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Zoledronic Acid infusion
So I’ve had the first infusion and boy I was so ill for 2 weeks - is this really worth it for 3 x annual infusions ? I’ve just had a thought is having these 3 infusions a permanent cure so as to speak or will my bones degenerate again over time because if they do just what is the point of having it
So I’ve had the first infusion and boy I was so ill for 2 weeks - is this really worth it for 3 x annual infusions ? I’ve just had a thought is having these 3 infusions a permanent cure so as to speak or will my bones degenerate again over time because if they do just what is the point of having it
Babyr1996
in
Bone Health and Osteoporosis UK
5 years ago
Diphenhydramine
How long does it take for Diphenhydrami ne to leave the system as I want to try another sleep aid?
How long does it take for Diphenhydrami ne to leave the system as I want to try another sleep aid?
jonboy40
in
Sleep Matters
5 years ago
Rheumy update
Saw the rheumy last week and although I didn’t get the results yet for the DXA scan on 2nd August, I am to stick with the Prednisolone and a slow taper. Hurrah! The Leuflomide and mycophenolate (apologies for spelling) questions arose but they are not recommended for me- hurrah again! I did tell the
Saw the rheumy last week and although I didn’t get the results yet for the DXA scan on 2nd August, I am to stick with the Prednisolone and a slow taper. Hurrah! The Leuflomide and mycophenolate (apologies for spelling) questions arose but they are not recommended for me- hurrah again! I did tell the
Cyclegirl54
in
PMRGCAuk
5 years ago
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Alendronic acid
Hi, I've just been reading the leaflet that has come with my alendronic acid, it says some people can't take it, one of these reasons is if you have digestive problems, I have IBS and UC, do the doctors not actually look at your notes before prescribing meds, I already have bad indigestion from the steroids
Hi, I've just been reading the leaflet that has come with my alendronic acid, it says some people can't take it, one of these reasons is if you have digestive problems, I have IBS and UC, do the doctors not actually look at your notes before prescribing meds, I already have bad indigestion from the steroids
Poppylop
in
PMRGCAuk
5 years ago
Just saying Hello and giving an update
Hi guys, how are you all? I hope not too bad. I have been extremely tired and my fingers and toes have got much worse lately, so I'm actually struggling typing right now.. I would like to try to minimize my typing but it's actually really difficult because of computer and phone use daily! :o How do you
Hi guys, how are you all? I hope not too bad. I have been extremely tired and my fingers and toes have got much worse lately, so I'm actually struggling typing right now.. I would like to try to minimize my typing but it's actually really difficult because of computer and phone use daily! :o How do you
regina79
in
NRAS
5 years ago
Swollen prickling numb legs and feet
I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 2018. Had a couple of flares and was put on Met and then Lev December 2018. Since taking all the prescribed drugs (Omnipresole been taking for years, Aspirin, chewable vit D, Alendronic Acid, iron tablets) I have had horrendous
I have been tapering from 60mg to currently 8mg since diagnosis of GCA in May 2018. Had a couple of flares and was put on Met and then Lev December 2018. Since taking all the prescribed drugs (Omnipresole been taking for years, Aspirin, chewable vit D, Alendronic Acid, iron tablets) I have had horrendous
Cairn
in
PMRGCAuk
5 years ago
Ibandronic Acid
I tried to tolerate Alendronic Acid, but was quite poorly with taking it, However my doctor prescribed Ibandronic Acid taken monthly; this is the 3rd monthly dose now. I can truly say now that I’ve had no side effects at all- Hope this helps someone experiencing the side effects of Alendronic Acid.
I tried to tolerate Alendronic Acid, but was quite poorly with taking it, However my doctor prescribed Ibandronic Acid taken monthly; this is the 3rd monthly dose now. I can truly say now that I’ve had no side effects at all- Hope this helps someone experiencing the side effects of Alendronic Acid.
Wayfair
in
PMRGCAuk
5 years ago
Pain in right hip and rib
While on ADT and PSA 0.008, can the cancer spread to the pelvic bone ie sacral ala?
While on ADT and PSA 0.008, can the cancer spread to the pelvic bone ie sacral ala?
Neeta12
in
Advanced Prostate Cancer
5 years ago
The last month
Diagnosed PMR Nov. last. Now starting my last month at 1mg pred. Everything has went smoothly. Hopefully I will still be as well at end Sept. Will be glad to get off Alendronic acid. Hope everyone is making same progress as I have.
Diagnosed PMR Nov. last. Now starting my last month at 1mg pred. Everything has went smoothly. Hopefully I will still be as well at end Sept. Will be glad to get off Alendronic acid. Hope everyone is making same progress as I have.
barny49
in
PMRGCAuk
5 years ago
Zoledronic Acid infusion
Hi Thursday morning I had my first Zoledronic Acid infusion and not liking the side affects one bit. I feel aweful flue without the runny nose & sore throat - not nice
Hi Thursday morning I had my first Zoledronic Acid infusion and not liking the side affects one bit. I feel aweful flue without the runny nose & sore throat - not nice
Babyr1996
in
Bone Health and Osteoporosis UK
5 years ago
DEXA scan results and thanks to this forum.
