Experiences with

Autosomal dominant polycystic kidney disease (ADPKD)

everything i do reminds me of what i could do which adds to my anxiety, i worked as a cbt therapist so its difficult for me to accept i have this diagnosis of psp i am avoidant a hate each day, i go back to bed x my balance is terrible but i still walk x i crash into things i know they are there . I

I have been taking this for 3 weeks,1 pill a day.The dose is 2 per day but they told me just to take 1 because diarrhea is one of the side effects.Not supposed to use laxatives or stimulants.I have a history of constipation,so guess what I still have to take something at least every 2 days.This is a

All other blood work looks great. Trying to make sense out of this. Wondering if it could be related to radiation injury. Only urinary symptoms are increased urgency occasionally but no retention. No hypertension or diabetes or any other comobidities. Husband has tele health appointment to discuss but

Has anyone got slight headaches from this and bladder infections thanks onit a year now instead of firmagon

had three months of injections and this is the first month I’ve not had period. Bladder urgency was a bit better but GSM symptoms got worse. I took a10 day course of nitrofurantoin antibiotics for suspected UTI but kidney pains havent gone and I’m now feeling very unwell- headaches, weakness, up all

The National Kidney Foundation (NKF) is turning 75! Since 1950, we’ve worked to make kidney care better, fairer, and more affordable. From helping secure Medicare coverage for dialysis to improving access to transplants, NKF has made a big difference for millions. Join us as we look back at 10 key achievements

Hi All My daughter has IC2 LOM She has macroglossia and other suggestive features but not the hemihypertrophy. Do the children with all kind of genetic mutation get hemihypertrophy?

I was diagnosed stage 3 CKD about 7 years ago. I brought my blood kidney numbers into normal range with nutrition, and my GFR fluctuates. The bloodwork before last it was normal, the last one was back down.The other day, I mentioned this to my opthalmologist and he said it was unusual to have low GFR

Saw this, and I am furious at how few people know of the Equality Act! This woman has MS, and she also has a certified assistance dog. I do and don't want the need for an assistance dog. If I were to have one, I'll probably still have a bit of a laugh saying "bye stick" if/when I've propped it against

"These observations suggest that eliminating circulating α-synuclein may be a possible way to halt the progression of PD." MedicalXpress article. The link between renal failure and Parkinson's disease: Researchers illuminate the underlying mechanisms. https://medicalxpress.com/news/2025-02-link-renal-failure-parkinson-disease.html

The Brave Exchange is hosting a session focused on the benefits of living kidney donation and kidney paired donor transplants. 📅 Date: Thursday, February 6th ⏰ Time: 6:00 p.m. – 7:00 p.m. CST 📍 Virtual Event During this session, we’ll cover: ✅ The benefits of living kidney donation ✅ How kidney

I’m assuming that my husband’s dialysis will begin very soon because his eGFR was 9 a few of weeks ago. We’re in the UK and dependent on the National Health Service, thankfully. My question may seem odd but it just occurred to me. If dialysis isn’t going to slow the disease down, it follows that it’s

Lately it's been Jill Scott who has calmed my nerves. I'm going to switch to Alicia Keys (lots of great songs to sing along to with her https://www.youtube.com/watch?v=xPvwDcrT6rU) It's been a while folks. I've been doing well. Still not on dialysis. Thankful. I have a doctors appointment next Thursday

I mentioned Modified Citrus Pectin in several posts and replies but I was sent this write up and figured it was good to share. https://justusrhope.substack.com/p/preventing-cancers-dementia-and-spike?utm_source=post-email-title

My mother was taking diuretics but its not working that much so her physician recommend albumin infusion to control ascites .is it safe to give albumin without paracenthesis

Hi, I recently went back to the doctors in an attempt to sort my endo related issues, was put on a pill to help reduce flow, symptoms. I ended up 7hours in a&e and passed my endometrium. I was in so much pain & was beyond shocked to see I’ve passed grey matter the size of the palm of my hand! None

My husband has been on Nubeqa for 3 1/2 years now. His PSA is rising again, so MO has ordered another PSMA scan and also did a Guardant 360 liquid biopsy blood test, to hopefully find out what's going on. MO said if something shows up on his scan, he will probably start him on Olaparib (Lynparza) and

Hi all i currently take supplements D3 &k2 ,vitamin C and B12.am considering taking Echinacea for immune system and turkesterone to help beef meback up . I have cll and currently on watch and wait. Any advice greatly appreciated.

Hi I'm female 57. Was put in an induced coma in hospital in Spain due to pneumonia caused by accidental overdose of Tramadol.My first memory was being held kidnapped by nurses and I was strapped down with a wire to my neck, the pain was excruciating, and I remember thinking if this is a dream I want

https://www.urotoday.com/recent-abstracts/urologic-oncology/prostate-cancer/157202-total-prostate-specific-antigen-psa-testing-in-capillary-samples-proof-of-principle-and-feasibility-study-for-home-self-testing-for-prostate-cancer.html Cool if it it becomes reality, so we can maybe finger prick onto