I'm new here. I'm in my early fifties ( mind feels like I'm in my thirties , body feels like I'm much older) .🤣
Married and have sons , 17 and 18 . Work part time now ....... in , of all things pain management/ massage , in an aged care facility.
Diagnosed almost 12 months ago .
About five years ago I went to my gp, explained how my feet get sore in the mornings, mostly. I have a sister with R.A , aunties on my fathers side , aunties on mothers side , and a few cousins with R A , psoriatic Arthritis , and few in the family with systemic lupus. Dr ordered bloods , all ok except Rheumatoid factor just slightly elevated....So , thought I better get a referral to Rheumatologist! Waited for six months for appointment , feet pain became a little worse...... Saw "specialist rheumatologist" .......Told me I definitely did not have arthritis (any kind) and that I was just depressed.
Can remember driving home thinking , well yes ....... ok , I'm working two jobs , do lots of driving , work 10 hour night shifts , have two kids , am looking after my parents who are unwell , had a very stressful time building a new house ( and ripped off $$ in build) , etc etc , and I was only 12 months post double mastectomy for breast cancer .....maybe I am a bit down .....
But I still had sore feet !!!!!!😂
So , all the stresses carried on ......and much more stresses developed (triple I reckon)....... up until 12 months ago .
Woke up one day and had a lot of trouble lifting my left leg , without severe pain in my groin ........settled after few days. Two weeks later....
Developed a swollen area on my hand , over my knuckle......was up north with a friend (little break as both our parents had passed away) ....
Hand was very painful , drs spent three hours attempting to remove my wedding rings from swollen hand. The young , female , very self assured dr kept telling me that I had definitely been bitten by a spider ....no doubt about it , she said ,!! ??? (Eventually settled after a week ) exactly two weeks later ......
At work , felt shoulder twinge ........throughout afternoon and evening increased pain which became agony .......husband took me to hospital ....told I had a torn rotor cuff injury to shoulder ....... in a sling for a week ........was improving , then suddenly other shoulder went the same!
Husband took me to see a different dr , he ordered ultrasound ........ "nothing serious..... it's a simple case of bursitis "..........
Different dr .....did bloods ....diagnosed with an inflammatory arthritis , referred to Rheumatologist ......confirmed RA . ( extremely high RFactor , positive anti ccp , and elevated ESR and CRP . ( inflammatory markers) .
Commenced methotrexate , worsening symptoms......Plaquenil was added . No real big improvement so went onto Humira .Have been on Humira for eleven weeks.I was feeling quite good on the Humira , however I was starting to get all the symptoms back .Today I have been to rheumatologist, and he decided he thought Enbrel injections weekly . Don't know anything about this drug , so about to google . I'm guessing it's similar to Humira ....I really hope injections not as painful though .....I honestly did find them painful! Maybe I'm a bit wimpy 🤗.
Bit of a long speel , so if you have managed to not get too bored with my RA story ,
I do thank you very much . ,!! Long story ....but despite my sister having this.....I don't really have anyone to talk to about all this , and it can all be a bit depressing .
I don't know how others feel but I have thought ,at times , that maybe " ignorance is bliss " . Do I really want to be knowing what's ahead of me ....... or is that silly ? We should be educated and informed and have the ability to make decisions in our treatment.........
It's a very crappy disease .!!!