Experiences with

Autosomal recessive polycystic kidney disease (ARPKD)

After battling kidney failure and receiving a transplant, Andrew is determined to become a doctor and change lives. Read more: https://www.kidney.org/news-stories/how-kidney-failure-diagnosis-and-transplant-inspired-future-doctor

last 18 months have seen me in daily pain with reduced mobility due to lumbar spine stenosis and cauda equina. after being on waiting list for spinal injection for 8 months finally have a date in two weeks… I can’t have operation as I have aortic stenosis .I’m now having painful bladder problems..

I am recovering from a hysterectomy and anterior and posterior pelvic floor repair nearly 12 weeks ago. For the last few weeks I have become extremely sore at the vaginal entrance and can feel knotty lump’s which I think is scar tissue. I cannot wear anything other than leggings as jeans etc make it

Hi everyone I wonder if anyone can give me advice/help allay my anxiety over on-board oxygen for my teenager! His fit to fly test was borderline, but the consultant says it would be a good idea to have it on board and use if needed/when sleeping (I can test SATS with oximeter). Has anyone else here

Class 2 Medicines Recall: Boots Paracetamol 500 mg tablets (16s), EL(25)A/10. Issued 4 March 2025. Aspar Pharmaceuticals Limited have informed the MHRA of an error related to a batch of Boots Paracetamol 500 mg tablets (16s). The foil blister inside the carton incorrectly states ‘Aspirin 300 mg Dispersible

I've just had my latest bloods done and they have come back with some abnormal results. I'm sure the Dr will ring and make me an appointment but looking at them it's serum creatinine and it's been increasing over the time I've been on mtx. I believe this is kidney issues. Anyone else had this? I have

Hi all it's me again Stuart I am in hospital was diagnosed with mpn thrombocytosis awaiting bone marrow I was admitted with my legs shaking now cannot walk now when my feet touch the floor the turn blue I also recently had a catheter fitted thickening of the bladder now been told it's permanent so things

I was on three movicol 3 docusate and senna aday, for over a year, my doctor wanted to swap senna to Fibrogel, I am struggling at that amount at getting it in before it thickens and after eating and then having a drink afterwards, today after I took it within 20 minutes it was like it all the liquid

I have had PN for nearly a decade. The pains were initially appalling. However, I learnt to live with the issue and at times could almost ignore it. I had a sudden prolapse a year ago after a period of inactivity due to having to rest after an operation. As soon as I returned to my normal activities

Hello group! Thank you all for your responses. I read each response carefully and have been scheduling appointments. My next question: Is it possible for CLL to cause kidney failure (Stage IIIA), but still with the patient being on watch and wait? If that was determined, would treatment be recommended

Has anybody had an IL-6 blood test to check on inflammation? Was that through your GP or privately?

apparently these are calcineurin inhibitors that decrease inflammation and are originally used as a short-term treatment for mild to moderate eczema. Pimecrolimus can be used 'off-label' for scalp psoriasis in areas that topical steroids may cause issues..... I have read lots of info but would love

[i]Class 2 Medicines Recall: Boots Paracetamol 500 mg tablets (16s), EL(25)A/10 [/i] [i]Aspar Pharmaceuticals Limited have informed the MHRA of an error related to a batch of Boots Paracetamol 500 mg tablets (16s). The foil blister inside the carton incorrectly states ‘Aspirin 300 mg Dispersible

I am in a pickle. My first 2 PSAs after prostate removal are 0.39 and 3 months and 0.4 at 4 months. My urologist is referring me for radiation oncology. Even if my PSMA only lights up in the prostate bed, I don’t think radiating the pelvis would be wise: 1. I had 3200 grey treatment 43 years ago

One year on Erleada and PSA is rising. I had an Orchiectomy in Aug of '23 to shut down the tetestorone. I have extensive mets in my backbone. Looking options besides chemotherapy for the next phase in this battle.

hello ladies. I had full hysterectomy and large cyst removed last July… was advised I had atypical hyperplasia but no cancer… just had bloods done as I am feeling unwell and my d dimer and ca125 are raised… gynaecologist are saying highly unlikely it’s a problem but recommend ct scan… I would really

I have recently been diagnosed with mpn thrombocytosis I would like to add I was suffering with very high blood pressure and am on 5 separate blood pressure pills to control it now I now it is the mpn hang in there

Happy Monday my friends. So my recovery from surgery was ticking along nicely..... I was gaining more mobility and finally getting out for some fresh air on a hired mobility scooter. Rewind to Thurs afternoon when the twinges and an incling a uti was brewing started. Contacted gp Friday morning and

everything i do reminds me of what i could do which adds to my anxiety, i worked as a cbt therapist so its difficult for me to accept i have this diagnosis of psp i am avoidant a hate each day, i go back to bed x my balance is terrible but i still walk x i crash into things i know they are there . I

I have been taking this for 3 weeks,1 pill a day.The dose is 2 per day but they told me just to take 1 because diarrhea is one of the side effects.Not supposed to use laxatives or stimulants.I have a history of constipation,so guess what I still have to take something at least every 2 days.This is a