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How do I get help
I haven’t been officially diagnosed and I just get fobbed off all the time a gynaecologist said a few years ago that I probably have endo and that was the end of it. I asked my gp to refer me to gyno a while ago and she said no. She said that the meds I was on (cabergoline for my prolactin levels being
I haven’t been officially diagnosed and I just get fobbed off all the time a gynaecologist said a few years ago that I probably have endo and that was the end of it. I asked my gp to refer me to gyno a while ago and she said no. She said that the meds I was on (cabergoline for my prolactin levels being
ZebraZone
in
Endometriosis UK
3 years ago
Where is the best place to buy K2 mk 7
Hello everyone - hope you are all as well as can be expected considering we all have health issues. I see a lot of people suggest taking vitamin K2 Mk 7 to aid with calcium. I've been looking on-line at several places selling it and am getting more and more confused in the process. Can anyone please
Hello everyone - hope you are all as well as can be expected considering we all have health issues. I see a lot of people suggest taking vitamin K2 Mk 7 to aid with calcium. I've been looking on-line at several places selling it and am getting more and more confused in the process. Can anyone please
pal-o-mine
in
PMRGCAuk
3 years ago
Alendronic Acid - needed or not?
Hi to all you lovely, helpful people, Wonder if someone can advise me. I am currently on 10mg of Prednisolone which I take after Omeprasol every morning. My doctor has also prescribed Alendronic Acid 70mg for me as a previous DEXA scan (2 years ago and no figures given to me at the time) showed my bones
Hi to all you lovely, helpful people, Wonder if someone can advise me. I am currently on 10mg of Prednisolone which I take after Omeprasol every morning. My doctor has also prescribed Alendronic Acid 70mg for me as a previous DEXA scan (2 years ago and no figures given to me at the time) showed my bones
pal-o-mine
in
PMRGCAuk
3 years ago
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Hi all, I had a dexa scan in April which came back with a t score of -3.9 and a diagnosis of osteoporosis of the spine. I already knew I had a compression fracture of L2 vertebrae after an x-ray. Doctor prescribed alendronic acid and vit d3 but I stopped the alendronic acid because it made my IBS worse
Hi all, I had a dexa scan in April which came back with a t score of -3.9 and a diagnosis of osteoporosis of the spine. I already knew I had a compression fracture of L2 vertebrae after an x-ray. Doctor prescribed alendronic acid and vit d3 but I stopped the alendronic acid because it made my IBS worse
Manray11
in
Bone Health and Osteoporosis UK
3 years ago
Diet for a vegetarian with T score of -3.5 on the spine
Hello all. I’m 61, male, and was on pred for 30 months to treat GCA and PMR, finally stopping in January this year but had to restart at 15mg in July, tapering and now down to 8 I had a DEXA in August that gave a T score of -3.5 score compared to -3.2 three years ago. It’s said said to be between
Hello all. I’m 61, male, and was on pred for 30 months to treat GCA and PMR, finally stopping in January this year but had to restart at 15mg in July, tapering and now down to 8 I had a DEXA in August that gave a T score of -3.5 score compared to -3.2 three years ago. It’s said said to be between
Brizzleben
in
PMRGCAuk
3 years ago
Change in taste
Ive been taking alendronic acid for 3 months now and tolerate it fairly well. However Ive found I’m finding cooked vegetables and meat unpalatable. My appetite hasn’t changed so I’m filling up on rubbish! Which isnt good. Thinking of asking my doctor to change my medication. Anyone else had this issue
Ive been taking alendronic acid for 3 months now and tolerate it fairly well. However Ive found I’m finding cooked vegetables and meat unpalatable. My appetite hasn’t changed so I’m filling up on rubbish! Which isnt good. Thinking of asking my doctor to change my medication. Anyone else had this issue
Tues
in
Bone Health and Osteoporosis UK
3 years ago
Strategies to manage fatigue
Hi guys I have been diagnosed in April and been on Ursodiol since. No idea yet if the medication is working since I switched insurances and my first appointment with the hep specialist is still two months out. (What a system!) Anyway, for the most part I am doing ok but the fatigue and it’s unpredictable
Hi guys I have been diagnosed in April and been on Ursodiol since. No idea yet if the medication is working since I switched insurances and my first appointment with the hep specialist is still two months out. (What a system!) Anyway, for the most part I am doing ok but the fatigue and it’s unpredictable
Knoesel
in
PBCers Organization
3 years ago
Has anyone had zoledronic acid infusion. I have PBC and have recently been diagnosed with osteoporosis of the spine.
Zoledronic Acod Infusion
Zoledronic Acod Infusion
AngelaGM
in
PBC Foundation
3 years ago
elevated ALP ALT AST
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
hi there everyone! im 9 year post liver transplant and 6 years ago i was diagnosed with PTLD and recurrent PBC was put on ursodiol which within a few months lowered levels almost to normal but unfortunately my most recent blood work showed ALP of 196 and ALT of44 AST 44 all very elevated. due to gastrointestinal
azzurra
in
PBC Foundation
3 years ago
Some supplements that have helped me a lot. Glutathione, berberine, and alpha lipoic acid.
