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Becoming mCRPC despite falling PSA
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
Hey guys, I got a question regarding my dad. He was diagnosed in summer 2022 with stage 4, Gleason 4+4, PSA of 122 and many osteoblastic bone metastases throughout the whole skeleton (very high volume) He did the triplet therapy, which lowered his PSA to 0.4 (January 2023). Scans afterwards stated
kennycool
in
Advanced Prostate Cancer
4 months ago
All kidney tests normal EXCEPT albumin/ creatinine ratio
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
hi. Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my albumin/creatinine ratio is slightly above normal. Should I be concerned?
Cobalt2sister
in
Early CKD Support
4 months ago
Basal Cortisol Test Result
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
I have recently had a basal cortisol test and my serum cortisol level is 296 nmol/L. I have an appointment with my GP on Wednesday to discuss. My test results says that this is normal but on reading information on the Internet I’m not too sure that this is entirely correct. I have found the following
Floridafan
in
PMRGCAuk
4 months ago
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Any treatment after Lu-177 (Pluvicto)?
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
I have metastatic prostate cancer and have taken two Pluvicto infusions, but my PSA has gone UP from 2,000 to 3,000. I understand this is the end of the line...unless anyone online has information on where to go from here. Frank.
fsiefert
in
Advanced Prostate Cancer
4 months ago
Return of Armpit Odor - Yikes!!!
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
For almost two years, I (and others! 😃) have noticed the absence of male armpit odor. Attributable to full ADT (for metastatic PCa) and suppression of testosterone. (I'm on Triplet Therapy.) This morning I was surprised to notice odor for the first time since diagnosis. Due shortly for blood panel including
JohnInTheMiddle
in
Advanced Prostate Cancer
4 months ago
Ischemic Cholangiopathy following liver transplant.
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
Hi All, I wonder if anyone on this site has been diagnosed or had a family member/friend receive a diagnosis or ischemic changiopathy following liver transplant surgery? I received an urgent transplant in December 2022 and recovered well up until April/May when the problems started. Symptoms have
KateG94
in
British Liver Trust
4 months ago
Fatty liver in biopsy but not scans
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Hiya, I’m just curious if anyone has had a similar experience where their liver biopsy results shows signs of fatty liver but ultrasounds/CT show an enlarged liver but no fatty liver signs. I’m wondering if this means it’s extremely early stages maybe?
Chaucer89
in
British Liver Trust
4 months ago
How high is high phosphorous??
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
I just got labs back. I was happy to see the crazy good numbers. Even with 2 hours3 days a week. only. MY creatinine went down from almost 7 to 5.89. My bun, pth, potassium all went down and are in range. Calcium in range. Glucose in range. A1C 5.3. the only number that was bad was phosphorous which
Bassetmommer
in
Kidney Dialysis
4 months ago
PSA Rising
Had surgery in November 2021. Gleason 4+3...Post surgery PSA was 0.01. Positive margin (1 millimetre). PSA has risen from 0.1 to 0.06 in 24 months. Doctor says I should do nothing. Until it hits 0.2. Next test is June 2024. Any advice will be appreciated.
Had surgery in November 2021. Gleason 4+3...Post surgery PSA was 0.01. Positive margin (1 millimetre). PSA has risen from 0.1 to 0.06 in 24 months. Doctor says I should do nothing. Until it hits 0.2. Next test is June 2024. Any advice will be appreciated.
Whatnext2019
in
Advanced Prostate Cancer
4 months ago
Advice Greatly Appreciated
Good Day, I would sooooo appreciate a response/advice/opinions.... I was recently advised by my GP (family doctor) that I have cirrhosis. This is of course terrifying...I apparently had sever fatty liver in July 2021 but I was sadly not informed of this. I would have turned it around immediately.
Good Day, I would sooooo appreciate a response/advice/opinions.... I was recently advised by my GP (family doctor) that I have cirrhosis. This is of course terrifying...I apparently had sever fatty liver in July 2021 but I was sadly not informed of this. I would have turned it around immediately.
