Just sending a positive story.
Diagnosed 2b HG clear cell, endometrioid 2020. Big op, chemo, diagnosed my own recurrence after 6 months. Another op, then RT. 2021. Last couple of scans have been clear. They are still going to check me every 6 months.
I am taking alternative supplements and vitamins, etc too.
xx
Absolutely wonderful so pleased for you, you've definitely got the right attitude and that goes a long way. Take care & long may your recovery continue. Love SheilaFxxx ❤
Brilliant news, it gives me hope. I was also diagnosed Stage 2b High Grade last year. I am always terrified of my cancer coming back. So far I am doing well after debulking and 6 sessions of chemo.
Love and hugs.
Beth
that’s wonderful news and let’s hope your remission continues forever x x
That is marvelous news. I'm so pleased for you. I was diagnosed with stage IV HGS in April 2022. No surgery but had carbo /paclitaxel which reduced the CA125 to double figures from just under 20,000. I am now waiting to begin my 3rd chemo line soon. I rejoice in your good news and long may it continue. I wish you the very best. xxxxxxxxxxxxxxxxx
Fantastic 👏 🥰 keep up the good work xxx
That’s great thank you for sharing your good news x
Sounds like my diagnosis, clear cell aggressive late stage one , diagnosed 2019 , full blown chemo reoccurrence in 2020 that I found on my abdomen. Ca 125 tumor marker can’t see our type cancer , so it’s left to ct scans. I am currently on letrozole to block tumor growth, my feet took the worst hit with chemo leaving me with neuropathy in them. Thankful to be alive today and looking forward to the future. We got this!
Sounds very similar. My team keep telling me that the CA125 is relevant even when I asked them straight out about clear cell. As my blood wasn't tested for it at start, I can't know for sure. They would only be checking that and I might possibly be dead. Did yours recur at incision site? Are you in London? Do you still have tumours? Sorry about the neuropathy. Power to us! xx
Well done positive vibes ✨️ good luck on your journey take care jaynex
Great news! Thank you for sharing. Xx
Hii I happy for you I just found out mine back got have scan don't know what next will have decide after scan stage 4 mastised been ok 18 months after 6 lots chemo surgery any one else same you feel normal then wack
Hello Candyapplegrey,
Congratulations! Was wondering are you on any maintenance like an Aromatase inhibitor? Was your treatment for recurrence Carbo taxol ?
I've not been given any maintenance drugs but each op has removed all the cancer cells. Had carbo/taxol after first op, then targeted RT after second. One thing I would say is if my new tumour hadn't been visible or tangible so I could diagnose it myself, my cancer team were not going to scan me at all. They told me this in the same phone call they told me my cancer was 80% likely to recur! I dread to think where I'd be now if I hadn't pushed for a scan. Believe what your body tells you.
xx
I agree totally unfortunately we have to be our own advocate I pushed for a CT scan a few months ago they didn't encourage it but I pushed for it I'm glad you did the same.
Thank you for sharing your good news. I hope you continue to stay well. --Lani
That is wonderful. Yes 6 months checkups are very smart!
Congratulations! You've got a way to go before you catch up with me - 17 years in November since completing chemo for stage Ic mixed clear cell and endometrioid ovarian cancer. NED ever since! Hope it turns out as well for you. Sending hugs!
You're a real success story! My diagnosis also mixed clear cell & endometrioid. You give me hope. xx
The more hope I can give the better! Sending hugs!
👍👍👍👍
scan all clear
All clear after first course of Carbo/Taxol
All clear
All clear
All clear
