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Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
9 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
9 months ago
Is Adrenal Fatigue caused by ADT/Abiraterone?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Derf4223
in
Advanced Prostate Cancer
9 months ago
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anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
9 months ago
Fragility score on Osteoscan and different meds.
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Hello to “my turn to” friends. This is a new one to me.I had an osteoscan, my second. The last one was nearly two years ago. Since then I have had a Thr for Avascular necrosis and I am still struggling along dealing with flares after eight years. I have been on Leflunomide for two months now. Tapering
Nightingales
in
PMRGCAuk
9 months ago
Aetna appeal for Firmagon denial
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
My husband was diagnosed with high risk aggressive prostate cancer, Gleason 9. Plus one para rectal node positive. The doctor prescribed 2 years of ADT plus 5 weeks of IMRT. Had first 240 mg dose of firmagon on September 14 with no major side effects so far. Doctor used firmagon to avoid testosterone
Oatmeal2
in
Prostate Cancer Network
9 months ago
Does pee urgency get worse after radiation?
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
I had IMRT 60 Gy circa August 2022. Since then sometimes it is very hard to hold a pee back. I'm concerned it might be getting worse. This is probably going to get a lot of responses -- please bring them on!
Derf4223
in
Advanced Prostate Cancer
8 months ago
Women are not taken seriously by most doctors when experiencing health problems.
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
I went through a really rough time a couple of years after I had my first child when I was about 31 years old. I had never experienced PMT prior to the birth. I was lucky. However, I became aware of gradual fatigue, and anxiety, and hot flushes. I went to my GP to ask if I could be going through the
DandyButch
in
Thyroid UK
9 months ago
NON SURGICAL OPTIONS?
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
jawsbar75
in
SHARE Breast Cancer Support
9 months ago
speech and language therapy
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
hi guys. I was wondering if any one on here has had any experience with any private speech and Language therapists. We are looking into using a private speech therapy for our dad who has fluent aphasia. does anyone know a good company? thank you
Maychristine
in
Headway
1 year ago
abiraterone first line use in high risk in U.K. debate after stampede research results
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
Lots of current comments in U.K. press re the funding for using abiraterone for high risk first line HT. I was Dx with Gleason 9 - T2cN0M0 (10% 5 70% 4 20% 3 in one area plus couple of areas G7 8 months past failed HIFU for G7 (3+4 <10% 4 one site only) PSMA = locally contained No SV evidence. I
SimMartin
in
Advanced Prostate Cancer
8 months ago
Do I need to stop taking estrogen? Feel as if I'm choosing between mental and physical health.
So I've read a lot now- probably too much. From what I can gather from things (and I am new to this - didnt know I had endometriosis until Tuesday when they aborted my hysterectomy as my bowel is fused to my cervix) estrogen seems to be the driving force behind endometriosis. Is that true? It also seems
So I've read a lot now- probably too much. From what I can gather from things (and I am new to this - didnt know I had endometriosis until Tuesday when they aborted my hysterectomy as my bowel is fused to my cervix) estrogen seems to be the driving force behind endometriosis. Is that true? It also seems
Sunset-lady
in
Endometriosis UK
9 months ago
Over range copper and zinc
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
The only culprit I can think of is milk thistle. Any thoughts on over range copper and zinc? About a 10 months ago, zinc was low-ish and copper slightly over so I supplemented zinc for a short while but stopped a couple of months ago. Then the week before last started with milk thistle for liver support
Noelnoel
in
Thyroid UK
9 months ago
concurrent salvage ADT with IRMT
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
Hello, 1st time caller, History: RALP - 1/2020, Gleason 7 (4+3), pre treatment psa of 11, psa started climbing 5/2023 to 1.651, was at 2.5 prior to psma/pet/ct on 6/21/2023. Impression: Equivocal small faint focal uptake in prostatetectomy bed and non enlarged left external iliac nodes. Doc at AHN
live2play
in
Advanced Prostate Cancer
9 months ago
Is my recovery typical or more novel
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
Hidden
in
Advanced Prostate Cancer
9 months ago
Heme iron versus ferrous gluconate
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
cigafred
in
Fight Prostate Cancer
9 months ago
think I’ve found my trigger.
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
I have posted on here before asking for advice. Have always suffered on and off but the last 18 months have been awful. Saw a dctr last year who just gave me sleeping tablets, saw a dctr a few weeks ago who gave me pramipexole but after reading on here and other sites about the side effects decided
Patters56
in
Restless Legs Syndrome
9 months ago
What the heck is wrong with me?
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
I haven't posted in awhile. I was turned down a second time for disability. My depression is to a point I don't want to talk anybody. The letter said "I maybe sad and forgetful" SAD! SAD! FORGETFUL! FORGETFUL! Everyday I deal with an illness that attacks my will live. I've had 21 rounds of old school
Raggedy-Ann
in
Anxiety and Depression Support
11 months ago
Trodelvy and dizziness
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Hello everyone! I haven’t posted in awhile because I have been trying to make it through my new chemo regime. I am on Trodelvy and seemed to hit the jackpot in experiencing lots of the side affects. I have had one full cycle of it. ( 2 doses at 100 percent strength). Lots of nausea that I don’t
Ticket123
in
SHARE Metastatic Breast Cancer
11 months ago
Varian Trubeam Rapidarc to do VMAT
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
pj1121
in
Advanced Prostate Cancer
9 months ago
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