Experiences with

Autosomal recessive polycystic kidney disease (ARPKD)

Would be so grateful for your help. When PMR hit in February 2023 thought I’d be off steroids in a couple weeks how foolish was I….. Prescribed Prednisolone 20mg February 2023 tapered to 10mg 3 weeks later, GP didn’t give instruction and I didn’t understand but it worked.. At some point was changed

Steage 4, gleason 9, 49 at diagnosis pelvice mets and possibly more mets. Only signs were urinating blood guys n gore... 2.5ish years into adt, did chemo, dit radio therapy. PSA went from 20 to under 0.1 but as soon as went down it's only ever risen Slowly but constantly. This week I'm urinating blood

So my husband is currently incarcerated and is still doing dialysis three times a week. He also has been taking his binders three times a day. Before he was incarcerated his phosphorus levels were normal but his latest blood test result shows that his phosphorus level is a 5.9 he can't exactly have a

So far I am of the conclusion that: because my potassium is low that my AMLOPIDINE should be replaced with either : A: Inderal B: Hemangeol C: InnoPran D: Monoket E: Imdur

What do sneakers have to do with fighting kidney disease? For Randy Yim, they’re everything. Every time he goes to dialysis, he wears a new pair of his favorite sneakers, takes a photo, and shares the story behind them on social media. What started as a way to cope and update his family and friends has

My Dad had a PSMA Pet scan that shows recurrence in prostate and 2 small spots on the spine at L2 and T8. He was On Abiraterone and Prednisone for exactly 3 years. Dr at City of Hope recommended adding Provenge and continuing Abi and Pres. Any success stories using Provenge with or after Abiraterone?

Hi My husband went to a specialist a few weeks ago ( Neurologist) she ordered a bunch of blood work to be done. My husband was called into our General regular doctor as he wanted to go over the blood work and we have to wait to talk to the specialist now . He gave my husband a copy of the blood work

Please see my bio for history on my dad. He has been taking lynparza since May. Yesterday he went in to have an exchange of his right ureteral stent. Here is an excerpt from the procedure: "Systematic cystoscopy was performed. This revealed diffuse tumor involvement of the bladder floor. This

A recent biopsy revealed a Gleason 4+3 with PNI and I have scheduled focal salvage cryoablation at Duke Cancer Center on December 11. This is a recurring cancer following primary radiation 10 years ago. The doctor there, Dr Polascik, will perform the procedure and is very experienced in cryotherapy.

Hi ladies I'm struggling. I had my op almost exactly a year ago and chemo finished in June. Scan showed NED, but was soooo tired (and bloated, with pelvic pains that have now stopped) that come October I was given another scan, NED again. However, I am so tired I cannot function. I feel like I have

I was misdiagnosed with PMR for years. It was eventually diagnosed as vasculitis and it's attacked my kidney. I am not suitable for dialysis and my prognosis is 6 months to live. My egfr is5 and I am Asymptomatic at the moment. IAM angry it took so long to get a proper diagnosis.

Intraductal with cribriform pattern patient discovered 9/24. 4+3=7, 2 cores grade 4 with 50%, non metastisized, perinural invasion (1 core), 2 cores 3+4=7 5 to 20% grade 4 Possible extracapsular extension. MD Anderson surgeon ruled Not a candidate for surgery (margins, Extracapsular extension). they

Hi all I need some help and advice if possible. I live in the UK and currently work. I have a 8 yrold child who is at school. I am under review with the hospital just incase the protein level spikes up..I was .1.8 last Yr now gone up to 2.6..so I know its creeping up. Its so stressful thinking

✨Powered by AI Chronic kidney disease is a prevalent condition that affects millions worldwide. The research paper titled "Innate Immunity and CKD: Is There a Significant Association?" explores the potential connection between the body's innate immune system and CKD. The study delves into how innate

Hi - been on hydroxycarbamide for about 4 months. Started feeling hot - but no fever and skin normal..anyone else? Nurse says not usual side effect so perhaps drug interaction ( I take other meds)

I've recently been told I have low salt levels after a blood test. I've never cut back on salt in my diet but don't eat any ultra processed foods. Initially my reading was 128 by adding a great deal of salt to my diet as advised by one gp also to cut down on my liquid intake my level was up to 134 .

Hi, I had drug induced lupus back in the early 2000s (13/14 years of age) which was debilitating at the time. I came off of Minocin and the symptoms pretty much disappeared, however now I’m in my 30s I am noticing big issues with my finger, wrist and elbow joints (wrists have always had bad mobility

I have insomnia on Naraparib and I've heard that magnesium is good with helping to sleep. I've checked the drug interaction to see if it's ok to take magnesium, there's no contraindication so I wonder wonder if anyone else has tried it and has it helped with sleeping? Many thanks.

I’m struggling with this badly. No one can tell me WHY this is happening, or the cause, and all anyone wants to do is monitor, it’s just super frustrating. Recently, I got sent to the ER because my kidneys dropped severely in function. Years ago, I had an AKI, and that was caused by dehydration from

Hi... My best friend has had kidney failure for some years. Six months ago he suddently got very sick again. Multiple blood transfuisions. Dialysis twice a week. Been in ICU more than not last 6 months. Last week he was vomitting blood. He just got out of ICU and is back in again - fluid in lungs and