I had laparoscopy surgery earlier this week. I am terrified to be put asleep and all invasiveness of surgery. It was in all honesty fine, I just kept a clear mind. Explained to my anaesthetist i was very anxious, he made sure i was given a strong painkiller as soon as i was in the anaesthetic room to help me relax, next thing i was awake and it was all done. Nothing was found, thankfully but unfortunately as i am suffering so bad with pain and i now am back to the drawing board. I wish i would have had an MRI beforehand, i was offered one for my small bowl but not from gyno i assume there different. If you can push for an MRI first i would.
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Angel12334
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Hello! Oh my goodness I feel like we are in very similar circumstances.
I just had my first lap Tuesday to look for Endo but none was found. I was so shocked! Me and my consultant thought all my symptoms pointed to it.
Of course, I am grateful not to have it but at the same time it’s so frustrating as this journey just continues on and on!
However, my consultant did say it “looks like” adenomyosis which makes sense based on my troubles.
She’s now sending me for an MRI to investigate that further. Which will no doubt be a couple of months wait.
The frustrating thing about Adeno though is they don’t know 100% until you have a hysterectomy and they can test it.
I also wish I was sent for an MRI first as I paid the surgery privately🤦🏽♀️ but then again I know endo doesn’t always show on MRI so I’m glad I got it done.
It’s so frustrating though. Years and years of suffering and no further to a solution. I’m so mentally trained with it all xxx
All my family were made up, i just cried and cried as i need answers and a plan. Its a long journey to be on isn't it.
I have an erosion on my cervix all the time too so its making me think about adenomyosis now you have mentioned it. My gyno just said see you in 6 months no further plan, which i have obviously complained about and asked to be seen sooner.
I am the same, glad i had it done as they thought i had adhesions too so thats two off my list that i know its not. I have been diagnosed with pelvic congestion syndrome though via ultrasound, so im thinking that is causing some of my symptoms. It’s definitely not causing all of them i know that. Have you been checked for that? I paid for a private ultrasound it was around £80.
Its such a hard battle when you are suffering like us. I am the same, mentally drained. I cant bend over, put anything tight on do a deep clean of my house carry my kids the list goes on. I honestly dont know how we’re expected to just carry on.
The waiting times are so long, its good that you were able to go private but obviously with no answers extremely frustrating for you. Fingers crossed you get some answers from your MRI xx
It’s just not good enough is it!! I’ve cried lots this week.
I’ve not heard much about pelvic congestion… I’ve had a ultrasound on NHS which showed a cyst on my ovary but that’s all. I may mention to my consultant though!
Because I went private I get a follow up consultation with her on 27th Feb which I can ask more questions but not even sure my MRI will be done by then.
When was your surgery? Mine was Tuesday so I’m on day 5 of recovering. I was doing so well but I think my period is slowly coming but I’m not sure as I’ve been bleeding since the op.
But as the cramps and all symptoms come to wipe me out for another time it just reminds me this is not normal and I will not stop fighting xxx
No, definitely not good enough. Feel as if we are just left to suffer. This has all been since the birth of my last child, he is 4 now.
Yes definitely worth asking to be checked for that, they can probably look at the old ultrasound.
Mine was Tuesday too! So we are literally the same, also bleeding after them burning my cervix and was due on my period too. Felt so nauseous but im assuming its just because there is a lot going on. My period is the best week of the month i get oddly, even though its not fun.
I hope your MRI is soon, you should keep calling the secretary and see if any cancellations come up for it and just explain it would be best for it to be done before ur reviewed as it has come at a cost to you. I have been lucky a couple of times getting scans for other conditions last minute by calling.
Hope your back on your feet soon and get some answers!! Xxx
Bless you hun. I’m 26, I’ve had BAD periods since I started at 15. Since 16 I genuinely have lost count of the amount of times I’ve moaned to doctors that something is wrong. 10 years later I still don’t know.
I so hope you get your answers soon too! Good luck with it all xxx
ladies I really hope you both find out what is causing all the pain you are having please don’t be discouraged or disheartened us women know when something is not quite right I really hope you both get the answers you need. Just because they haven’t found any endo it doesn’t mean you haven’t got a gynea problem or you could have a central nervous problem like fibromyalgia it’s just a thought tennis court could you have polycystic ovary syndrome that’s another gynecological issue. I really both hope you get the answers you need. Thankfully I got the answers I needed but took like 27 years sometimes though you feel like you’re going insane as you know something is wrong. Honestly don’t get fobbed off by people I’ve been fobbed of before and told I was making something out of Nothing as I felt I wasn’t being listened to and I got really upset as felt like that and they called the psych team in the a and e department whilst I was still vomiting continuously they wouldn’t give me anti nausea pills they just said I was just constipated and gave me Movicol or laxido I feel like I should have gone to pals as they also went behind my back and did pregnancy tests when I said I was not having sex so why would I be pregnant. They weren’t even getting to the bottom of why I was being sick. Thankfully I’m on anti sickness meds so if I ever start feeling nauseous I just take it before it gets bad but as the sickness was like continuously like if I moved my body that’s why they presumed I was pregnant when hadn’t got a bf or had x for more than three years. Sometimes I feel we get judged and not believed. But when had lap and they gave me reason for why i was like I was I was so relieved 🥲. I have more to some ops that is. I just really hope I don’t get sepsis again as I felt awful and I got allergic reactions to some of the meds I was given thankfully they didn’t tell me I had sepsis till the day I left the hospital and that was why I had I’v meds aswell as oral. I had gotten cellulites in my stomach and it made one of my wounds literally full of pus and leaking fluid. I had followed all they said after my lap but I new something was not quite right when it hurt to bend my stomach and I found it so hard to even get out of bed. So honestly and truthfully ladies stay strong 💪 and really get to the bottom of the pain. Xx take care both xx
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