal to be told nothing sinister then maybe anxiety. Another doctor having arguments with cardiologist
Hi all ,After having to call ambulance out friday evening due to severe chest pain light headed and aches and heaviness to arms hot and clay a 20 stay in A&E Usual blood test ecg done and results normal to be told nothing sinister then maybe anxiety. Another doctor having arguments with cardiologist
Milliemoopink
in
British Heart Foundation
5 months ago
Day 5 of stims
Hi,I'm on day 5 of stims for my first IVF cycle (and started ganirelix today as well). Anybody else at a similar stage? I have my first monitoring scan and blood test tomorrow and am excited but nervous. It feels as though the novelty of daily injections has already worn off (not helped by the fact that
Hi,I'm on day 5 of stims for my first IVF cycle (and started ganirelix today as well). Anybody else at a similar stage? I have my first monitoring scan and blood test tomorrow and am excited but nervous. It feels as though the novelty of daily injections has already worn off (not helped by the fact that
SquishyBean
in
Fertility Network UK
5 months ago
High B12 - more tests needed?
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
My SO has several anaemia symptoms - pallor, breathlessness, fatigue, dizziness, nausea etc. GP says the bloodwork is OK despite family history of PA. Blood tests (GP & Medichecks) so far show haemoglobin & MCH a bit below range, haematocrit & MCH low but in range. Serum B12 is consistently high (latest
AnotherEarlyRiser
in
Pernicious Anaemia Society
9 months ago
T3 clearing the body
Hello Thanks to all who help on this list. Sorry I can't offer more help, still , it seems, in some post Covid state. I tried to look through past posts to see how long T3 takes to leave the system. I think it was recommended not to take for 8 hours before a blood test. I'm going to get some
Hello Thanks to all who help on this list. Sorry I can't offer more help, still , it seems, in some post Covid state. I tried to look through past posts to see how long T3 takes to leave the system. I think it was recommended not to take for 8 hours before a blood test. I'm going to get some
Indigourchin
in
Thyroid UK
5 months ago
stage 4 Mets in all his skeleton
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
my husband who has been on this journey for 4 1/2 years. It has finally taken its toll his platelets and blood counts have been low for the last four months and he has been given transfusions every week. He cannot continue with any more treatments . Psa 1800 Mets in his entire skeleton. has anyone
Lakehouse32
in
Advanced Prostate Cancer
5 months ago
Hypothyroidism and Pernicious Anaemia assistance please
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
Hello there, I am new to this site and am usually on the Pernicious Anaemia page but hope someone can give me advice please. I have been taking Levothyroxine since the late 1990's and have kept on 125mcg per day and been fine until the last few months. I have always struggled to convert T4 to T3 and
yorkshiregirl4
in
Thyroid UK
5 months ago
Prednisone query
HI all Just need a bit of info please. Saw GP on Thursday, who I think is a little in the dark about PMR, he said he has never seen a case before, but reads all the guidance. I started at 15mg and great results. After 3 weeks went to 12.5mg, also comfortable, then on hi guidance, went to 10mg after
HI all Just need a bit of info please. Saw GP on Thursday, who I think is a little in the dark about PMR, he said he has never seen a case before, but reads all the guidance. I started at 15mg and great results. After 3 weeks went to 12.5mg, also comfortable, then on hi guidance, went to 10mg after
pastamaid
in
PMRGCAuk
5 months ago
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