Back pain, still no answer : I received my... - My MSAA Community

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Back pain, still no answer

Amore55 profile image
19 Replies

I received my results from some of the blood work I had done. I’m still trying to figure out why I have such excruciating back pain. So far, I have no answer. I usually don’t get relief from the pain pills better than a 6 on the scale of 1-10. I have to wait until I get a little relief to be able to go walking, and it’s a catch-22, because that’s when I get the most comfortable, when I’m walking! It’s an odd situation! I spend a lot of time being extremely frustrated by this, as most of you know all too well how that feels. I don’t let it stop me from doing what I want to do, but I really have to muster my motivation to get through it. Every single day! I thought that I had experienced the most pain I ever could have felt before with my MS, but this is a whole different animal.

I have researched the connection between ms and back pain extensively. My neurologist said she doubts that it is because of the ms. But really there (so far) is no answer. Any ideas, my friends? Thank you so much 😊. Love to you all, Kelly

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Amore55
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19 Replies
kdali profile image
kdali

I only have 3 ideas. Walking backwards, massage therapy, and acupuncture or a shakti mat. Could you go to a float spa?

Amore55 profile image
Amore55 in reply to kdali

Float spas are very expensive and out of my budget! I went to one once and it was heavenly. I will certainly try walking backwards, I will put my eyes in the back of my head! Seriously, I’m going to try it. Good suggestion. I go to the pool here and use the hot tub regularly. It provides a lot of relief.

kdali profile image
kdali in reply to Amore55

Athletes use the walking backwards trick for back pain, not sure about the details but you could google it. I wish insurance covered float spas 😞

Xvettech profile image
Xvettech

I am sorry I don’t have any answers. I have been fighting back pain(lower back) for years. I have not found a cure. I am sorry you are dealing with all of this! Great that you are fighting! To keep moving has been the best for me so far. We must keep fighting 💪

Amore55 profile image
Amore55 in reply to Xvettech

I saw my doctor today and asked him if this was going to be my life from now on. He reassured me that we will find a solution to this and keep working our way through this maze together. What a relief! I’m so sorry that you have been dealing with this in your life. 🤗

falalalala profile image
falalalala

Chiropractors have always helped me out with my back issues. (smashed disc in my neck, scoliosis & sciatica)

Exercise. I like lifting light free weights, max 20lb dumbbells.

Yoga can really help as well but it puts me to sleep.

I hope you find something to help.

Xvettech profile image
Xvettech in reply to falalalala

that’s funny, yoga puts me to sleep to! Drs say I shouldn’t do kickboxing (balance issues) they also said I wouldn’t walk. Ha! I do both! Walking is funny due to dropfoot but I’m still going!

Amore55 profile image
Amore55 in reply to Xvettech

Kickboxing is fun, I get my kicks from it! Really, I like it because I can just kick something and nobody minds!

falalalala profile image
falalalala in reply to Xvettech

That sounds like a blast!

goatgal profile image
goatgal

If you have scoliosis, it may mean that your whole frame is out of alignment. My sister and I both have tethered spines; she has severe scoliosis which is now impacting her lung capacity, and I have had the foot deformities that often come with a tethered spine. I don't know what the answer is, but perhaps a pain pump (similar to the one Kenu has mentioned) would be helpful. I am so sorry for your suffering.

Amore55 profile image
Amore55 in reply to goatgal

Thank you for the advice. I’m looking into the pain pump possibility, but Medicare is reluctant to approve it. I have oodles of documentation that show that I have pursued every other option, but it is a government agency. I’m grateful to have it and it has been wonderful to work with up until now. I’m not giving up!

Mollyabigail profile image
Mollyabigail

Gosh, Kelly, I don't know. When your back hurts, you hurt all over, it seems. Your pain sounds severe. I am sorry. How puzzling that your doctor does not know the cause either. I hope you get some relief soon. Still praying for you. 🙏

Kenu profile image
Kenu

prayers are with you 🙏🙏🙏🤗👍🏼

mrsmike9 profile image
mrsmike9

Kelly, I'm so sorry you're going through this. Yesterday I found out I have significant issues with the spine in my neck and as it's been "touchy", I thought it was tension! I can't imagine living with such horrible pain as you. I feel very badly for you and hope it is fixed soon.

Amore55 profile image
Amore55 in reply to mrsmike9

Thank you. When I saw the doctor I asked him right away if this was going to be my life from now on. He said no, which may be an overly optimistic opinion. But I am running with it!

Neworleanslady profile image
Neworleanslady

stretching EVERY DAY. I have a ton of back pain on days that I don’t stretch. But it is alleviated almost entirely when I stretch. The stretching ain’t so easy because my muscles are spasming all the time with this MS but once I get through it in the mornings my day so much better.

stepsforNeeC profile image
stepsforNeeC

I have suffered from bad back pain from time to time was told it was a disc problem in my back? Pain in the back muscles, spasms go hand -in -hand with sometimes with us. Always good to get a second opinion, the best and feel better soon. Blessings. NeeC

Tazmanian profile image
Tazmanian

Did you try stretching and core exercises they work for me good luck and I hope you find relief

309Ygi profile image
309Ygi

arnica gel — or burn spray or keto tape . Arnica is awesome takes swelling away I use burn spray fast acting stops pain bam !!! And keto tape . You’d be blown away what 1 piece of tape does !! Lifts the fascia nerves and pain gone . Hope some of this you’ll find helpful

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