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Fantastic Book for PMR and GCA
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
On one of my earlier posts, a poster referred me to a book about PMR and GCA. My husband, 73 has been diagnosed with PMR. She recommended this book and it has been fantastic and eye opening and in many ways a Godsend, particularly for asking questions of the rheumatologist and his proactive GP who
Andymegv
in
PMRGCAuk
1 year ago
What pain medication is a good replacement for Tramadol that can be taken with clonazapam? I take clonazapam for sleep behavior disorder.
this is my first time posting.
this is my first time posting.
Shadowperson
in
Pain Concern
1 year ago
Dad not waking up from induced coma after Sudden Cardiac Arrest, What are his chances? Signs of 'waking up'?
My Dad is 54 years old and collapsed at work last Friday 03/03/2023 from Sudden Cardiac Arrest. No symptoms, no chest pains, no warning signs. He is moderately fit, not a heavy drinker but is a heavy smoker and they found a blocked valve that had built up for months allegedly due to the smoking. His
My Dad is 54 years old and collapsed at work last Friday 03/03/2023 from Sudden Cardiac Arrest. No symptoms, no chest pains, no warning signs. He is moderately fit, not a heavy drinker but is a heavy smoker and they found a blocked valve that had built up for months allegedly due to the smoking. His
BimJeam
in
ICUsteps
1 year ago
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Chronic pain post navicular fracture surgery
Hey, new to posting but I’ve been looking for places with people who may have some similar experiences. I am 2 years post op to correct a navicular fracture which has healed well from a surgical aspect. I do however have chronic, debilitating pain on a daily basis now. I’ve seen surgeons and i’m waiting
Hey, new to posting but I’ve been looking for places with people who may have some similar experiences. I am 2 years post op to correct a navicular fracture which has healed well from a surgical aspect. I do however have chronic, debilitating pain on a daily basis now. I’ve seen surgeons and i’m waiting
Rosamond19
in
Pain Concern
1 year ago
do you experience what seems like leg weakness once your hip arthritis gets severe
I have read lots on pain and I definitely get that down around my hip and mainly into my knees . Over the last 6 months I have become more aware of what feels like weakness when walking and I find it very difficult to get out of chairs and impossible to stand up from the floor. I’m waiting on seeing
I have read lots on pain and I definitely get that down around my hip and mainly into my knees . Over the last 6 months I have become more aware of what feels like weakness when walking and I find it very difficult to get out of chairs and impossible to stand up from the floor. I’m waiting on seeing
MummyLuv
in
Arthritis Action
1 year ago
Pmr v arthritis
Anyway the last few weeks I have been getting terrible
pain
in both thighs but thought it was down to the
arthritis
. I have now got mild
pain
back in my shoulders and I’m wondering if the pain in my thighs could be down to PMR?
Anyway the last few weeks I have been getting terrible
pain
in both thighs but thought it was down to the
arthritis
. I have now got mild
pain
back in my shoulders and I’m wondering if the pain in my thighs could be down to PMR?
Holycow2
in
PMRGCAuk
2 years ago
Steroid sparing agents
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Could anyone tell me more about Steroid sparing agents please? I have read about Methotrexate and Tocilizumab (?) but not really sure when or if I would go on them ( I was only diagnosed with GCA at the end of January) - also, side effects etc? I see my Rheumatologist next Monday and want to armed with
Janeval
in
PMRGCAuk
1 year ago
Pain management
Any tips on how to manage pain without resorting to painkillers please. I have painkillers but rarely use them and want to keep it that way. I have a very sore left arm which is far less painful when I mould it to my body and keep it inactive. Thank goodness I am right handed. Doc is looking into it.
Any tips on how to manage pain without resorting to painkillers please. I have painkillers but rarely use them and want to keep it that way. I have a very sore left arm which is far less painful when I mould it to my body and keep it inactive. Thank goodness I am right handed. Doc is looking into it.
Amanba
in
Anxiety and Depression Support
1 year ago
Benepali skin rash
Hey guys..I am happy to join this community and share with you..Unfortunately I am suffering of arthritis for more then 10 years.. I am on Benepali for a 5 weeks now and Sulfasalazine..Metrotrexate didn’t work for me..I am very happy with Benepali ..not even one inflammation comparing to what I was
Hey guys..I am happy to join this community and share with you..Unfortunately I am suffering of arthritis for more then 10 years.. I am on Benepali for a 5 weeks now and Sulfasalazine..Metrotrexate didn’t work for me..I am very happy with Benepali ..not even one inflammation comparing to what I was
Benepali2022
in
NRAS
1 year ago
Broken clavicle pain? Broke my clavicle after a epileptic seizure in 2011, but cold weather means dull pain! Must be others same situation?
I use my laptop a lot, a dull pain just does not go away, whilst writing, I have HPT so pain killers out of question! I suppose some sort of cream would be best, even magnesium oil joint spray like I use for my osteoarthritis on my knees might help? doubtful! Is anybody same situation as refracturing
I use my laptop a lot, a dull pain just does not go away, whilst writing, I have HPT so pain killers out of question! I suppose some sort of cream would be best, even magnesium oil joint spray like I use for my osteoarthritis on my knees might help? doubtful! Is anybody same situation as refracturing
Adlon57
in
Bone Health and Osteoporosis UK
1 year ago
3 days after circimsision, shit be wildin.
