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Antihemophilic factor
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Where can I get the most modern Intrinsic Factor test so I don't have to stop self-injecting?
Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years but I started self injecting with 1mg hydroxycobalamin alternate day loading doses 7 weeks ago and I still find I need it every other day to function. Also my serum level was never that low (550) when I started self injecting
Hi all, I thought my b12 deficiency was dietary as I've been vegetarian 22 years but I started self injecting with 1mg hydroxycobalamin alternate day loading doses 7 weeks ago and I still find I need it every other day to function. Also my serum level was never that low (550) when I started self injecting
supersezzie
in
Pernicious Anaemia Society
7 years ago
My gp and private haematologist
I have private health insurance and my private haematologist did a number of tests. I requested a B12 active test but he tested my B12 serum level my intrinsic factor antibodies and my parietal selves. This is not what I wanted as what is happening is my results came back at 1200 for my B12 level but
I have private health insurance and my private haematologist did a number of tests. I requested a B12 active test but he tested my B12 serum level my intrinsic factor antibodies and my parietal selves. This is not what I wanted as what is happening is my results came back at 1200 for my B12 level but
toph
in
Pernicious Anaemia Society
7 years ago
CNV on Eylea - 38yrs old with myopic macular degeneration
Helo everyone, im 38 and due to my high myopia (since I was a child) I was diagnosed with myopic macular degeneración since my 20's. I've had several issues related with my retina and macula over the years. Now (L-22 R-22). Had several bleedings that cured themselves (before anti-VEGF existed) a Retinal
Helo everyone, im 38 and due to my high myopia (since I was a child) I was diagnosed with myopic macular degeneración since my 20's. I've had several issues related with my retina and macula over the years. Now (L-22 R-22). Had several bleedings that cured themselves (before anti-VEGF existed) a Retinal
Apt78
in
Macular Society
7 years ago
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B12/Folate/Iron deficiencies
Hey guys My mum's thyroid tests came back hypo and she started levo and is autoimmune. I'm trying to get my mums health sorted properly rather than leaving it to docs as she has never eaten much at all so got her some extra tests done at medichecks that you can see below. I have had multiple autoimmune
Hey guys My mum's thyroid tests came back hypo and she started levo and is autoimmune. I'm trying to get my mums health sorted properly rather than leaving it to docs as she has never eaten much at all so got her some extra tests done at medichecks that you can see below. I have had multiple autoimmune
Saggyuk
in
Pernicious Anaemia Society
7 years ago
Update! Seen my GP again. B12 272 folate 8.8
Good morning, More advise please? (Please see my last post for full history) Saw my GP this morning and took Mum with me for support, which was needed and greatly appreciated. I asked the GP if we could discuss restarting my B12 injections as although my B12 levels were 'within range' at 272 I was symptomatic
Good morning, More advise please? (Please see my last post for full history) Saw my GP this morning and took Mum with me for support, which was needed and greatly appreciated. I asked the GP if we could discuss restarting my B12 injections as although my B12 levels were 'within range' at 272 I was symptomatic
Yoshi12
in
Pernicious Anaemia Society
7 years ago
First Time Writing.. My Story
Well wasn’t it just grand to be diagnosed with borderline hypothyroidism just as I became 65 in May last year… hence my username! I could not believe it, I had no outward symptoms. I had only gone to the Doctor because I’d had a course of antibiotics for a cat bite and ended up with a furry tongue that
Well wasn’t it just grand to be diagnosed with borderline hypothyroidism just as I became 65 in May last year… hence my username! I could not believe it, I had no outward symptoms. I had only gone to the Doctor because I’d had a course of antibiotics for a cat bite and ended up with a furry tongue that
