Experiences with

Autosomal dominant polycystic kidney disease (ADPKD)

My mother was taking diuretics but its not working that much so her physician recommend albumin infusion to control ascites .is it safe to give albumin without paracenthesis

Hi, I recently went back to the doctors in an attempt to sort my endo related issues, was put on a pill to help reduce flow, symptoms. I ended up 7hours in a&e and passed my endometrium. I was in so much pain & was beyond shocked to see I’ve passed grey matter the size of the palm of my hand! None

My husband has been on Nubeqa for 3 1/2 years now. His PSA is rising again, so MO has ordered another PSMA scan and also did a Guardant 360 liquid biopsy blood test, to hopefully find out what's going on. MO said if something shows up on his scan, he will probably start him on Olaparib (Lynparza) and

Hi all i currently take supplements D3 &k2 ,vitamin C and B12.am considering taking Echinacea for immune system and turkesterone to help beef meback up . I have cll and currently on watch and wait. Any advice greatly appreciated.

Hi I'm female 57. Was put in an induced coma in hospital in Spain due to pneumonia caused by accidental overdose of Tramadol.My first memory was being held kidnapped by nurses and I was strapped down with a wire to my neck, the pain was excruciating, and I remember thinking if this is a dream I want

https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/157202-total-prostate-specific-antigen-psa-testing-in-capillary-samples-proof-of-principle-and-feasibility-study-for-home-self-testing-for-prostate-cancer.html Cool if it it becomes reality, so we can maybe finger prick onto

Hello MPN friends. I have primary MF and CKD stage 3, on Jakavi for almost 1 year. I was told by the hematologist that Jakavi + age contribute to worthening the kidney function. I was wondering if any of you are having kidney problems due to MF and if you have any advise on how to treat, diet, cope

Looking for a bit of advice. I was diagnosed with AKN in June 2021 having first identified issues on my scalp in November 2020. Have tried every antibiotic combination under the sun, tried intralesional steroids and had an unsuccessful referral to Plastics. Since June 2024, this has spread to face and

As patients in some areas of UK are not been seen regularly in NHS clinics any more, and routine blood and urine tests being left to the patient and the GP to sort out, it would be useful to know exactly which blood tests and urine tests (and eye tests) should be done every 6 to 12 months for Lupus patients

I’ve been working on putting together a comprehensive gift guide specifically for people with Kidney Disease: https://kidney-disease.curated.spryregistries.com/ We all know that moment - someone texts “let me know if there’s anything I can do to help,” and while their intention is genuine, it’s hard

I had an invigorating workout with my my coach today and we have set some goals1) to improve my posture 2) use low resistance weights to help elongate muscles 3) try to create more symmetry in my body this will it make me look longer and Leaner 4) accept my vegetarian/ vegan diet is just as good for

My name is Carl Frye. I am 65 years old. I create and teach a unique kind of art Called "Primitive Prophetic Art". I see the images in my dreams and visions the Holy Spirit reveals to me through nature. I possess prophetic angelic and spiritual gifts talents and abilities that inhibit my artistic ability

Hello everybody... and a HUGE Corner Welcome to 2025 It is so good to see you here in the corner...and if you just sit a while and take a breather, then that is just fine with me. The drinks are warm, the snacks, still festive and the fire glowing gently. The weather here, is about to turn again and

I'm writing this because now I can laugh at it. I am not writing for sympathy but just to share how we all have trials and roadblocks, but we can get through them. My fun began early in the month. I was put on Xphozah two months ago. It is the newest phosphorous blocker, not a binder. My phosphorous

I know this forum is for Kidney Dialysis but I am reaching out for help. I have Type1 dRTA. It has taken 5 years to diagnosis. I keep going into metabolic acidosis which leads to metabolic acidosis. I am on sodium bicarbonate tablets and potassium and magnesium supplements. The doctors in the ER

Cochrane Review: Treatments for Postpartum Iron Deficiency Anaemia Miriam Davis, PhD | 18 December 2024 …………………………….. Overall conclusion… ‘Slight improvement only in fatigue’ BUT they don’t comment on female RLS help (~5% of the population) or general health improvements for women who are often

Struggling to make a decision, mum is 64, in Africa, egfr is very low and creatinine very high. She walks, does everything as normal but some days she has severe headaches and legs swell. She is starting to have cysts randomly in different places. the most recent one in her left armpit. 4 years ago we

Hi I posted here a couple of yrs ago because i had a CKD injury, dehydration. My creatine levels were high, 143 umol. Egfr 45. A week later after drinking more fluids creatine fell back to 81 umol.egdr 72. Told by GP in UK everything normal. Urea normal range, potassium, sodium all normal. Water sample

Hi, I’m seeking anyone with personal experience or knowledge of someone else undergoing Pluvicto while on dialysis. We are running into many roadblocks getting my dad Pluvicto, because the dialysis center wants his first dialysis after each Pluvicto infusion to be done somewhere else. We have so far

After all the worry, I have started getting appointments scheduled related to my treatment. My most shocking one is that I have been referred to a Colorectal Surgeon to discuss my "Appendix Pathology". My medical oncologist has said he has already been talking to both surgeons about my treatment plan