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All clear now for two years
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
Just sending a positive story. Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months. I am taking alternative supplements and vitamins
candyapplegrey
in
My Ovacome
10 months ago
Update after tests,etc
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
Dimples76
in
Advanced Prostate Cancer
10 months ago
Steroid injection in shoulder joint
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
I had a steroid injection in my left shoulder on Thurs pm (after waiting about 6 months). The doctor administering it, advised me to postpone a forthcoming shingles jab, but I forgot to ask him if I should continue to take methotrexate (due Fri - i opted to skip it this week) and my 2 weekly Imraldi
Cutes
in
NRAS
6 months ago
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My PMR is basically gone, but now I got shingles on my right side of face.
All the drugs I took, take lowers my immune system. No prednisone anymore, but Methotrexate lowers immune response. About 4 days ago, got shingles on my face and forehead. It is super pain, bad pain. Before the shingles, I felt like my eyes were infected, eyes and skin all red and sore. Pain not quite
All the drugs I took, take lowers my immune system. No prednisone anymore, but Methotrexate lowers immune response. About 4 days ago, got shingles on my face and forehead. It is super pain, bad pain. Before the shingles, I felt like my eyes were infected, eyes and skin all red and sore. Pain not quite
sdowney717
in
PMRGCAuk
7 months ago
Schwannomatosis NF3 and AZ Covid 19 vaccines finally out of system after 3 years
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Good news for a change? My left arm has been tingling for about the last 6 weeks, shaking, even in sleep I have to put it under the pillow, so I can sleep, this afternoon watching TV, 1st Feb, lower left arm slightly warm twitching as per usual, I lost patience with it and severely hit back of hand
Adlon57
in
Healthy Evidence
6 months ago
11 months on.
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Jjones210519
in
ICUsteps
7 months ago
Afraid to go to the bathroom!!
I’ve been dealing with constipation issues for the past year. I can only attribute it to gettin older - never had any problems before that. I won’t go into the details of what I have tried - I’ve taken lots of great hints from videos and forums; a lot of it seems to work - and then it doesn’t.
I’ve been dealing with constipation issues for the past year. I can only attribute it to gettin older - never had any problems before that. I won’t go into the details of what I have tried - I’ve taken lots of great hints from videos and forums; a lot of it seems to work - and then it doesn’t.
Trudijane
in
IBS Network
10 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
10 months ago
RSV vaccine?
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid last September and hoping that immunity is going to last awhile. As always, so appreciate the advice on this great site.
Spartans1
in
PMRGCAuk
6 months ago
Covid free test kit for - Certain Vulnerable People from the Government website link.
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Covid free test kit for - Vulnerable People from Government. Good afternoon everyone. Can someone tell me please when the Government stopped send out Covid test kit for vulnerable people? I used to qualify for these and have a box sent to me when requested because I have no immune system. The link
Joseph260268
in
Lung Conditions Community Forum
6 months ago
Thyroid/post viral fatigue/perimenopause/CFS - help!
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Morning lovely people. I really hope you can help we make sense of what's been going on for me for the past 4 years. After getting covid in March 2020 I have not really been 100%. The fatigue etc did improve to about 95% of normal until getting covid again in October 2021 (and going through some extreme
Dahliasanddaisies
in
Thyroid UK
6 months ago
touched a nerve
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
Hi you wonderful people. I’m overwhelmed by your responses and support resulting from my recent post concerning doctors refusal to prescribe Buprenorphine and it’s moved me m ok re than I can say but I think it’s time to close it down now, I didn’t realise I had poked a hornets 🐝 nest and but realise
HipHop1972
in
Restless Legs Syndrome
4 months ago
Can LDN help with Long Covid?
Can LDN help with Long Covid? Answered by Pharmacist Stephen Dickson, LDN Specialist Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with information on Low Dose Naltrexone (
Can LDN help with Long Covid? Answered by Pharmacist Stephen Dickson, LDN Specialist Check out www.ldnrtevents.com for LDN Webinars, The LDN Book 3, eBooks, Medical Membership, etc. Please visit our website https://www.ldnresearchtrust.org which is packed with information on Low Dose Naltrexone (
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Covid teens
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
It may have been there before covid, but if it was it was very well hidden. I have two great kids, son and daughter. One was a senior during Covid, and the other was in 10th grade. We will start with seniors story. Needless to say no senior year enjoyment, and then went off to college and his first year
bobo9876
in
Anxiety and Depression Support
6 months ago
Sciatica
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Hi all. I have been suffering with back pain for several years. In regards to medication, you name it, I've tried it. I've have two lots of steroid injections which had no effect whatsoever and then finally in 2022 I had radio frequency ablation which was brilliant. I had instant relief from this. I
Stormtrooper4
in
Pain Concern
6 months ago
Cancer sufferer T3 below range, T4 50%, TSH 1.6 advice
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Hello wise caring people. On one result, looks like they are a poor converter. My best pal is probably loosing battle with cancer - mid 60s male. He had radiation treatment on throat cancer 3 1/2 years ago. Treatment now stopped and has a lymph node node issue that is not responding, after throat
Sleepman
in
Thyroid UK
6 months ago
My going out again after having covid Indeed
My name is John Stefan and I am from London. I do Live in Peterborough and I am at the moment planning to start going out again with my family. But I have not been out with my family since we had Covid - 19 Last summer in the August Summer Break in 2023. But I have a question now to ask. Should Me and
My name is John Stefan and I am from London. I do Live in Peterborough and I am at the moment planning to start going out again with my family. But I have not been out with my family since we had Covid - 19 Last summer in the August Summer Break in 2023. But I have a question now to ask. Should Me and
Hidden
in
Mencap
6 months ago
Antibiotics and Increasing B12
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
Hi. I just got over a long bout with covid and am now on antibiotics (ceftin) for an ear infection (caused by covid). I've noticed since I began ceftin (8 days ago) that I'm experiencing fingers and toes tingling. Do you know if antibiotics can cause b12 depletion? I take daily 3000 mgs sublingually
LynetteinUSA
in
Pernicious Anaemia Society
6 months ago
Tongue / Graves disease
Can the thyroid affect the tongue? I was borderline again last time and have a blood test end of Feb due to be discharged if ok but I think as I keep being borderline they're not sure what to do with me. As to whether my body is naturally on borderline as I don't really get many of the symptoms Mild
Can the thyroid affect the tongue? I was borderline again last time and have a blood test end of Feb due to be discharged if ok but I think as I keep being borderline they're not sure what to do with me. As to whether my body is naturally on borderline as I don't really get many of the symptoms Mild
kittyelen
in
Thyroid UK
6 months ago
All About myself Indeed
My name is John Stefan and I am from London. I do Live in Peterborough and I have been Living in Peterborough for a very Long time since 2008. Before that I moved from Place to Place but have been settled Here in Peterborough since the above named year Indeed. Also I am a Christian and I have been studying
My name is John Stefan and I am from London. I do Live in Peterborough and I have been Living in Peterborough for a very Long time since 2008. Before that I moved from Place to Place but have been settled Here in Peterborough since the above named year Indeed. Also I am a Christian and I have been studying
Hidden
in
Mencap
6 months ago
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