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7 weeks on and a million questions sorry
hi and good morning all, well I’m 7 weeks after icu ventilation and I have a million questions I’m hoping people could shed some light on so I don’t dr google everything and think I have every illness known to man!! I was on ventilation for 9 days in icu and I still have health issues popping up here
hi and good morning all, well I’m 7 weeks after icu ventilation and I have a million questions I’m hoping people could shed some light on so I don’t dr google everything and think I have every illness known to man!! I was on ventilation for 9 days in icu and I still have health issues popping up here
Alfiedude99
in
ICUsteps
7 months ago
Jak2 now "Undetectable"
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
Hi I was diagnosed with Jak2 positive PV back in May 2019, after months of venesections I was put on Peginterferon in Nov 2019. The first year I was 0n 45mg which worked well, without the need for any venesections. Then my HCT started to creep up again. Over the coarse of 9-10 months they gradually
WindyGale
in
MPN Voice
9 months ago
Sacral Insufficiency Fractures
Hi, I've just joined this online community, which feels like a good start! I was diagnosed with sacral insufficiency fractures following a scan in February of this year. My symptoms - excruciating pain and limited mobility - started in September 2022 only 3 months after the finish of my pelvic radiotherapy
Hi, I've just joined this online community, which feels like a good start! I was diagnosed with sacral insufficiency fractures following a scan in February of this year. My symptoms - excruciating pain and limited mobility - started in September 2022 only 3 months after the finish of my pelvic radiotherapy
Poir
in
Pelvic Radiation Disease Association
7 months ago
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Digoxin snd side effect
Can long term reliance on Digoxin ( AF and mitral valve repsir) cause uric acid levels to rise . And, can this cause rheumatoid arthritis flare up ? I made mistake of trying to understand my latest blood test results . L
Can long term reliance on Digoxin ( AF and mitral valve repsir) cause uric acid levels to rise . And, can this cause rheumatoid arthritis flare up ? I made mistake of trying to understand my latest blood test results . L
Luludean
in
AF Association
11 months ago
Positive clonus and lupus
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Hello :) I've recently been diagnosed with rheumatoid arthritis and a lupus overlap. I have now been told I have a positive clonus reflex. I don't know if I should be concerned that it is linked or the physio is just being thorough referring me to my GP for further investigation. If anyone has had
Sunshine634
in
LUPUS UK
9 months ago
omeperazole with methotrexate
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
I have RA and taking Sulfasalazine and Methotrexate (20 mg orally). I take Omeperazole too as a protector as was initially taking Celecoxib for pain relief before my symptoms were under control. I no longer require pain relief so I’m wondering if I need to continue with Omeperazole? Are others taking
MichMx
in
NRAS
9 months ago
pneumococcal vaccination
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Middleagedandtired
in
Thyroid UK
11 months ago
pneumococcal vaccine offered
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Hello Trying to make an informed decision on having the offered vaccination ...I have hypo Thyroidism Osteo arthritis and psoriatic arthritis so Im assuming that is why I am being offered , as I am not over 65 years (63 ) Any pros and cons please ? Thank you
Middleagedandtired
in
Arthritis Action
11 months ago
I didn’t know if I’d be able to come back…..
Hello It’s been months since I posted to all the lovely supportive people here. I’m very sorry but I couldn’t face it as I had an injury, which a physio said meant that I might not be able to run again. I was devastated. But the amazing news is after nearly 4 months of not running I started very slowly
Hello It’s been months since I posted to all the lovely supportive people here. I’m very sorry but I couldn’t face it as I had an injury, which a physio said meant that I might not be able to run again. I was devastated. But the amazing news is after nearly 4 months of not running I started very slowly
LindySearle
Graduate10
in
Bridge to 10K
7 months ago
Back and hips - is this a Flare??