Firstly thanks to this forum for the advice about alendronic acid and dexa scans. In brief, I was diagnosed with PMR in April started pred in May. My GP wanted me to go on AA because I'd broken a bone a few years back and there was the assumption I was low bone density. (I mentioned it was a spectacular
Firstly thanks to this forum for the advice about alendronic acid and dexa scans. In brief, I was diagnosed with PMR in April started pred in May. My GP wanted me to go on AA because I'd broken a bone a few years back and there was the assumption I was low bone density. (I mentioned it was a spectacular
Daisyfield
in
PMRGCAuk
5 years ago
PROLONGE BLEEDING ?PCOS
Hi guys, I've recently joined this site as a recommendation from a friend. I was wondering if anyone can give me some advice. I've been having prolonged periods since the beginning of may. The 2nd week of may i started my period and I was on it for 8 days. This is unusual for me as my periods are only
Hi guys, I've recently joined this site as a recommendation from a friend. I was wondering if anyone can give me some advice. I've been having prolonged periods since the beginning of may. The 2nd week of may i started my period and I was on it for 8 days. This is unusual for me as my periods are only
Shaz002
in
PCOS UK (Verity)
5 years ago
Unsuccessful pain management
Hi everyone, Last night I ended up being taken into my local A + E by ambulance after ringing 111. I’m on the second day of my cycle and have been having my usual symptoms; sickness, headaches, fainting, diarrhoea and feeling extremely fatigued. The pain this month is the worst it’s been, it just seems
Hi everyone, Last night I ended up being taken into my local A + E by ambulance after ringing 111. I’m on the second day of my cycle and have been having my usual symptoms; sickness, headaches, fainting, diarrhoea and feeling extremely fatigued. The pain this month is the worst it’s been, it just seems
Jessicat87
in
Endometriosis UK
5 years ago
Mefenamic Acid
Hi all. I was wondering about others' experiences with mefenamic acid. I've heard/read some things about there being a limit to how much you can take it, or it becoming less effective over time. I've also heard something about it potentially *causing* pain, if you take it for too long??? I'm planning
Hi all. I was wondering about others' experiences with mefenamic acid. I've heard/read some things about there being a limit to how much you can take it, or it becoming less effective over time. I've also heard something about it potentially *causing* pain, if you take it for too long??? I'm planning
Rube2
in
Endometriosis UK
5 years ago
Any Pcos ladies taking myo-inositol & alpha-lipoic acid before IVF?
Hi Ladies, I was diagnosed with PCOS around 15 years ago. It wasn’t until my second ectopic pregnancy that I started to really educate myself on the condition. I’m not your ‘typical’ PCOS sufferer (as I’m constantly told, like it makes a difference 😑) I have low BMI, no excessive hair growth or acne
Hi Ladies, I was diagnosed with PCOS around 15 years ago. It wasn’t until my second ectopic pregnancy that I started to really educate myself on the condition. I’m not your ‘typical’ PCOS sufferer (as I’m constantly told, like it makes a difference 😑) I have low BMI, no excessive hair growth or acne
Chloettc2020
in
Fertility Network UK
5 years ago
Myo-inositol & Alpha-lipoic acid supplements
Hi Ladies, I was diagnosed with PCOS around 15 years ago. It wasn’t until my second ectopic pregnancy that I started to really educate myself on the condition. I’m not your ‘typical’ PCOS sufferer (as I’m constantly told, like it makes a difference 😑) I have low BMI, no excessive hair growth or acne
Hi Ladies, I was diagnosed with PCOS around 15 years ago. It wasn’t until my second ectopic pregnancy that I started to really educate myself on the condition. I’m not your ‘typical’ PCOS sufferer (as I’m constantly told, like it makes a difference 😑) I have low BMI, no excessive hair growth or acne
Chloettc2020
in
PCOS UK (Verity)
5 years ago
Migraine with Aura
When I first started suffering from migraines in 97 I often had migraines with aura and spent many a lesson in the first aid room waiting for the aura to pass. Once I hit puberty the aura part of the migraine tailed off and apart from one odd attack I have not suffered with migraine aura for 15 years
When I first started suffering from migraines in 97 I often had migraines with aura and spent many a lesson in the first aid room waiting for the aura to pass. Once I hit puberty the aura part of the migraine tailed off and apart from one odd attack I have not suffered with migraine aura for 15 years
Kent07
in
National Migraine Centre
5 years ago
Alendronic Acid and Osteoporosis
Hi does anyone take Alendronic Acid 70mg and noticed hair loss I am interested as I have been prescribed it and looking into it there are lots of nasty side effects such as hair and eyebrow loss and jawbone problems. Thanks 14penny
Hi does anyone take Alendronic Acid 70mg and noticed hair loss I am interested as I have been prescribed it and looking into it there are lots of nasty side effects such as hair and eyebrow loss and jawbone problems. Thanks 14penny
14penny
in
NRAS
5 years ago
Do supplements help to increase GFR?
Hi everyone. I’m a new member who have recently been diagnosed with stage 3 Chronic Kidney Disease ( CKD ) and besides prescribing Statins for my High Cholesterol (which is 5.5) my doctor will not offer any further help at this time. He says my Chronic Kidney Disease is not at an advanced stage for
Hi everyone. I’m a new member who have recently been diagnosed with stage 3 Chronic Kidney Disease ( CKD ) and besides prescribing Statins for my High Cholesterol (which is 5.5) my doctor will not offer any further help at this time. He says my Chronic Kidney Disease is not at an advanced stage for
GFR45
in
Kidney Disease
5 years ago
Petition to teach epilepsy in PSHE lessons in schools
As of 2020 First Aid will be taught in schools, that’s in PSHE lessons. They will learn about seizures and the recovery position as part of First Aid, BUT they won’t be taught anything specifically about epilepsy! It’s time we taught school children what epilepsy actually is, what causes it, who can
As of 2020 First Aid will be taught in schools, that’s in PSHE lessons. They will learn about seizures and the recovery position as part of First Aid, BUT they won’t be taught anything specifically about epilepsy! It’s time we taught school children what epilepsy actually is, what causes it, who can
Zoe2010
in
Epilepsy Action
5 years ago
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