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Antihemophilic factor
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Will intrinsic antibodies show up even if b12 normal due to taking b12 tablets?
Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but never felt right despite my thyroxine apparently correcting this. I've now discovered I have 22 symptoms on the pernicious anaemia symptom checker and yet whenever I go to my gp I get told it's down to
Hi all, I just wanted to get some advice if possible. I have hashimotos for the last ten years but never felt right despite my thyroxine apparently correcting this. I've now discovered I have 22 symptoms on the pernicious anaemia symptom checker and yet whenever I go to my gp I get told it's down to
Cathyjw
in
Pernicious Anaemia Society
7 years ago
pernicious anemia?? but high b12
hi there I'm rather embarrassed but don't know where else to turn to but social media. I'm a registered nurse but I find myself confounded by my ongoing symptoms. Basically I will tell you in short what has been happening in the past 10 weeks. first I want to tell you that 10 years ago I had similar
hi there I'm rather embarrassed but don't know where else to turn to but social media. I'm a registered nurse but I find myself confounded by my ongoing symptoms. Basically I will tell you in short what has been happening in the past 10 weeks. first I want to tell you that 10 years ago I had similar
Hidden
in
Pernicious Anaemia Society
7 years ago
GP appointment update
Hi so I have come back from GP and it has been a really promising appointment. He has upped my thyroxine from 100mcg to 125mcg with a repeat test in 6-8 weeks time. He has accepted I have Hashimotos and that it is a confusing illness that can cause fluctuations in hormone levels and symptoms. He told
Hi so I have come back from GP and it has been a really promising appointment. He has upped my thyroxine from 100mcg to 125mcg with a repeat test in 6-8 weeks time. He has accepted I have Hashimotos and that it is a confusing illness that can cause fluctuations in hormone levels and symptoms. He told
j345
in
Thyroid UK
7 years ago
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B12 blood tests after supplementing?
About 18 months ago after developing neurological symptoms and other symptoms (such as breathlessness) and being told that my serum B12 level was "in range" (224) by my GP, I started to supplement using daily 5000mcg Methylcobalamin tablets and later with a spray also, along with a good B complex with
About 18 months ago after developing neurological symptoms and other symptoms (such as breathlessness) and being told that my serum B12 level was "in range" (224) by my GP, I started to supplement using daily 5000mcg Methylcobalamin tablets and later with a spray also, along with a good B complex with
seamail57
in
Pernicious Anaemia Society
7 years ago
my blood test results
Following on from my first post I am now able to access my blood test results on line. they were as follows:- Erythrocyte sedimentation rate: 25.000 mm/hr (raised) Plasma C reactive protein: 16.000 mg/L (raised) Rheumatoid Factor: 20.000 iu/ml ( its say normal) so what does all this mean
Following on from my first post I am now able to access my blood test results on line. they were as follows:- Erythrocyte sedimentation rate: 25.000 mm/hr (raised) Plasma C reactive protein: 16.000 mg/L (raised) Rheumatoid Factor: 20.000 iu/ml ( its say normal) so what does all this mean
am64
in
PMRGCAuk
7 years ago
Typical Sunday
I have had a lovely day. Egg and ham for breakfast with a slice of fried brown bread. I took my metformin my glipizide and actos. Always this dreadful crash happens. I had to go to bed. 10am. Slept til 12.30 i had to shower and dress and leave at 1pm for church at 1.30 hampton court bridge was dreadful
I have had a lovely day. Egg and ham for breakfast with a slice of fried brown bread. I took my metformin my glipizide and actos. Always this dreadful crash happens. I had to go to bed. 10am. Slept til 12.30 i had to shower and dress and leave at 1pm for church at 1.30 hampton court bridge was dreadful
VonnyM
in
Fibromyalgia Action UK
7 years ago
Switching from NDT to T4 and suffering...