Hi wonderful people, When I first had PMR and at each previous flare, the pain has been across my shoulders and down the backs of my legs. I am currently feeling it badly in my lower back and pelvic girdle and am not sure if it is a flare or summat else. I am somewhat stressed and know that this
Hi wonderful people, When I first had PMR and at each previous flare, the pain has been across my shoulders and down the backs of my legs. I am currently feeling it badly in my lower back and pelvic girdle and am not sure if it is a flare or summat else. I am somewhat stressed and know that this
MDT1
in
PMRGCAuk
7 months ago
Tocilizumab
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
Noni71
in
PMRGCAuk
7 months ago
Edinburgh Endo Clinic
Hello! Just wondering if anyone has been on a loooong waiting list to be seen by an Endo specialist for the first time since diagnosis? Currently, it's an 80-week waiting time in Edinburgh. I know there is an option to go privately but I am just totally shocked that someone has to suffer from pain etc
Hello! Just wondering if anyone has been on a loooong waiting list to be seen by an Endo specialist for the first time since diagnosis? Currently, it's an 80-week waiting time in Edinburgh. I know there is an option to go privately but I am just totally shocked that someone has to suffer from pain etc
Axolotl23
in
Endometriosis UK
7 months ago
U.S. Gov't to Negotiate Prices for Ibrutinib
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
michaeledward
in
CLL Support
10 months ago
Anticoagulant users
G'day, Just after some input from NOAC and Warfarin users. I use Warfarin and have done so for nearly 14 years. No sweat ! Never had bleed problems but have had an assortment of bruising problems in that time usually from DIY mishaps. All sorts of pretty colours of blues, greens, yellows and purples
G'day, Just after some input from NOAC and Warfarin users. I use Warfarin and have done so for nearly 14 years. No sweat ! Never had bleed problems but have had an assortment of bruising problems in that time usually from DIY mishaps. All sorts of pretty colours of blues, greens, yellows and purples
BenHall1
in
Atrial Fibrillation Support
7 months ago
some advice
swelling in the collarbone I have some swelling in my collarbone which could be linked to rheumatoid arthritis . Is there a link between PMR and rheumatoid arthritis? Can the first lead to the other ? Sorry if I sound so ignorant . This is a new development for me after 3 years of PMR
swelling in the collarbone I have some swelling in my collarbone which could be linked to rheumatoid arthritis . Is there a link between PMR and rheumatoid arthritis? Can the first lead to the other ? Sorry if I sound so ignorant . This is a new development for me after 3 years of PMR
Stanca
in
PMRGCAuk
11 months ago
No sure why I get these posts
I don't now if it is a new system, but latterly I have been getting posts about Arthritis among the AF posts. I fortunately do not have Arthritis, have never posted about it, so am wondering all the other AF members are getting these posts.?
I don't now if it is a new system, but latterly I have been getting posts about Arthritis among the AF posts. I fortunately do not have Arthritis, have never posted about it, so am wondering all the other AF members are getting these posts.?
pusillanimous
in
AF Association
11 months ago
Laparoscopy found nothing - symptoms all point to endometriosis
I don’t suppose anyone has been in the same situation as me and can help? I have suffered from a range of issues from 15 with periods; bleeding and pain with intercourse, severe leg pain, always bleeding/spotting outside of periods, bad period pains, UTI like symptoms and odd bowel movements around
I don’t suppose anyone has been in the same situation as me and can help? I have suffered from a range of issues from 15 with periods; bleeding and pain with intercourse, severe leg pain, always bleeding/spotting outside of periods, bad period pains, UTI like symptoms and odd bowel movements around
puddl0503
in
Endometriosis UK
7 months ago
Endo on the bladder
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Anyone else have the bladder and bowel endo? Willing to try anything, for any kind of relief. I have endo on and going into my bladder and now also effecting my bowel. It's triggered normally about day 3 of my period and last for a good 3 weeks. The first few days I just have to be near a toilet, when
Country-Girl100
in
Endometriosis UK
7 months ago
How to deal with side effect of hot flashes and feeling hot all the time from pain meds?
How do you deal with the side effect of hot flashes and feeling hot all the time that is being caused from your pain medicine or antidepressants used for pain? I take Tramadol at the highest dosage everyday for my severe nerve pain from CRPS because it's the only thing that works for me. However it makes
How do you deal with the side effect of hot flashes and feeling hot all the time that is being caused from your pain medicine or antidepressants used for pain? I take Tramadol at the highest dosage everyday for my severe nerve pain from CRPS because it's the only thing that works for me. However it makes
Hidden
in
Neuro Support
7 months ago
How to deal with side effects of feeling hot from pain meds and antidepressants for pain?
How do you deal with the side effect of feeling hot all the time and having hot flashes that are caused from your pain medicine or your antidepressant used for pain? I take Tramadol at the highest dosage for my severe nerve pain from CRPS because it's the only thing that works for me however I find that
How do you deal with the side effect of feeling hot all the time and having hot flashes that are caused from your pain medicine or your antidepressant used for pain? I take Tramadol at the highest dosage for my severe nerve pain from CRPS because it's the only thing that works for me however I find that
Hidden
in
Neuropathy Support
7 months ago
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