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Beckwith-Wiedemann Syndrome
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Slowing down on Ropinirole withdrawal
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
RosieRow
in
Restless Legs Syndrome
6 years ago
Could this solve recurring UTIs that many of us suffer with?
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Marilyn1959
in
PMRGCAuk
6 years ago
Contraception? Endometriosis and hypermobility
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
Hiya, I wondered if anyone had any advice as to what contraception worked best for them if they suffer from both endometriosis and hypermobility. Endo is of course fuelled by estrogen but then hypermobility is fuelled by progresterone. While waiting for my surgery date I've been put on Cerelle, a
jennt0506
in
Endometriosis UK
6 years ago
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EDS Dentist Recommendations (London..Herts..)
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
Hello, I have been having gum problems which could be EDS related or something else connected with Hypermobility disorders. Just wanted to ask if anyone could recommend a dentist or dental practice which has knowledge of EDS? Thanks!
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
Thanksgiving and a Question
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
Ropinirole withdrawal: is it always agony?
I have PLMD, which developed from RLS some 6 years ago. I've been on Ropinirole for 3 months at a dosage of 2 x 0.25 mg a night. It's just beginning to lose its effect with PLMs occurring at night 1 hour plus after taking the tablets & now an hour or so before the 6-hour half-life is through in the early
I have PLMD, which developed from RLS some 6 years ago. I've been on Ropinirole for 3 months at a dosage of 2 x 0.25 mg a night. It's just beginning to lose its effect with PLMs occurring at night 1 hour plus after taking the tablets & now an hour or so before the 6-hour half-life is through in the early
dickJones
in
Restless Legs Syndrome
6 years ago
Getting a consultant referral for a CT-PET scan for relapsing polychondritis?
About 2 months ago, I started noticing chunks of my face rapidly atrophying - nose cartilage and around eyes especially, but also my jaw bone decreased by almost half, causing my friends to ask what had happened to my face. I told the doctors - they insinuated I was crazy. It continued. I became very
About 2 months ago, I started noticing chunks of my face rapidly atrophying - nose cartilage and around eyes especially, but also my jaw bone decreased by almost half, causing my friends to ask what had happened to my face. I told the doctors - they insinuated I was crazy. It continued. I became very
Sarah030609
in
LUPUS UK
6 years ago
Seeking a Diagnosis (Cont...)
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
Hello, I have recently become aware that I might have EDS after seeing several consultants and connecting the dots. For example, no arthritis blood markers. I also have a comprehensive clinical features of Marfans/EDS but I am playing the normal waiting game to see a geneticist. I do have an appointment
MontgomeryJ
in
Ehlers-Danlos Support UK
6 years ago
Can it be cryptic?
I believe I'm few months pregnant.missed my period in August and sept for the first time ever.did urine pt ,but came bk neg.since then have having several pregnancy symptoms.back pain,bloated stomach,increased appetite,bigger and sore breast,gained weight a lot .infact its so obvious i'm pregnant.people
I believe I'm few months pregnant.missed my period in August and sept for the first time ever.did urine pt ,but came bk neg.since then have having several pregnancy symptoms.back pain,bloated stomach,increased appetite,bigger and sore breast,gained weight a lot .infact its so obvious i'm pregnant.people
GloKezzy11
in
Pregnancy and Parenting Support
6 years ago
What hurts less?
Until now I have been using Otrexup ( an auto inject pen of methotrexate). Due to cost, I will now need to switch over to methotrexate where you fill the syringe from a vial. So my question is, which hurts more auto or syringe?? My sister is a nurse and will give me the weekly injection until I can muster
Until now I have been using Otrexup ( an auto inject pen of methotrexate). Due to cost, I will now need to switch over to methotrexate where you fill the syringe from a vial. So my question is, which hurts more auto or syringe?? My sister is a nurse and will give me the weekly injection until I can muster
sara1215
in
NRAS
6 years ago
Just diagnosed and scared.
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Two years ago I was diagnosed with Lupus because of symptoms and positive ANA. Last month I decided to get a second opinion because I felt as though my Rheumatologist was cold and wasn't helping. My new rheumy ran a series of tests and found that my liver enzymes were very high and I was again had a
Sandb26
in
PBC Foundation
6 years ago
Trazodone pramipexole for RLS
I am not sure what is doing it. But after 20 years I am better I have taken pramipexole for years not much help Then my psychiatrist added trazodone for sleep 6 mo My final component weekly massages With a heavy component or concentration on legs and feet after 6 mo, I have really improved My guess
I am not sure what is doing it. But after 20 years I am better I have taken pramipexole for years not much help Then my psychiatrist added trazodone for sleep 6 mo My final component weekly massages With a heavy component or concentration on legs and feet after 6 mo, I have really improved My guess
seppamaki
in
Restless Legs Syndrome
6 years ago
Trazadone for RLS?