Hyposucks
in
Thyroid UK
7 years ago
Help? My B12 272 folate 8.8
Good afternoon I would like some advice please. Last June 2016 my vitamin b12 levels were low of 156 also my folate was low (unsure on the number) i had 2 weeks of b12 injections every other day and 5mg folic acid prescribed for a few months. I had another blood test after for coeliac and intrinsic
Good afternoon I would like some advice please. Last June 2016 my vitamin b12 levels were low of 156 also my folate was low (unsure on the number) i had 2 weeks of b12 injections every other day and 5mg folic acid prescribed for a few months. I had another blood test after for coeliac and intrinsic
Yoshi12
in
Pernicious Anaemia Society
7 years ago
Extremely Concerned About Low Pottasium and B12
I was diagnosed with a B12 deficiency in 2011 after symptoms (dizziness, brain fog, sore tongue, sore lips, speech problems, extreme tiredness, feeling restless and lethargic, extremely dry skin, pins and needles in hands and feet, dizziness, memory problems, difficulty thinking and speaking properly
I was diagnosed with a B12 deficiency in 2011 after symptoms (dizziness, brain fog, sore tongue, sore lips, speech problems, extreme tiredness, feeling restless and lethargic, extremely dry skin, pins and needles in hands and feet, dizziness, memory problems, difficulty thinking and speaking properly
Hayley31
in
Pernicious Anaemia Society
7 years ago
Tests while on injections
Hi all, I have just been to see a gastro and he has taken blood to test for Celiac (spelt that wrong) he told me, I have recieved letter stating my blood chemistry, ferritin, folate are all normal and B12 now normal after starting injections and that methylmalonic acid and serum homocysteine levels are
Hi all, I have just been to see a gastro and he has taken blood to test for Celiac (spelt that wrong) he told me, I have recieved letter stating my blood chemistry, ferritin, folate are all normal and B12 now normal after starting injections and that methylmalonic acid and serum homocysteine levels are
Galadriel1
in
Pernicious Anaemia Society
7 years ago
Blood Result Help Please
Hi, I had some blood tests done last week and picked up a copy from the Surgery this morning. I would be very grateful if someone could have a look at them for me please as GP says 'normal' and let me have your thoughts. I am just so tired all the time, sleep very heavily, aches and pains, dry skin
Hi, I had some blood tests done last week and picked up a copy from the Surgery this morning. I would be very grateful if someone could have a look at them for me please as GP says 'normal' and let me have your thoughts. I am just so tired all the time, sleep very heavily, aches and pains, dry skin
norwood1
in
Thyroid UK
7 years ago
Haematology : B12 expert 2nd appointment next week
The haematologist told me, at the end of my first appointment, that I should write down any questions I have for her and we will go through them next time. That's next week. Although my test results are: Intrinsic Factor Antibody: negative Active B12: normal I still have the following symptoms: hair
The haematologist told me, at the end of my first appointment, that I should write down any questions I have for her and we will go through them next time. That's next week. Although my test results are: Intrinsic Factor Antibody: negative Active B12: normal I still have the following symptoms: hair
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
7 years ago
Borderline B12 test results - please help - no joy from GP
My b12 was 202 ng/l in Feb 2017 (reference range 200-900) - GP said normal and refused to do anything. I took sublingual for a month but seemed to do very little. Private text results on Intrinsic Factor Antibody result 3.00 Au/ML. The lab said this was normal. Is it? Gastric Parietal antibody test also
My b12 was 202 ng/l in Feb 2017 (reference range 200-900) - GP said normal and refused to do anything. I took sublingual for a month but seemed to do very little. Private text results on Intrinsic Factor Antibody result 3.00 Au/ML. The lab said this was normal. Is it? Gastric Parietal antibody test also
Hidden
in
Pernicious Anaemia Society
7 years ago
Self injections?