So I'm 3 days in and I think for the most part everything is going ok. I was given pain killers but decided after the 1st day to stop taking them cause I felt like they weren't worth the side effects. A couple concerns I have is that I'm really horny for no reason, it's like if I get the slightest thought
So I'm 3 days in and I think for the most part everything is going ok. I was given pain killers but decided after the 1st day to stop taking them cause I felt like they weren't worth the side effects. A couple concerns I have is that I'm really horny for no reason, it's like if I get the slightest thought
CDG65
in
Men's Health Forum (Penis Health)
1 year ago
Free at last!
Well almost, transport should be here in 10 minutes. Can't wait to get home. Not one person in the whole hospital knows or wants to know about MSA with the exception of my consultant. The ward sister has flatly refused to let him know that I'm in on the basis that I just need nursing care and as
Well almost, transport should be here in 10 minutes. Can't wait to get home. Not one person in the whole hospital knows or wants to know about MSA with the exception of my consultant. The ward sister has flatly refused to let him know that I'm in on the basis that I just need nursing care and as
Polesden11
in
Multiple System Atrophy Trust
1 year ago
Advice Needed
For years I’ve been suffering from pain in my bones, sleeplessness, depression and sometimes inability to do general things. I’ve seen my GP who has given me a variety of painkillers. I’ve had an appointment with a Consultant Rheumatologist which has been cancelled by the hospital several times, and
For years I’ve been suffering from pain in my bones, sleeplessness, depression and sometimes inability to do general things. I’ve seen my GP who has given me a variety of painkillers. I’ve had an appointment with a Consultant Rheumatologist which has been cancelled by the hospital several times, and
WelshWitchy
in
Fibromyalgia Action UK
1 year ago
Need to learn about my kidney disease diagnosis
Chronic Kidney Disease. I've just been diagnosed with Stage 3a. I know nothing and am starting from scratch. I would really like to see how others are dealing with this disease and get tips on diet, exercise and OTC medications which may be harming me, such as Tylenol and other painkillers and diet supplements
Chronic Kidney Disease. I've just been diagnosed with Stage 3a. I know nothing and am starting from scratch. I would really like to see how others are dealing with this disease and get tips on diet, exercise and OTC medications which may be harming me, such as Tylenol and other painkillers and diet supplements
Ladyprudence
in
Kidney Disease
1 year ago
Zolmitripan
Hello, I have just been told by my pharmacy that they can no longer get zolmitripan. They are the only pain killers that work for me. Has anyone else had problems getting it? Thanks
Hello, I have just been told by my pharmacy that they can no longer get zolmitripan. They are the only pain killers that work for me. Has anyone else had problems getting it? Thanks
Shenow
in
Migraine Support
1 year ago
Unbearable pain in hands at night
I sometimes get excruciating pain at night. I wake to find my hands cold and numb particularly my fingers. Mainly my right arm Very strange feeling, The pain surges in sort of agonising waves of unbearable burning pain. Certainly not just pins and needles The only way I can relief is by swinging
I sometimes get excruciating pain at night. I wake to find my hands cold and numb particularly my fingers. Mainly my right arm Very strange feeling, The pain surges in sort of agonising waves of unbearable burning pain. Certainly not just pins and needles The only way I can relief is by swinging
JulesCurrie
in
NRAS
1 year ago
Back again more ranting
So I've been away from here for a while, I've been up since 3, I had a hysterectomy in march last year for the endo and they left my overies, which I think was stupid considering they said it was on one of them I was told, and I'm still experiencing pain a year on what more can they do?? I've been waiting
So I've been away from here for a while, I've been up since 3, I had a hysterectomy in march last year for the endo and they left my overies, which I think was stupid considering they said it was on one of them I was told, and I'm still experiencing pain a year on what more can they do?? I've been waiting
Bubblepoppy
in
Endometriosis UK
1 year ago
pain killers
it was interesting what bananas5 wrote about the thc element in Cannabis. There is an approved Cannabis provider based in Birmingham. before proceeding they insist on making contact with your own Dr. My wife will not go down this path.-however when my aches and pains Get much worse-I will certainly
it was interesting what bananas5 wrote about the thc element in Cannabis. There is an approved Cannabis provider based in Birmingham. before proceeding they insist on making contact with your own Dr. My wife will not go down this path.-however when my aches and pains Get much worse-I will certainly
Vivtom
in
Fibromyalgia Action UK
1 year ago
pain killer failed
my wife has just stopped taking pregablin due to side effects. Woke in the middle of the night with big “bang” in her back-shot up And felt much pain in right arm. Dr has agreed to the stoppage. We have now tried all the known pain killers and really nothing has worked For her. That leaves legally
my wife has just stopped taking pregablin due to side effects. Woke in the middle of the night with big “bang” in her back-shot up And felt much pain in right arm. Dr has agreed to the stoppage. We have now tried all the known pain killers and really nothing has worked For her. That leaves legally
Vivtom
in
Fibromyalgia Action UK
1 year ago
Post SCT haematomachrosis
My now 6 monthly bloods done last year revealed high ferritin. I subsequently had 6 venesections, 1 a month. My follow up, delayed by COVID, revealed a still high ferritin at 2000, down from around 3000. The consultant was a bit surprised it was still that high. I was a bit disappointed and concerned
My now 6 monthly bloods done last year revealed high ferritin. I subsequently had 6 venesections, 1 a month. My follow up, delayed by COVID, revealed a still high ferritin at 2000, down from around 3000. The consultant was a bit surprised it was still that high. I was a bit disappointed and concerned
Dodders
in
MPN Voice
1 year ago
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