Hey everyone.
I was diagnosed with Graves disease last year after testing positive for TRAB twice or thrive and having an uptake scan which also highlighted hyperthyroidism and graves. More recently I have been on 2.5mg methimazole and for a few months things were stable, however after infections in recent months and a later a surgery, my symptoms seem to be spiking very aggressively. Is it possible that few infections have flared up my graves or thyroid again?
Most recently Had some sudden episodes of AFIB and increased weakness, muscle twitching and muscle loss, increased tremor, increased body temperature, thinning of skin etc over the past few weeks along with a bunch of neurological issues such as increased and had to rush to ER, they did my thyroid labs and ER doc was a cardiologist and said that AFIB is due to my FT4. I told him that my endocrinologist said that numbers are normal but he said that they are not based on their labs and cut-off values. He said that they have credible data pointing towards AFIB in thyroid patients with high normal ft4. Also visited the neurologist and he sent me back saying it's looking like thyroid disturbance also. Neurologist also mentioned that my vision disturbances can be explained by TED and not any neurological conditions because of normal MRI and normal visual neurological tests. (I have had minor TED since diagnosis)
Here are my new results from ER(I am on methimazole 2.5 at the moment):
Tsh: 0.75 (range 0.55-2.5 normal)(2.5-4 Borderline High)
Ft4: 1.55 (0.8-1.45) High
Ft3: 3.1pg/ml (2.2-4.1)
Trab was not tested at ER, last result was 1.1 and TRAB 6-8 months ago was close to 3 with normal range being 0-1.
I have been on 2.5mg MM for some time now. Does this warrant changing the dosage to 3.5mg or 5mg because my ft4 levels have never gone down on 2.5, only stable or up? The endocrinologist is not agreeing on add back therapy or anything similar, so that's not an option.
Is this ft4 really on the higher side? Cardiologist told me to find my optimal range and keep ft4 mid range at 1.1 or 1.2 range and tsh closer to 1.2-1.5 with FT3 upper mid range, is it a good advice? I have past history of some minor heart complications and also family history, so I am quite stressed when anything like this happens.
My old labs were:
FT4: 1.34, I don't remember exactly but it was around that range
TSH: 1.25
FT3: 3.1pg/ml
Vitamin Panel, Iron panel, Electrolytes, ana Panels and more are all in good shape, I have been focusing on teaching optimal levels for everything through research.
Thank you