Confused2024
in
British Liver Trust
4 months ago
Mr Geoff Lloyd
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Diagnosed in 2010 with advanced PC. Prostatectomy in 2011 followed by the "all clear". PSA refused to disappear and so RT followed. PSA still present and PC nodules found in my lung in 2021. I then had a 6 session course of chemotherapy and have been on Abiaterone and Demoxosone drugs ever since.Nodules
Churchman123
in
Advanced Prostate Cancer
4 months ago
Underactive thyroid
I been taking 50mg of thyroxine my levels are normal and I've asked my gp if I can reduce to 25mg. She said yes so started today for 4 weeks I think my levels only raised due to being unwell but since starting hrt I'm doing ok other than heartburn/ indigestion. Has anyone come off completely yet thanks
I been taking 50mg of thyroxine my levels are normal and I've asked my gp if I can reduce to 25mg. She said yes so started today for 4 weeks I think my levels only raised due to being unwell but since starting hrt I'm doing ok other than heartburn/ indigestion. Has anyone come off completely yet thanks
Trixcey
in
Thyroid UK
1 year ago
💤 sleep
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
I've always been a good sleeper but following the stroke triggered by brain aneurysm surgery. I've been regularly finding myself waking at 1-2am thinking it's the morning and time to get up. I'm living in a rehab unit so there are always staff around to reorientate me to the time but it's an annoying
GardenElf
in
Brain Aneurysm Support
4 months ago
PSA Risen in Last 6 months
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Have been on here a week ago, explaining that my husband (who was diagnosed 10years ago) has now been diagnosed with Gastroporesis, so not eating much due to constant nausea and vomiting. We are due to see his Urologist in 2 weeks time, so had the dreaded PSA blood test. It had been almost undetectable
Grasscutters
in
Advanced Prostate Cancer
4 months ago
PSA Rising
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
Asking for a friend of my father this time. He had surgery in december 2022 and everything was removed including glands. Gleason 4+5. His PSA has risen från 0.1 to 0.14 in 12 months. His doctor says to do nothing until it hits 0.2. But shouldn’t he do more? Maybe he doesn’t have advanced cancer yet.
TheTopBanana
in
Advanced Prostate Cancer
4 months ago
AUTOIMMUNE HEPATITIS
hello, I was diagnosed with Adult Onset Stills Disease aged 17 which for me manifests as rheumatoid Disease. I was drug free except pain relief (not NSIAD) by the age of 22 and I’m now 60. I have AI related conditions such as Lichen Sclerosis, Interstitial Cystitis and early stage Depuytrens Contracture
hello, I was diagnosed with Adult Onset Stills Disease aged 17 which for me manifests as rheumatoid Disease. I was drug free except pain relief (not NSIAD) by the age of 22 and I’m now 60. I have AI related conditions such as Lichen Sclerosis, Interstitial Cystitis and early stage Depuytrens Contracture
Hidden
in
British Liver Trust
1 year ago
Blood tests woes….B12 included against my wishes
I’ve just been for my coeliac, rheumatological etc blood tests to see if if autoimmunity is causing seizures issues. Against all recommendations from British Haematology and others B12 levels were added. If I wasn’t feeling unwell already and needing the tests I would have refused because I already
I’ve just been for my coeliac, rheumatological etc blood tests to see if if autoimmunity is causing seizures issues. Against all recommendations from British Haematology and others B12 levels were added. If I wasn’t feeling unwell already and needing the tests I would have refused because I already
RoseFlowerDew
in
Pernicious Anaemia Society
1 year ago
After Transplant
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
I had my transplant 9 weeks ago I can’t believe the difference it has had. I sleep all night, no boiling up in the night, my breathing is better I use breathe so loud I think it was all the fluids inside me I was struggling to breathe I feel like I’m 20 years old again and I’m 50 . My mind is so much
lonmallin50
in
British Liver Trust
4 months ago
delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
4 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
4 months ago
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