Has anyone on this forum had experience, positive or negative, with taking trazodone at bedtime for the rls? I'm considering asking my GP for a prescription for this next. My "go to" has been 1/2 to 1 hydrocodone per night, and the current prescription is nearly finished. So I'll either ask her for
Has anyone on this forum had experience, positive or negative, with taking trazodone at bedtime for the rls? I'm considering asking my GP for a prescription for this next. My "go to" has been 1/2 to 1 hydrocodone per night, and the current prescription is nearly finished. So I'll either ask her for
Restlesssinger
in
Restless Legs Syndrome
6 years ago
Hypericum (St. John's Wort)
I have just been reading about homeopathic Hypericum and/or herbal St John's Wort extract for RLS. It is a well known remedy for anxiety/depression because of its action in calming the nerves. Apparently it can heal the inflammation of the nerves that produce RL symptoms. Has anyone tried it?
I have just been reading about homeopathic Hypericum and/or herbal St John's Wort extract for RLS. It is a well known remedy for anxiety/depression because of its action in calming the nerves. Apparently it can heal the inflammation of the nerves that produce RL symptoms. Has anyone tried it?
Grandiflora
in
Restless Legs Syndrome
6 years ago
Hypothyroidism and sick sinus syndrome
I find this forum really useful for explaining some of the things I've wondered about for the last 30 years. A couple of years ago my GP found I had an irregular heartbeat. I eventually saw a cardiologist who diagnosed sick sinus syndrome and said that I didn't need any treatment. The GP thought I
I find this forum really useful for explaining some of the things I've wondered about for the last 30 years. A couple of years ago my GP found I had an irregular heartbeat. I eventually saw a cardiologist who diagnosed sick sinus syndrome and said that I didn't need any treatment. The GP thought I
LynetteP
in
Thyroid UK
6 years ago
Does anyone know how long??
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
Hi, my hubby has an operation on 18th December to have a sperm retrieval procedure. I was wondering if anyone has had this and how long it would take from that procedure to start IVF?? Trying to keep positive thoughts that they are going to find something x
bec90
in
Fertility Network UK
6 years ago
15 nights into withdrawal
Hello! Yes, 15 nights into my withdrawal from Ropinirole and I'm down from 1.5mg to 0.75mg. Indeed, things were going so well that it had crossed my mind to start shortening the time between the reductions. But then, by the weekend the symptoms of RLS started coming on earlier in the evenings and being
Hello! Yes, 15 nights into my withdrawal from Ropinirole and I'm down from 1.5mg to 0.75mg. Indeed, things were going so well that it had crossed my mind to start shortening the time between the reductions. But then, by the weekend the symptoms of RLS started coming on earlier in the evenings and being
RosieRow
in
Restless Legs Syndrome
6 years ago
Rayos and Plaquenil and burning feet
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they burn almost all the time. I am not diabetic and the foot dr. can't find anything wrong. That just leaves medication as being the problem. I have been on both of
I was wondering if anyone is on rayos and or plaquenil and experiencing sore and burning feet? My feet are painful to walk on them and they burn almost all the time. I am not diabetic and the foot dr. can't find anything wrong. That just leaves medication as being the problem. I have been on both of
Linny3
in
PMRGCAuk
6 years ago
Worried about Down syndrome result
Hi Everyone, I am nearly 20 weeks pregnant and it's my first pregnancy , I am just worried about my result of Down syndrome. I did the combined test (CT) at week 17 and the result is 1.35% of increased risk and 98.65% of low risk, and I am scared to do the CVS or the Amniocentesis test because of their
Hi Everyone, I am nearly 20 weeks pregnant and it's my first pregnancy , I am just worried about my result of Down syndrome. I did the combined test (CT) at week 17 and the result is 1.35% of increased risk and 98.65% of low risk, and I am scared to do the CVS or the Amniocentesis test because of their
Tittina
in
Pregnancy and Parenting Support
6 years ago
Anaesthesia
Hello everyone! First of all, I want to thank everyone in this group for being involved and sharing your life. I will start sharing more. I have been diagnosed since Jan 2015 and I’m doing really well. I’m a 55 yr old female artist. Taking c/l 25/100 three times a day plus I’m on HDT therapy, taking
Hello everyone! First of all, I want to thank everyone in this group for being involved and sharing your life. I will start sharing more. I have been diagnosed since Jan 2015 and I’m doing really well. I’m a 55 yr old female artist. Taking c/l 25/100 three times a day plus I’m on HDT therapy, taking
StudioV
in
Cure Parkinson's
6 years ago
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