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Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or leflunomide,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
2 months ago
rheumatoid arthritis
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
Bncc
in
PMRGCAuk
6 months ago
Osteoarthritis in feet ?
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
A quick question !!I have Osteoarthritis in my feet , worse is my right foot. This makes me limp constantly and use a walking aid all of the time. I have used a walking aid for around 4 months but realistically I could have , should used one wayyyy before that, but was embarrassed too. My Rheumatology
Frenchi88
in
Fibromyalgia Action UK
6 months ago
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Pain and frustration 😟
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Hello everyone, Having finally dropped from 5mg to 4.5mg I am now in my fourth week. I have no shoulder or arm pain and was beginning to feel like I’ve finally cracked the 5mg barrier(third time lucky). I’ve had PMR for 2years and 9 months. However, my legs feel in constant pain and I don’t feel
Pangolin43
in
PMRGCAuk
7 months ago
Advice on back pain & pred dosing...
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Morning, i joined this group a few months ago and find it so useful even though I don't have pmr. I do have tertiary adrenal insufficiency, ulcerative colitis, osteoarthritis and fibromyalgia and possibly pots. In the last 2 years after having covid twice I developed cushing symptom due to over replacement
Ruthie64
in
PMRGCAuk
7 months ago
RA complicated by arthritis in knees
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Morning, so I have increasing pain in knees, worse on left. Diagnosed with Degenerate Oesteo-Arthritis in both knees, treatment for which is steroid injection, for time being, but ultimately will need knee replacement surgery. My question is, does anyone have tips to reduce pain & swelling & preserve
Mama-K
in
NRAS
7 months ago
Even more confused?
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Thank you for replies to an earlier post, very much appreciated 💗 So...been to see rheumatologist who has asked me to repeat ANA and anti DSDNA. Results first ones were AnA..1/640 homogeneous Ds Dsdna ab (Elia test) 16(high) As the anti dsdna test was just positive or low positive he wanted me to
Cushties
in
LUPUS UK
7 months ago
Have I got RA ?
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
Hi I have been taking Prednisolone for PMR for 18 months and now on 5mg each morning under the care of a Rhuematologist . I have had Osteoarthritis for a good few years mainly in my finger joints . My Dr is now questioning if I have RA because my middle finger on the right hand is markedly more swollen
5goFlotilla
in
NRAS
7 months ago
psoriatic arthritis
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Does anyone know what the next drug is if Methotrexate and Sulfasalazine do not work for psoriatic arthritis and psoriasis after three months????
Beata0102
in
NRAS
5 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
does this stuff work? The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with liver cancer and sent to Cleveland for transplant. Yes, fatty liver at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
7 months ago
Undiagnosed inflammatory disease
After numerous blood test and scans over many weeks my diagnosis was suspected to be Giant cell or Temporal
Arteritis
but this was never confirmed as my symptoms didn’t completely fit. Two and a half years on and my ‘condition’ is now well controlled with 20mg MTX.
After numerous blood test and scans over many weeks my diagnosis was suspected to be Giant cell or Temporal
Arteritis
but this was never confirmed as my symptoms didn’t completely fit. Two and a half years on and my ‘condition’ is now well controlled with 20mg MTX.
Hightower62
in
NRAS
7 months ago
Psoriatic arthritis
I have been on prednisone since april. Started at 25 mg for pmr and when Rheumatologist decided it was psoriatic arthritis started me on methotrexate a few months ago. Now on 20 mg methotrexate a week and reducing the prednisone. Things good until I got to 10 mg. Then after 2 weeks, tried reducing to
I have been on prednisone since april. Started at 25 mg for pmr and when Rheumatologist decided it was psoriatic arthritis started me on methotrexate a few months ago. Now on 20 mg methotrexate a week and reducing the prednisone. Things good until I got to 10 mg. Then after 2 weeks, tried reducing to
Seal49
in
Beyond Psoriasis
7 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
5 months ago
advice
I have just posted a long miserable post here. Is there a way I could forward it to Arthritis Action ? I so need advice and help .
I have just posted a long miserable post here. Is there a way I could forward it to Arthritis Action ? I so need advice and help .
Luludean
in
NRAS
7 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
4 months ago
Cold weather
I can empathise with anyone suffering with Fibromyalgia or Chronic Arthritis because if you haven't experienced it, then people don't understand
I can empathise with anyone suffering with Fibromyalgia or Chronic Arthritis because if you haven't experienced it, then people don't understand
doxie1
in
Fibromyalgia Action UK
7 months ago
NRAS Live: How Important is Nutrition & Diet when Managing Rheumatoid Arthritis?
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Join us for our next NRAS Live which will be taking place on Wednesday 26th June at 7pm. This month, we delve into the important role of nutrition and diet when managing a healthy lifestyle living with rheumatoid arthritis. Ailsa will be sitting down with Elena Nikiphorou, Rheumatologist Consultant and
Aribah-NRAS
NRAS
in
NRAS
1 day ago
crazy or not?
I am in chronic pain in spine painkillers not helping. What I need help with is the way it all makes me feel I have no ffamily or friends . Isolated. I get panicky when pain is out of control, I feel freaked out and alone and am devoid of positive feelings everything everyday feels bleak no respite
I am in chronic pain in spine painkillers not helping. What I need help with is the way it all makes me feel I have no ffamily or friends . Isolated. I get panicky when pain is out of control, I feel freaked out and alone and am devoid of positive feelings everything everyday feels bleak no respite
faith12
in
Pain Concern
4 days ago
Inflammatory arthritis & pulmonary embolisms?
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
After years of x-rays on multiple joints (looking for osteoarthritis) & countless blood tests (looking for rheumatoid factor) - all of which returned negative results - I was finally diagnosed with Seronegative Inflammatory Arthritis in January. My Rheumatologist first tried methotrexate and then leflunomide
YorkieBard
in
NRAS
5 days ago
PAIN PATH studies
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Many people with rheumatoid arthritis suffer from pain every day. NRAS are working with researchers at Keele University to undertake two new studies to improve how pain is treated in people with rheumatoid arthritis and other types of inflammatory arthritis. The first study involves people with inflammatory
Aribah-NRAS
NRAS
in
NRAS
6 days ago
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