I'm in the US, I was receiving 1000mcg vit b injections weekly for 10 weeks. My intrinsic factor is fine, no bloodwork shows pernicious anemia. B12 is 800 now, was 250 range (200-900). I've now been told to use prescription nasal drop once weekly. I can feel myself going down hill. I've had ALL thyroid
I'm in the US, I was receiving 1000mcg vit b injections weekly for 10 weeks. My intrinsic factor is fine, no bloodwork shows pernicious anemia. B12 is 800 now, was 250 range (200-900). I've now been told to use prescription nasal drop once weekly. I can feel myself going down hill. I've had ALL thyroid
Crzygirl
in
Pernicious Anaemia Society
7 years ago
Newly diagnosed
Hi lovely people. I've just joined the community because I'm having a bad day coming to terms with the likely diagnosis of RA. I only had the results of a blood test last Friday so I know it's early days, but I feel like the rug has been pulled from under my feet. I have a rheumatoid factor of 170,
Hi lovely people. I've just joined the community because I'm having a bad day coming to terms with the likely diagnosis of RA. I only had the results of a blood test last Friday so I know it's early days, but I feel like the rug has been pulled from under my feet. I have a rheumatoid factor of 170,
QuiteFrankey
in
NRAS
7 years ago
Neurologist appointment wasn't too bad yesterday but still need help
The neurologist was nice: gentle, calm and listened to me, even though I was not at my best and ranted on a bit. Hard to get through 2 1/2 years of stuff, after waiting for 5/6 months (which I understand is quite good for neurology), without getting a bit angry or upset, and the appointment goes so
The neurologist was nice: gentle, calm and listened to me, even though I was not at my best and ranted on a bit. Hard to get through 2 1/2 years of stuff, after waiting for 5/6 months (which I understand is quite good for neurology), without getting a bit angry or upset, and the appointment goes so
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
7 years ago
Consultant gastroenterologist
Hi all, I saw the consultant yesterday and he is doing blood tests for Coeliacs and an intrinsic factor, as I pointed out the last blood result was only 2ng/l from the bottom of the range which he agreed. Although he initially said it was "normal"! I will also be having a Gastroscopy & colonoscopy in
Hi all, I saw the consultant yesterday and he is doing blood tests for Coeliacs and an intrinsic factor, as I pointed out the last blood result was only 2ng/l from the bottom of the range which he agreed. Although he initially said it was "normal"! I will also be having a Gastroscopy & colonoscopy in
Cali25
in
Pernicious Anaemia Society
7 years ago
PLEASE HELP!
Hi, my name is Kennedy, I am 21 years old but I feel like I'm 90. It all started at the end of May/ beginning of June 2016 with nausea, vomitting and heartburn no matter what I ate. My GP thought it was a virus, walking pneumoia ans then GERD. Things started to ease up a bit in August as I headed back
Hi, my name is Kennedy, I am 21 years old but I feel like I'm 90. It all started at the end of May/ beginning of June 2016 with nausea, vomitting and heartburn no matter what I ate. My GP thought it was a virus, walking pneumoia ans then GERD. Things started to ease up a bit in August as I headed back
kennedy333
in
Pernicious Anaemia Society
7 years ago
Understanding intrinsic factor
Just wondering....my intrinsic factor was 2 last year. The test was done immediately after my injection,one the week before and loading doses 3 months previously. Would I have had a different outcome if the test had been done before all treatment ???
Just wondering....my intrinsic factor was 2 last year. The test was done immediately after my injection,one the week before and loading doses 3 months previously. Would I have had a different outcome if the test had been done before all treatment ???
Justified
in
Pernicious Anaemia Society
7 years ago
Very high homocysteine shown on private blood test denied by GP! Scared but vindicated 😤
So ...after many years of symptoms, a massive decline after general anaesthetic 9 weeks ago,a family history of PA, being diagnosed with numerous things....ME, tri geminal neuralgia, functional neurological disorder, anxiety, depression, heart damaged by radiotherapy in the past etc etc..... FINALLY
So ...after many years of symptoms, a massive decline after general anaesthetic 9 weeks ago,a family history of PA, being diagnosed with numerous things....ME, tri geminal neuralgia, functional neurological disorder, anxiety, depression, heart damaged by radiotherapy in the past etc etc..... FINALLY
Jesswoozer1
in
Pernicious Anaemia Society
7 years ago
Reputable labs for B12 testing?
Can anyone recommend any labs for private B12, folate, ferritin, intrinsic factor, etc testing? My daughter has all the symptoms of B12 deficiency. Has been tested for thyroid function which is apparently normal, as are all her other bloods. Testing for B12 has not been carried out on the NHS. Have
Can anyone recommend any labs for private B12, folate, ferritin, intrinsic factor, etc testing? My daughter has all the symptoms of B12 deficiency. Has been tested for thyroid function which is apparently normal, as are all her other bloods. Testing for B12 has not been carried out on the NHS. Have
dorigen66
in
Pernicious Anaemia Society
7 years ago
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