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Hydrotherapy and beyond?
I have recently been referred for a series of 4 one to one Hydrotherapy sessions at my NHS hospital. When these finish I can take up a course of six classes targeted at either back/core or hip/knee. I am very grateful for the opportunity and have found the comfort of warm, weight bearing water a revelation
I have recently been referred for a series of 4 one to one Hydrotherapy sessions at my NHS hospital. When these finish I can take up a course of six classes targeted at either back/core or hip/knee. I am very grateful for the opportunity and have found the comfort of warm, weight bearing water a revelation
Gillyflower70
in
NRAS
2 years ago
Gabapentin withdrawal hell
I reduced my dosage down from 1800mg to now 600mg per day (I've done this over the course of 2 and a half months) but this week the what I assume side effects have been actual hell, I've been in so much pain, I'm on 2 different painkillers, nefopam and cocodimol but they don't seem to even be making
I reduced my dosage down from 1800mg to now 600mg per day (I've done this over the course of 2 and a half months) but this week the what I assume side effects have been actual hell, I've been in so much pain, I'm on 2 different painkillers, nefopam and cocodimol but they don't seem to even be making
Loodlesss
in
Pain Concern
2 years ago
Request - Real time experience Reco for the best haematologists in Portugal please
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Iwillwin123
in
PMRGCAuk
2 years ago
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knee replacement
I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis arthritis Sjogens disease anemia high blood pressureThyroid I had a hip replacement done in October and I had to have blood transfusion so I’m quite worried about the knee surgery can anybody give me advice or some encouragement
I m scared to have my surgery because I have Lupus fibromyalgia osteoporosis arthritis Sjogens disease anemia high blood pressureThyroid I had a hip replacement done in October and I had to have blood transfusion so I’m quite worried about the knee surgery can anybody give me advice or some encouragement
Mystik
in
LUPUS UK
2 years ago
Good Rheumatologist Edinburgh - who’s familiar and good with Seronegative RA/Psoriatic Arthritis?
Hi I’ve had a bad experience at the WGH in Edinburgh previously with one dismissive consultant and now may need to see a new one should I require further treatment (aka biologics). Can anyone recommend any Rheumatologists who don’t solely rely on bloods and scans that are open minded and are familiar
Hi I’ve had a bad experience at the WGH in Edinburgh previously with one dismissive consultant and now may need to see a new one should I require further treatment (aka biologics). Can anyone recommend any Rheumatologists who don’t solely rely on bloods and scans that are open minded and are familiar
mistygrey
in
Arthritis Action
2 years ago
Rheumatologist in Edinburgh - any good ones out there at all who are good with Seronegative?
Hi I’ve had a bad experience at the WGH in Edinburgh previously with one dismissive consultant and now may need to see a new one should I require further treatment (aka biologics). Can anyone recommend any Rheumatologists who don’t solely rely on bloods and scans that are open minded and are familiar
Hi I’ve had a bad experience at the WGH in Edinburgh previously with one dismissive consultant and now may need to see a new one should I require further treatment (aka biologics). Can anyone recommend any Rheumatologists who don’t solely rely on bloods and scans that are open minded and are familiar
mistygrey
in
NRAS
2 years ago
Monitoring of inflammatory conditions questionnaire
Researchers at the University of Nottingham are looking for people with rheumatoid arthritis treated with immune-suppressing medicines and advised to have regular blood tests for this treatment, to take part in a questionnaire and interview. They would like you to take part if you have attended all of
Researchers at the University of Nottingham are looking for people with rheumatoid arthritis treated with immune-suppressing medicines and advised to have regular blood tests for this treatment, to take part in a questionnaire and interview. They would like you to take part if you have attended all of
Aribah-NRAS
NRAS
in
NRAS
2 years ago
help me
spoke to my gp today but no help only same amytrptline and antidepressants,I was desperately asking her some more medicine as the medication I am taking are not helping much with pain but gp can only make repeat prescription,I told her that I am loosing my will of living but nobody cares,any pain medicine
spoke to my gp today but no help only same amytrptline and antidepressants,I was desperately asking her some more medicine as the medication I am taking are not helping much with pain but gp can only make repeat prescription,I told her that I am loosing my will of living but nobody cares,any pain medicine
Kamna1
in
Endometriosis UK
2 years ago
PMR or Osteo Arthritis?
I wanted to update you on my recent additional health issues and ask if anyone has had experience of depo medrone injections. When I last posted I was having aches and stiffness in my shoulders,hands hips, knees and ankles. It is particularly bad after sleeping or sitting for a period of time. After
I wanted to update you on my recent additional health issues and ask if anyone has had experience of depo medrone injections. When I last posted I was having aches and stiffness in my shoulders,hands hips, knees and ankles. It is particularly bad after sleeping or sitting for a period of time. After
Skysey
in
PMRGCAuk
2 years ago
Sciatica pain
hello everyone, I had to stop runnng for last 6 days due to sciatica pain. I am really down with misery. Gp dont help, painkillers are not helpful. Now trying streches and yoga. Please share if yoy know any tips to get back to running, my friends.
hello everyone, I had to stop runnng for last 6 days due to sciatica pain. I am really down with misery. Gp dont help, painkillers are not helpful. Now trying streches and yoga. Please share if yoy know any tips to get back to running, my friends.