Backstory: Near Total Thyroidectomy in 2004 due to Graves. Was put on 125mcg T4 to start with. Introduced T3 at some point. Was made to come off T3 when I got pregnant with my son in 2009. Stayed on T4 only through that pregnancy and my next pregnancy too. Was bouncing around 175mcg and 150mcg at that
Backstory: Near Total Thyroidectomy in 2004 due to Graves. Was put on 125mcg T4 to start with. Introduced T3 at some point. Was made to come off T3 when I got pregnant with my son in 2009. Stayed on T4 only through that pregnancy and my next pregnancy too. Was bouncing around 175mcg and 150mcg at that
brighter84
in
Thyroid UK
7 years ago
Please can I ask for your opinions on my blood results and symptoms
I was diagnosed about 10 months ago with CFSME. My main symptoms were brain fog, exhaustion, joint and muscle pain. My symptoms are increasing and worsening; I have hard lymph nodes in my neck, a hard vein also, a persistent eye twitch, chest discomfort, shortness of breath, weakness, anxiety, dizziness
I was diagnosed about 10 months ago with CFSME. My main symptoms were brain fog, exhaustion, joint and muscle pain. My symptoms are increasing and worsening; I have hard lymph nodes in my neck, a hard vein also, a persistent eye twitch, chest discomfort, shortness of breath, weakness, anxiety, dizziness
Tangawizi
in
Pernicious Anaemia Society
7 years ago
Any thoughts/advice on my results?
Main symptoms are Fatigue, weight gain, lack of concentration & drive. Nearly all bloods are “in range” so for docs nothing wrong with me, so went back for more detailed bloods to research myself and ask for help and advice from others who have more of a clue! Not on any thyroid meds as doctors all
Main symptoms are Fatigue, weight gain, lack of concentration & drive. Nearly all bloods are “in range” so for docs nothing wrong with me, so went back for more detailed bloods to research myself and ask for help and advice from others who have more of a clue! Not on any thyroid meds as doctors all
Geminichica
in
Thyroid UK
7 years ago
All symptoms of PA, not showing in bloodwork
Hi, I've been tested twice for intrinsic factor, it has come back negative both times. I was told that was normal, and I am absorbing B12. I have been getting B12 injections 1,000mcg every two weeks. My B12 is now 1602. (200-1000) One week after injection so I figured it would be high. I still have
Hi, I've been tested twice for intrinsic factor, it has come back negative both times. I was told that was normal, and I am absorbing B12. I have been getting B12 injections 1,000mcg every two weeks. My B12 is now 1602. (200-1000) One week after injection so I figured it would be high. I still have
Crzygirl
in
Pernicious Anaemia Society
7 years ago
Neurological symptoms
Hi, I would like some advice please After numerous visits to my GP, all manner of tests and a steady decline in my overall health, I started seeing a herbalist. Despite all this my health continued to worsen and because of extreme fatigue, weekly migraines which put me to bed for 24/36 hours plus the
Hi, I would like some advice please After numerous visits to my GP, all manner of tests and a steady decline in my overall health, I started seeing a herbalist. Despite all this my health continued to worsen and because of extreme fatigue, weekly migraines which put me to bed for 24/36 hours plus the
Countrylou
in
Pernicious Anaemia Society
7 years ago
Update on my gastroenterologist results
Hello everyone, it's been a little while since my last post. Have had my Gastroscopy and Colonoscopy and pleased to say all the results from the biopsies came back clear. No coeliac or other bowel disorders, no polyps, just a few ulcers in the colon due to taking anti inflammatory for my back problem
Hello everyone, it's been a little while since my last post. Have had my Gastroscopy and Colonoscopy and pleased to say all the results from the biopsies came back clear. No coeliac or other bowel disorders, no polyps, just a few ulcers in the colon due to taking anti inflammatory for my back problem
Cali25
in
Pernicious Anaemia Society
7 years ago
CRAPPY DISEASE !
Hi , I'm new here. I'm in my early fifties ( mind feels like I'm in my thirties , body feels like I'm much older) .🤣 Married and have sons , 17 and 18 . Work part time now ....... in , of all things pain management/ massage , in an aged care facility. Diagnosed almost 12 months ago . About five
Hi , I'm new here. I'm in my early fifties ( mind feels like I'm in my thirties , body feels like I'm much older) .🤣 Married and have sons , 17 and 18 . Work part time now ....... in , of all things pain management/ massage , in an aged care facility. Diagnosed almost 12 months ago . About five
Strayleaves
in
NRAS
7 years ago
First Rheumatology Appointment
I'm just back from my first appointment with Rheumatology, not really sure how it went, they were having problems with their system and had none of my notes, I got asked just general questions and she examined some of my joints then she said my blood pressure is a bit high but probably just because
I'm just back from my first appointment with Rheumatology, not really sure how it went, they were having problems with their system and had none of my notes, I got asked just general questions and she examined some of my joints then she said my blood pressure is a bit high but probably just because
tee8077
in
LUPUS UK
7 years ago
Newbie in PA - What drugs are you taking ?
