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2 years into Stage 4 Treatment
Hello all, I’m writing for some help regarding my dad. 2 years ago he was diagnosed prostate adenocarcinoma Gleason 5+4 with PSA 146 and Mets to ischium, sacrum and one rib. He started on Zytiga, Lupron and Prednisone and received 20 treatments of radiation to a cumulative dose of 60 Gy. Overall
Hello all, I’m writing for some help regarding my dad. 2 years ago he was diagnosed prostate adenocarcinoma Gleason 5+4 with PSA 146 and Mets to ischium, sacrum and one rib. He started on Zytiga, Lupron and Prednisone and received 20 treatments of radiation to a cumulative dose of 60 Gy. Overall
petdoc
in
Advanced Prostate Cancer
10 months ago
How is thyroid hormone prescribed across the US?
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
I suspect there might be a few comments on this just-posted thread: [i]Matt Ettleson[/i] [i]Ed: @NorthwesternU[/i] [i]/@NUFeinbergMed[/i] [i]. Former resident/CMR @UMIntMed[/i] [i]. Clinical Instructor @uchicagomed[/i] [i]. Focus: improving care of thyroid disease.[/i] [i]Chicago, IL[/i] [i]1h
helvella
Thyroid UK
in
Thyroid UK
10 months ago
Ryeqo, anyone on it or tried it?
Just started this today, apparently it's a new drug similar to prostap but in tablet form with hrt included, to be taken once a day for six months. When I picked my prescription up the chemist said the 3 month supply of tablets were very expensive and cost over £200 apparently! I work but i'm on universal
Just started this today, apparently it's a new drug similar to prostap but in tablet form with hrt included, to be taken once a day for six months. When I picked my prescription up the chemist said the 3 month supply of tablets were very expensive and cost over £200 apparently! I work but i'm on universal
jull
in
Endometriosis UK
10 months ago
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peri menopause
Hi I am 44 and peri menopausal hot flushes, sleepless nights, brain fog on top of my lupus brain fog I am surprised I can remember my own name. Dr does not want to give me HRT due to blood clotting but when I have tried to research lupus and HRT they don’t seem to recommend it. Has anyone had the same
Hi I am 44 and peri menopausal hot flushes, sleepless nights, brain fog on top of my lupus brain fog I am surprised I can remember my own name. Dr does not want to give me HRT due to blood clotting but when I have tried to research lupus and HRT they don’t seem to recommend it. Has anyone had the same
Kell12
in
LUPUS UK
10 months ago
Coming off HRT patches
Hi everyone, I'm 55 years old and I've been on a bit of a health journey these last few years to say the least, with many debilitating symptoms including crushing fatigue. As part of the treatment for this, I went onto HRT oestrogen patches 18 months ago, along with the mirena coil I already had.
Hi everyone, I'm 55 years old and I've been on a bit of a health journey these last few years to say the least, with many debilitating symptoms including crushing fatigue. As part of the treatment for this, I went onto HRT oestrogen patches 18 months ago, along with the mirena coil I already had.
KBird01
in
Menopause and Perimenopause Support
10 months ago
Mitochondria, sugar, red lights and Doxazosin
My scientist friend, who is working on a vibrotactile coordinated reset prototype for me, drew my attention to an article in New Scientist - which is very interesting https://www.newscientist.com/article/mg25734290-100-restoring-the-brains-mitochondria-could-slow-ageing-and-end-dementia/ Quick take
My scientist friend, who is working on a vibrotactile coordinated reset prototype for me, drew my attention to an article in New Scientist - which is very interesting https://www.newscientist.com/article/mg25734290-100-restoring-the-brains-mitochondria-could-slow-ageing-and-end-dementia/ Quick take
WinnieThePoo
in
Cure Parkinson's
1 year ago
Pelvic pain with blood/brown discharge
Hi - I'm 61 and get pelvic pain and occasional blood and brown discharge when I wipe myself after weeing. I've referred to my GP and the issue has been investigated with tests including an MRI scan but they can find nothing wrong. I use HRT patches with combined Progesterone daily. I also use Estriol
Hi - I'm 61 and get pelvic pain and occasional blood and brown discharge when I wipe myself after weeing. I've referred to my GP and the issue has been investigated with tests including an MRI scan but they can find nothing wrong. I use HRT patches with combined Progesterone daily. I also use Estriol
Pizza61
in
Pelvic Pain Support Network
10 months ago
Blood test results in advance of endo appointment + what are the MHRA guidelines for NDT?
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Thank you SO SO much everyone who responded to my post last week about NDT absorption and how I should approach my endo to ask for NDT rather than synthetic T4/T3 therapy. Your responses have made the world of difference. I have my blood test results taken last Friday ready for endo this Thursday (
Reefseeker
in
Thyroid UK
1 year ago
PTEN loss is not a determinant of time to castration-resistance following androgen-deprivation therapy in prostate cancer
Abdallah Alzoubi 1 2 , Samir Al Bashir 3 , Aya Smairat 4 , Ahmad Alrawashdeh 5 , Husam Haddad 6 , Khalid Kheirallah 7 Affiliations PMID: 37305830 PMCID: PMC10251393 DOI: 10.25122/jml-2023-0034 Free PMC article Abstract Androgen deprivation therapy (ADT) remains the principal
Abdallah Alzoubi 1 2 , Samir Al Bashir 3 , Aya Smairat 4 , Ahmad Alrawashdeh 5 , Husam Haddad 6 , Khalid Kheirallah 7 Affiliations PMID: 37305830 PMCID: PMC10251393 DOI: 10.25122/jml-2023-0034 Free PMC article Abstract Androgen deprivation therapy (ADT) remains the principal
Magnus1964
in
Advanced Prostate Cancer
11 months ago
Gains seen in Parkinson’s with Symbyx’s red light therapy helmet
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Studies show positive results. Symbyx Biome’s red/infrared light therapy helmet, improves motor function in Parkinson’s disease, according to data from a small clinical trial. https://parkinsonsnewstoday.com/news/gains-seen-parkinsons-with-symbyxs-red-light-therapy-helmet/
Baron1
in
Cure Parkinson's
1 year ago
End of holiday??
