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New, A Bit Scared, Would Appreciate Advice.
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
For background I've got Ehlers Danlos, a genetic connective tissue disorder which causes stretchy joints, skin, dislocations and a whole host of other fun things. Also underactive thyroid and B12 deficiency/ pernicious anemia and asthma. In spite of my issues I've always loved exercise, keeping fit
Sparklingsunshine
in
British Heart Foundation
3 months ago
Upcoming Foot Surgery
I'm having outpatient foot surgery in June. What should I be thinking about with regard to my RLS? I have read that I should ask for Zofran for anitinausea. Is that correct? Anything else I should be be talking to my doctor about? Thank you!
I'm having outpatient foot surgery in June. What should I be thinking about with regard to my RLS? I have read that I should ask for Zofran for anitinausea. Is that correct? Anything else I should be be talking to my doctor about? Thank you!
CathyJoH
in
Restless Legs Syndrome
3 months ago
Just started middle dose of Entresto,5 days in and feeling awfulš
This is my second go at taking the middle dose of Entresto and am feeling really lousy(this is why I stopped taking it last time within days) Am feeling exhausted,sleep disturbed and have achey kidneysā¦ā¦.am 11 weeks post op from abdominal surgery,so left it as long as I could before taking it again.
This is my second go at taking the middle dose of Entresto and am feeling really lousy(this is why I stopped taking it last time within days) Am feeling exhausted,sleep disturbed and have achey kidneysā¦ā¦.am 11 weeks post op from abdominal surgery,so left it as long as I could before taking it again.
Twinkletoes64
in
British Heart Foundation
3 months ago
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Knee Replacement Yesterday
Thanks to those of you who wished me well yesterday. I had full knee replacement surgery yesterday afternoon. On the advice of the surgical team I had my normal dose of Prednisolone in the morning. Epidural for the op and played nice music through my ear buds to drown out the sound of the team and the
Thanks to those of you who wished me well yesterday. I had full knee replacement surgery yesterday afternoon. On the advice of the surgical team I had my normal dose of Prednisolone in the morning. Epidural for the op and played nice music through my ear buds to drown out the sound of the team and the
Janet57
in
PMRGCAuk
3 months ago
Prostate Cancer Diet and Re-purposed Meds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
I was just reading a post about Jane Mcclelland's protocol regarding her book, "How to starve cancer." She also added a second portion on a book re-released, with a Ferroptosis (death by iron) protocol. I thought the criticism to be amazing. Cancer is a baffling mystery, top scientist and great minds
PlantrichyRich
in
Advanced Prostate Cancer
3 months ago
help required - carpal tunnel
hi Iām experiencing bad carpal tunnel symptoms. I had a huge 12 hour surgery on my tummy at the end of September and have a high output ileostomy, which has resulted in me having to have Iv magnesium . Iāve been having lots of fluid in hospital admissions too. I had mild symptoms looking back. Iām currently
hi Iām experiencing bad carpal tunnel symptoms. I had a huge 12 hour surgery on my tummy at the end of September and have a high output ileostomy, which has resulted in me having to have Iv magnesium . Iāve been having lots of fluid in hospital admissions too. I had mild symptoms looking back. Iām currently
Esme2007
in
NRAS
3 months ago
help with carpal tunnel please
Hi Iām new on this site for carpal tunnel. Iām on Iv magnesium due to a high output ileostomy. Iāve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . Iām waiting for an appointment at the hospital. these are
Hi Iām new on this site for carpal tunnel. Iām on Iv magnesium due to a high output ileostomy. Iāve had a lot of Iv fluids over the last few months and been quite unwell . I then developed what my gp has said is carpal tunnel in both wrists . Iām waiting for an appointment at the hospital. these are
Esme2007
in
Thyroid UK
3 months ago
Dry eye following Trabeculectomy
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Hello I had a right trabeculectomy nearly 4 months ago & all was well until about a week ago. I have used regular lubricating drops as I have had the same surgery in my left eye that was complicated by uveitis. I have tried a variety of lubricating drops & eventually Theoloz gel was recommended & worked
Mitziecat
in
Glaucoma UK
3 months ago
Surviving cancer: some options for you to consider
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
I just want to share with you all, that I was diagnosed with a T3 (5cm) Tumour called Adenocarcinoma, situated in the junction of the lower oesophagus and upper G. I (stomach) in January. Last year I kept complaining of : chest pains, sore tongue and throat, thick mucus and not being able to gain weight
Artiquety
in
Oesophageal & Gastric Cancer
3 months ago
Please help, so very frightened right now
Posted yesterday but, pleaseeeeeeeeeeee, really need some reassurance as I feel so very frightened right now with all the symptoms I have. Have been suffering a lot more the last couple of months but wasn't able to test until Monday due to restabilising on my meds. Results have come back that I
Posted yesterday but, pleaseeeeeeeeeeee, really need some reassurance as I feel so very frightened right now with all the symptoms I have. Have been suffering a lot more the last couple of months but wasn't able to test until Monday due to restabilising on my meds. Results have come back that I
Jefner
in
Thyroid UK
3 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
3 months ago
HGS stage 3b