Hi guys, I have just been diagnosed with PA. I am UK based. My B12 level is 118ng/L (normal range 211-911). Intrinsic factor antibody is 108 u/mL (range 0-24). My erythrocytes are slightly enlarged but still on the border of being in norm. Hemoglobin levels are OK. I had my first injection
Hi guys, I have just been diagnosed with PA. I am UK based. My B12 level is 118ng/L (normal range 211-911). Intrinsic factor antibody is 108 u/mL (range 0-24). My erythrocytes are slightly enlarged but still on the border of being in norm. Hemoglobin levels are OK. I had my first injection
Dragon2014
in
Pernicious Anaemia Society
7 years ago
Update on blood test - sorry long post
HI I finally managed to get back to the doctors to have repeat test of B12/folate. They came back at: . [i][u]June 8th at doctors[/u][/i] [i]B12 392 ng/l (130-1100) -(I think this converts to about 280pmol)[/i] [i]folate 5.2 u/g (2.7-15)[/i] [i]TTG 0.9 (0.0 - 10.0)[/i] I was asked to go back as the doc
HI I finally managed to get back to the doctors to have repeat test of B12/folate. They came back at: . [i][u]June 8th at doctors[/u][/i] [i]B12 392 ng/l (130-1100) -(I think this converts to about 280pmol)[/i] [i]folate 5.2 u/g (2.7-15)[/i] [i]TTG 0.9 (0.0 - 10.0)[/i] I was asked to go back as the doc
Duffy26
in
Pernicious Anaemia Society
7 years ago
What is wrong with me
Hi...I'm desperate for answers at the moment, as I'm in a really bad way with some really confusing health problems. If anyone can help me to shed any light on all of this, I would be so grateful as I have no idea where to turn next for answers. I have been unwell on and off for years (the last year
Hi...I'm desperate for answers at the moment, as I'm in a really bad way with some really confusing health problems. If anyone can help me to shed any light on all of this, I would be so grateful as I have no idea where to turn next for answers. I have been unwell on and off for years (the last year
Hayley31
in
Pernicious Anaemia Society
7 years ago
Hashimotos/autoimmune gastritis/PA connection
This really interesting research was recently posted by Diogenes on TUK forum: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5405068/pdf/fendo-08-00092.pdf "Hashimoto’s thyroiditis (HT) is the most frequent autoimmune disease, and it has been reported to be associated with gastric disorders in 10–40%
This really interesting research was recently posted by Diogenes on TUK forum: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5405068/pdf/fendo-08-00092.pdf "Hashimoto’s thyroiditis (HT) is the most frequent autoimmune disease, and it has been reported to be associated with gastric disorders in 10–40%
Polaris
in
Pernicious Anaemia Society
7 years ago
Help interpreting B12/blood test results?
Hi everyone, newbie here. I had a blood test a wee while ago due to fatigue and feeling generally run down and lethargic for a long time. I wanted to rule out thyroid issues but the Dr called me to say I had a B12 deficiency (135ng/l) and prescribed me 5 loading dose injections over two weeks to be followed
Hi everyone, newbie here. I had a blood test a wee while ago due to fatigue and feeling generally run down and lethargic for a long time. I wanted to rule out thyroid issues but the Dr called me to say I had a B12 deficiency (135ng/l) and prescribed me 5 loading dose injections over two weeks to be followed
Gilly27
in
Pernicious Anaemia Society
7 years ago
Where can I get the most modern Intrinsic Factor test so I don't have to stop self-injecting?
Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years but I started self injecting with 1mg hydroxycobalamin alternate day loading doses 7 weeks ago and I still find I need it every other day to function. Also my serum level was never that low (550) when I started self injecting
Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years but I started self injecting with 1mg hydroxycobalamin alternate day loading doses 7 weeks ago and I still find I need it every other day to function. Also my serum level was never that low (550) when I started self injecting
supersezzie
in
Pernicious Anaemia Society
7 years ago
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