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
Hi everybody, was wondering if you could share your experiences to help me decide the end of my ADT holiday. In short: PCA found in 10/2019, PSA=49, Gleason=8, mets in local + infra/para aortal lymph nodes, started ADT 11/2019, radiotherapy 01/2020, undetectable PSA 09/2020, started holiday 05/2022
R1166
in
Advanced Prostate Cancer
11 months ago
Finally, a reason to celebrate :-)
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
For months now my *** has been dragging around this deep gloomy feeling. While everyone else seems to be Joyfully celebrating their holidays. Part of my gloominess is "SAD" Seasonal affective disorder. I try antidepressants, light therapy, and exorcising ,,, oops exercising. And it helps but the other
Boston001
in
Anxiety and Depression Support
1 year ago
Need help to fight fatigue from Radium 223
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Stage 4 for last 3 years. Had 6 cycles of Chemo and then Abiraterone for 18+ months until it stopped being effective. Currently part of trial with Radium 223. Had 4 cycles already and 2 more to go. After this will likely have to switch to Enzalutamide and ADT. Now having bad fatigue issues; on scale
Ronnie7C
in
Advanced Prostate Cancer
11 months ago
Is this right or should I request a second opinion?
Been suffering fatigue on another level, weight gain, brain fog etc etc so ordered private bloods for fatigue through medicheck. Results came back as low iron, low Vit D and low T4. THS was normal. Doctors notes was possibly hypothyroid but seek GP advice. Doctor wanted to wait for iron supplements
Been suffering fatigue on another level, weight gain, brain fog etc etc so ordered private bloods for fatigue through medicheck. Results came back as low iron, low Vit D and low T4. THS was normal. Doctors notes was possibly hypothyroid but seek GP advice. Doctor wanted to wait for iron supplements
OnTheCusp33
in
Thyroid UK
11 months ago
PSMA PET Scan Shows no mets?!
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
I have/had Stage 4, Gleason 8/9 prostate cancer now for 2 years. 5 mets including 4 rib and 1 shoulder blade. Possible lymph node involvement. Went on Lupron and Zytiga. Radiation of prostate after 8 months of ADT. I've had now 4 PET scans. The latest was yesterday, as reported below. It says
groth12345
in
Advanced Prostate Cancer
11 months ago
2 Questions
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
Background: 45 yo, athletic with no comorbidities. Gleason 9, metastatic with 5 bone mets, node mets, and BRCA2. No surgeries or radiation. I’ve been on ADT since Jan 30, 2023. PSA at time of first Firmagon shot was 78. one month later it at 2nd shot it was 5. On Mar 1, 2023 it was 1.5. started Zytiga
revchris77
in
Advanced Prostate Cancer
11 months ago
Behavior Chart
my 6 year old is newly diagnosed with ADHD. 1st grade has been a struggle . We are in the early stages of finding the right resources to help him and getting referrals for med evaluation , parenting class and behavioral therapy , but everything moves so slowly . Meanwhile the school put together
my 6 year old is newly diagnosed with ADHD. 1st grade has been a struggle . We are in the early stages of finding the right resources to help him and getting referrals for med evaluation , parenting class and behavioral therapy , but everything moves so slowly . Meanwhile the school put together
Brazilianmom
in
CHADD's ADHD Parents Together
2 years ago
Cholesterol again
My latest FBC (not specifically to look at thyroid) showed high cholesterol. I haven't been taking my thyroid meds religiously as I usually do and my TSH has gone up. So, I will get on the case. I am on 75mg which is usually more than enough to keep my TSH around 1.5. However, my GP was reluctant
My latest FBC (not specifically to look at thyroid) showed high cholesterol. I haven't been taking my thyroid meds religiously as I usually do and my TSH has gone up. So, I will get on the case. I am on 75mg which is usually more than enough to keep my TSH around 1.5. However, my GP was reluctant
Aloha79
in
Thyroid UK
11 months ago
On prostap every 4 weeks now on 2nd injection but feeling sick and have pelvic stabbing pain ? Anyone else had the same ? Is it normal ?
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
I'm 34 , i have stage 4 endometriosis after having 12 miscarriages and a still born daughter we are unable to conceive and ivf would be slim and high chance of other problems . Iv Had many operations and currently on prostap injections every 4 week and waiting for my full hysterectomy. Both of my tubes
Sjxxx
in
Endometriosis UK
11 months ago
Anyone have a high testosterone after SBRT?
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
In September 2022 I had image guided SBRT utilizing ViewRay Technology for a 3+4 gleason grade, low decipher score, PSA 2.7 before treatment, on Avodart for BPH. Been monitoring PSAs and Testosterone every three months, and remaining on Avodart. During this time my PSAs and Testosterone values have
Yearofthecow
in
Prostate Cancer Network
11 months ago
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