I've had great results with reducing numbness and brain fog by taking Glutathione, berberine, and alpha lipoic acid. It's been a nice reduction in the neuropathy since taking these supplements. They all have effects that help with what we're going through here. You'd need to read up on any sort of
I've had great results with reducing numbness and brain fog by taking Glutathione, berberine, and alpha lipoic acid. It's been a nice reduction in the neuropathy since taking these supplements. They all have effects that help with what we're going through here. You'd need to read up on any sort of
Sammyo23
in
Pernicious Anaemia Society
3 years ago
2nd Treatment attempt
Hi, Going in second medication attempt has commenced. Yesterday I took my first dose of Risedronate and so far not great. Fingers crossed it improves. After 3 doses of Alendronic Acid as I had to stop taking as wasn't tolerating it.
Hi, Going in second medication attempt has commenced. Yesterday I took my first dose of Risedronate and so far not great. Fingers crossed it improves. After 3 doses of Alendronic Acid as I had to stop taking as wasn't tolerating it.
NewBloom
in
Bone Health and Osteoporosis UK
3 years ago
Advise please
Has anyone tried Mirtazpine gp has prescribed as sleep aid but know they are also and anti depressant any advise would be most helpful many thanks
Has anyone tried Mirtazpine gp has prescribed as sleep aid but know they are also and anti depressant any advise would be most helpful many thanks
sunsation1
in
Thyroid UK
3 years ago
Ursodiol is working :)
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
Hi everyone, I was diagnosed with PBC back in May after years of trying to figure out what was wrong. I started on Ursodiol right away and yesterday, I got my bloodwork results back after 3 months of being on it. My liver numbers went from off the charts to practically normal again. The Ursodiol is working
ginabean
in
PBCers Organization
3 years ago
Prednisolone/Vitamin D3 timing
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
I’ve been suffering symptoms of PMR since June 2020 and started treatment in October 2020. Started on 15mg Pred and now down to 11mg - reducing by 1mg every 6 weeks. So far so good! Following original advice from GP I take all medication at 8am with breakfast - this includes Pred, Vitamin D3, Omeprazole
Dorothy61
in
PMRGCAuk
3 years ago
DEXA Scan Results
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
Hi I had a Spine T-score of -3.7 on the DEXA scale and have been taking Alendronic Acid on and off for a couple of years, but it causes stomach problems which seem to stop when I'm not taking it. I'm thinking of stopping again but am worried my bone density will get worse if I do, does anyone else have
SandyBea
in
PMRGCAuk
3 years ago
Does anyone have advice pls?
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
I have severe endo which I have been managing best I can with pain killers and by taking the pill to try and get my periods under control. It’s not been perfect but it’s manageable . I was offered a hysterectomy but because of bowel involvement they couldn’t guarantee that I wouldn’t get long term damage
Bagpuss1848
in
Endometriosis UK
3 years ago
Why can always find issue with having extreme PMS on birth control pill
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
I am on the birth control to regular my period and did have very heavy period before . I always seem to be struggling with some extreme PMs know that I am on the BC pill. I went to different doctor before that i went BC Pill . one just did blood test . next same doctor put I on tranexamic acid and
Hidden
in
Women's Health
3 years ago
Ever feel like you can't win?
Bad day at work. I'm burned out at my job, and have been seriously struggling with it for at least two years. You may ask, why don't I find something else? Valid question. I don't have skills to get anything else meaningful outside of something like retail/cashier. My mental and emotional health cannot
Bad day at work. I'm burned out at my job, and have been seriously struggling with it for at least two years. You may ask, why don't I find something else? Valid question. I don't have skills to get anything else meaningful outside of something like retail/cashier. My mental and emotional health cannot
ComingUpRoses
in
Anxiety and Depression Support
3 years ago
List of nutrients that were tested in clinical trials with outcomes for PD 2021
Interesting table 2 in this document https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjpu4uz_NLyAhUSnGoFHZ_KAvA4ChAWegQIGhAB&url=https%3A%2F%2Fwww.mdpi.com%2F2072-6643%2F13%2F1%2F28%2Fpdf&usg=AOvVaw3KMSQ5lmI_QR5auNrFah_5 After some good feedback I have decided this is a poorly
Interesting table 2 in this document https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjpu4uz_NLyAhUSnGoFHZ_KAvA4ChAWegQIGhAB&url=https%3A%2F%2Fwww.mdpi.com%2F2072-6643%2F13%2F1%2F28%2Fpdf&usg=AOvVaw3KMSQ5lmI_QR5auNrFah_5 After some good feedback I have decided this is a poorly
Bolt_Upright
in
Cure Parkinson's
3 years ago
A Few More Weeks
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
I’m struggling with the side effects of Alendronic Acid, the hardest to cope with is the tiredness it’s overwhelming. I take my tablet on a Wednesday ( I’ve just taken my 4th) and I just sleep. I spoke to my GP the previous two weeks, shortness of breath - given steroids and then stomach pain. Today
Elaiworthy
in
Bone Health and Osteoporosis UK
3 years ago
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