Experiences with

Autosomal dominant polycystic kidney disease (ADPKD)

I started 6/1 With very very bloody diarrhea, lasted 2 days old blood it appeared to be.. now have thick stool with blood and is hard to clean myself because it just sticks to me. Have Dr appointment today, but I'm weak feeling, lower back pain and inner thighs hurt... My Daddy passed away in 09'

Hello I am worried sick. Had LFTS taken 4 weeks ago and they are v high. My clottings results are fine and kidney function tests normal. The GP made a ‘FEB4’ calculation of 9. Which she says is very significant. I was a heavy drinker but I’ve been scared sober. I have a fibroscan on 23 June and app

My husband had kidney cancer in each kidney 5 years apart roughly 20 years ago. He had partial nephrectomies on each kidney. In November 2022 he progressed to Stage 5 CKD and had to start dialysis. He has low BP and is medicated to keep it up. The transplant team reviewed his case and said they cannot

hello team, I have CLL for 10 years After I started Imbruvica for the last 4 years started to have UTI or oral infection. The last time during the last 2 months have 4 times infections. Constantly on Antibiotics which is very bad. I would like to talk to my doctor Daya from NYU if I should switch

I'm posting this for my (74 year old) sister. It will be long. I'm trying to be a good advocate for her. Sorry if I rant a bit. It's all new and scary. She entered the hospital 3+ weeks ago as an emergency having felt I'll and not eaten or drank much for 5 days. She was diagnosed with complete kidney

6 weeks ago I posted on here that my gfr had come back at 47 and creatine 102 total shock I listened to all your advice drink more water cut out red meat , salt ,exercise more eat healthier , well after 6 weeks had another blood test and gfr was 54 creatine 90 . I Know its not mega but its better

Could laughter really be the best medicine? See how dialysis patients are using laughter therapy to cope. https://www.kidney.org/newsletter/using-laughter-therapy-to-cope-dialysis

Hello friends witg APS- Have any of you been diagnosed with Clear Cell Renal Cell Carcinoma? A tumor was found, randomly, when I had a screening for pain. Two weeks ago I had major surgery to remove the tumor in my kidney. It was 2 inches(4.9cm) in diameter and it was taken out while through robotic

This is my first post here. I'm also a member of kidney disease hub. My eGFR hovers around 30 or down a few points either way. It was 39 then my neph, in Jan, had the new eGFR test and it dropped about 10 points. Now she wants me to think about dialysis. My question for you is 1) which did you

Hi all, Am hoping someone can reasure or give me some advice. I received a transplant on the 11th April 2023 and its been a rough ride so far. I spent a week in ITU and was hooked up to dopamine for 3 weeks to help my blood pressure. My urine out has been slow, for a few days I got between 600-800ml

hi I have been suffering with stomach pain since October after it’s gone worse I had a ultrasound and the report was to refer me to gynaecology as I my endometrium has a cystic appearance snd cyst on ovary, they could not see the right ovary. Has anyone else had this and if so what treatment was given

I have a kidney blood test on Monday at 12.15 should I eat anything before test or wait until over .

https://www.news-medical.net/amp/news/20230517/New-technique-may-reveal-signs-of-Parkinsons-disease-in-urine-samples.aspx

Hello everyone, first of all apologies if everything is not very clear as English is not my first language (I generally speak it very well, however I'm not used to talk about medical terms). I'd love to hear about my dad's situation. My dad was diagnosed with Stage IV PC in September, 2022. PSA was

Hi Fellow Fighters, Prior to my third round of Taxotere last Friday, I had blood work done. After 2 rounds, my PSA dropped 4.7 points. TBH, I feel like crap today, but the results are promising. My blood work also showed low cortisol levels, how concerned should I be about that? Thanks.

Hi I'm age 47 female went into premature menopause at age 13yrs. Developed erosive lichen planus at age 30 which effects all my mucous membranes, 9 gynaecology operations had including a total hysterectomy & vaginectomy....ibs all my life but over the last 6months had severe bowel symtons.Fit test 200

hi. I'm back with question. Reminder: i had declining GFR to 40s that began to go back up to 60 than 62. Latest it dropped to 57. Not very significant but it is back below 60. Should I be concerned or is it so close to 60 it doesn't matter?? is it likely to continue to drop? Or its wait and see i guess

Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We

So at 6 weeks I posted about pain to one side, I was finally send to SAU yesterday for bloods and an ultrasound, my back is so tender to touch and they have found a dark spot in my kidney area? They don't know what it is but sent me home with a lot of pain killers and the promise of a CT scan to take

Hello. Anyone in this forum under 50 and diagnosed with hereditary colorectal/bowel cancer due to Lynch Syndrome? I would love to chat. Thanks.