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
Has anyone been through similar. I was diagnosed in May 2020 after total hysterectomy bue due to bladder injury in surgery was unable to start chemotherapy due to risk of sepsis. I had 1st reoccurance in sept 2021 and finished carbo/taxol in jan 2022. I have been on Lynparza for 2 years just finished
0151tmac69
in
My Ovacome
3 months ago
Trimbow inhaler
I have recently been moved to this inhaler due to an increase in coughing leading to me being very tired. It seems to have decreased the frequency of the coughing bouts but when they do come they last for quite a long time and are exhausting. My COPD has been a irritation up till the last 3 months but
I have recently been moved to this inhaler due to an increase in coughing leading to me being very tired. It seems to have decreased the frequency of the coughing bouts but when they do come they last for quite a long time and are exhausting. My COPD has been a irritation up till the last 3 months but
deejames
in
Lung Conditions Community Forum
3 months ago
AFIB and spike in other symptoms after recent infections
Hey everyone. I was diagnosed with Graves disease last year after testing positive for TRAB twice or thrive and having an uptake scan which also highlighted hyperthyroidism and graves. More recently I have been on 2.5mg methimazole and for a few months things were stable, however after infections in
Hey everyone. I was diagnosed with Graves disease last year after testing positive for TRAB twice or thrive and having an uptake scan which also highlighted hyperthyroidism and graves. More recently I have been on 2.5mg methimazole and for a few months things were stable, however after infections in
Wanderingweasle
in
Thyroid UK
3 months ago
MRI prior to Radiation Treatments + HT
My PSA has risen over nearly 5.5 years since my prostatectomy from Undetectable to 0.3. I was referred to an RO who, after reviewing my test results and prior history, indicated that there were some "cells left behind" near the prostate bed, even though they tried to get at them unsuccessfully during
My PSA has risen over nearly 5.5 years since my prostatectomy from Undetectable to 0.3. I was referred to an RO who, after reviewing my test results and prior history, indicated that there were some "cells left behind" near the prostate bed, even though they tried to get at them unsuccessfully during
brilliant17
in
Advanced Prostate Cancer
3 months ago
Starting the journey Interested in comments Gleason 5+4 Met to Lymph and Maybe ribs
I have just started this journey, and am deciding on treatments now. 60 years young with a Gleason 5+4 PSA hovering around 7. My PSMA PET showed one lymph near pelvis for sure, and possibly a rib neat top on left side. My medical oncologist ordered a bone scan, which showed nothing on the left side
I have just started this journey, and am deciding on treatments now. 60 years young with a Gleason 5+4 PSA hovering around 7. My PSMA PET showed one lymph near pelvis for sure, and possibly a rib neat top on left side. My medical oncologist ordered a bone scan, which showed nothing on the left side
Saladman50
in
Advanced Prostate Cancer
3 months ago
RLS and surgery
As I have previously indicated, I take Belbuca buccal patch for my RLS. I am scheduled for hip replacement surgery in the near future. Recently I have seen several posts stating that any surgery will cause increased RLS . Honestly, I am now very concerned and anxious about this. Because I take Belbuca
As I have previously indicated, I take Belbuca buccal patch for my RLS. I am scheduled for hip replacement surgery in the near future. Recently I have seen several posts stating that any surgery will cause increased RLS . Honestly, I am now very concerned and anxious about this. Because I take Belbuca
dancer2
in
Restless Legs Syndrome
3 months ago
Advice Needed
Iāve had hypothyroidism for 20 years +, I take 200mcg Thyroxine and 60mcg Liothyronine and have for the 20 years since I was diagnosed. My blood test results have always been similar (usually towards the top of the range, but thatās my normal) Last years blood test was more mid range. I donāt have any
Iāve had hypothyroidism for 20 years +, I take 200mcg Thyroxine and 60mcg Liothyronine and have for the 20 years since I was diagnosed. My blood test results have always been similar (usually towards the top of the range, but thatās my normal) Last years blood test was more mid range. I donāt have any
Stephsteph
in
Thyroid UK
3 months ago
Success stories
Hello I was diagnosed with Gleason 3+4 in January and had surgery - clear margins and clear lymph nodes but worried and have a lot of anxiety about recurrence. Any success stories out there? Please share as I am so scared of my first PSA test in a few weeks. Thanks
Hello I was diagnosed with Gleason 3+4 in January and had surgery - clear margins and clear lymph nodes but worried and have a lot of anxiety about recurrence. Any success stories out there? Please share as I am so scared of my first PSA test in a few weeks. Thanks
Granolaberry
in
Prostate Cancer Network
3 months ago
Sorry if this is depressing š
I feel trapped. I had my laparoscopy surgery in February and I was diagnosed with endometriosis. Since the surgery my pain has leveled up, itās so much worse and itās throughout the month, not just when Iām on my period anymore. I feel trapped by this illness, I have maybe one week out of the month where
I feel trapped. I had my laparoscopy surgery in February and I was diagnosed with endometriosis. Since the surgery my pain has leveled up, itās so much worse and itās throughout the month, not just when Iām on my period anymore. I feel trapped by this illness, I have maybe one week out of the month where
Law94
in
Endometriosis UK
3 months ago
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