I have been taking this for 3 weeks,1 pill a day.The dose is 2 per day but they told me just to take 1 because diarrhea is one of the side effects.Not supposed to use laxatives or stimulants.I have a history of constipation,so guess what I still have to take something at least every 2 days.This is a blocker not a binder,I was taking calcium acetate & my phos was 5.5 ,labs yesterday say its 9.3 now.!
I give up😒
Hi! I’m sorry you’re dealing with this. May I ask why they took you off the calcium acetate binder when it seemed to be keeping your phosphorus level within range? Was it perhaps throwing your calcium level off?
My mom suffers from constipation too, and her nephrologist suggested she use MiraLAX and SennaPlus after dialysis to keep herself regular (she doesn’t take SennaPlus on her “off” days, just some MiraLAX in her morning coffee to make sure she doesn’t have diarrhea on her treatment days). That, along with regularly eating small salads/dark greens and beans on occasion, is working well for her.
Please don’t give up! It might take some tweaking of medications, but things will get better.
yes, it was making my calcium off, I wish I knew what low phos foods to eat .I have been on dialysis almost 5 years.Glad the remedy's work for your mom.
There are plenty of non-calcium based phosphate binders that you can try. My mom uses Auryxia (ferric citrate), which has the added bonus of keeping her iron level up. Every body reacts differently, so you may need to try different binders until you find the one that works best for you. Don’t be afraid to ask your doctor to prescribe another binder, especially since the Xyphozah isn’t working. Or, if you were doing really well otherwise on the calcium acetate, they can prescribe Cinacalcet (Sensipar) to help lower your calcium level while taking the calcium acetate.
Here are some resources about low phosphorus foods you should eat:
kitchen.kidneyfund.org/wp-c...
freseniuskidneycare.com/thr...
davita.com/diet-nutrition/a...
Googling “low phosphorus diet dialysis” will bring up plenty of websites that offer dietary advice and low phosphorus recipes to help you along. Your dialysis center’s dietician should also be able to provide you with resources and guidance. Try keeping a diary of what you eat for one week, then show it to the dietician so they can recommend alternatives for the high phosphorus foods you’re eating.
Finally, be on the lookout for “hidden” phosphorus in packaged foods. This website tells you what to look for when reading nutrition labels:
kidney.org/kidney-topics/yo....
Good luck to you!
Thank you,I was on the Auryxia but it did constipate me I may have to go back on it.Will keep the Sensipar in mind.Our dietitian may come in tomorrow,she is a sweetheart & very good at her job.
The constipation is definitely an issue with most of the binders out there, but the daily use of MiraLAX and SennaPlus might help. Introducing more fiber into your diet is also a good idea—your dietician can definitely help you find forms that are safe for dialysis patients.
It sounds like you have a good team around you. Keep us posted if you can! 🙂
I sure will !
OMG EXPLOSHA is what I call this blocker. I took it for about 4 months. The diarrhea just got worse and worse. I was afraid I would have an accident. AND it did not work. My phosphorous got worse. I finally stopped it when I became severely dehydrated, which is terrible for ESRD. When I saw my Neph at clinic, she agreed it was not good. She said she had one other patient on it and had the same results. Too bad because it was so easy to take.
yes I was hoping 1 pill a day would be magic.it was easy & I may have eaten more than I should.
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