Simmi22
in
Couch to 5K
2 years ago
Final Journey
The last few days have been very stressful and emotional as my amazing wife is now sedated and on pain killer meds. I pray she has a painless and peaceful release from this awful illness.
The last few days have been very stressful and emotional as my amazing wife is now sedated and on pain killer meds. I pray she has a painless and peaceful release from this awful illness.
WN20
in
Glioblastoma Support
2 years ago
Update on Rheumatology appointment
Thought I'd just do a quick update. I saw a very nice Consultant this time. He said that he thought I no longer had PMR but that I had something called Steroid Myopathy where the muscles. ligaments and tendons become weak and lose strength (having checked I have been on steroids since March 2020) and
Thought I'd just do a quick update. I saw a very nice Consultant this time. He said that he thought I no longer had PMR but that I had something called Steroid Myopathy where the muscles. ligaments and tendons become weak and lose strength (having checked I have been on steroids since March 2020) and
Katkin1
in
PMRGCAuk
2 years ago
Please take part in this patient survey from the University of Cambridge if you haven't already!
Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships, disease symptoms and mental health. In order to be a part of this study you will need to meet the following criteria: - Be aged 18 or over. - Be
Please take part in the rheumatology patient survey from the University of Cambridge and patient groups. The survey asks about your medical relationships, disease symptoms and mental health. In order to be a part of this study you will need to meet the following criteria: - Be aged 18 or over. - Be
Chanpreet_Walia
LUPUS UK
in
LUPUS UK
2 years ago
Arthritis aids
I'm having trouble turning off my garden tap because of the arthritis in my fingers and wrists. It's one of the old fashioned ones - brass with two "arms". Any recommendations for something to help?
I'm having trouble turning off my garden tap because of the arthritis in my fingers and wrists. It's one of the old fashioned ones - brass with two "arms". Any recommendations for something to help?
LW1920
in
NRAS
2 years ago
Detox from Neupro
I've experienced a significant decrease in
arthritis
pain
in my hands since I began the taper and detox. This drug is absolutely toxic. I threw each set of patches away in the garbage when I went down to the next lower dose so that I wouldn't be tempted to restart.
I've experienced a significant decrease in
arthritis
pain
in my hands since I began the taper and detox. This drug is absolutely toxic. I threw each set of patches away in the garbage when I went down to the next lower dose so that I wouldn't be tempted to restart.
scppie
in
Restless Legs Syndrome
2 years ago
Diclofenac (Voltaren)
is Diclofenac , 1% solution, 4 mg. 4 times a day OK to use while on prednisone? I’m currently on 9 mg. My GP says it’s fine because it’s topical, not systemic. I’ve tried it 3 times and it really helped my shoulder pain. I have osteoarthritis and possibly other causes for the pain. I’m
is Diclofenac , 1% solution, 4 mg. 4 times a day OK to use while on prednisone? I’m currently on 9 mg. My GP says it’s fine because it’s topical, not systemic. I’ve tried it 3 times and it really helped my shoulder pain. I have osteoarthritis and possibly other causes for the pain. I’m
Mstiles
in
PMRGCAuk
2 years ago
chronic pain after excision surgery
hi all, just wondering if anyone has experienced this…I had excision surgery 5 weeks ago, my symptoms pre op were daily low level pain, pain during sex and without contraception my periods would have been unbearable. During surgery they found and removed superficial and non superficial endo from pelvis
hi all, just wondering if anyone has experienced this…I had excision surgery 5 weeks ago, my symptoms pre op were daily low level pain, pain during sex and without contraception my periods would have been unbearable. During surgery they found and removed superficial and non superficial endo from pelvis
PinkPrimrose
in
Endometriosis UK
2 years ago
upper right quadrant pain
anyone else get really painful pain here on their period. I have been for years - I don’t see how it can’t be related to my cycle when it comes with every period like clockwork. But when I’ve had scans etc for gynae pain and heavy periods I’ve been told the two things aren’t related. I’m a little
anyone else get really painful pain here on their period. I have been for years - I don’t see how it can’t be related to my cycle when it comes with every period like clockwork. But when I’ve had scans etc for gynae pain and heavy periods I’ve been told the two things aren’t related. I’m a little
Emmywinks
in
Endometriosis UK
2 years ago
Liver test results - methotrexate
I dont understand whats happening really, my liver function test came back with alanine transaminase at 84 2 weeks ago. I was advised to stop taking painkillers for 2 weeks and retest. Today the result came back at 344!! What could be causing this? I feel like ill never get started on methotrexate
I dont understand whats happening really, my liver function test came back with alanine transaminase at 84 2 weeks ago. I was advised to stop taking painkillers for 2 weeks and retest. Today the result came back at 344!! What could be causing this? I feel like ill never get started on methotrexate
Nelliekel
in
NRAS
2 years ago
Undecided whether to have another surgery or try medical treatment
Hello, I have recently been diagnosed with Mild Endometriosis after a laparoscopy in June to remove a cyst found Endo on my urethera. The surgeon that did the initial laparoscopy said she didn’t not want to attempt excision due to where it was and did not want to risk damaging my organs. I saw a
Hello, I have recently been diagnosed with Mild Endometriosis after a laparoscopy in June to remove a cyst found Endo on my urethera. The surgeon that did the initial laparoscopy said she didn’t not want to attempt excision due to where it was and did not want to risk damaging my organs. I saw a
KMBM
in
Endometriosis UK
2 years ago
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