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PSA 1.175 Down from 21, 6 weeks ago. Is this good ?
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
After 6 weeks only on orgovyx my PSA has dropped to 1.175 from 21 and testosterone to 25 from 400. Are these numbers ok ? I read many here say their testosterone numbers are much lower - in single digits. Hence I am wondering if I should switch to Firmagon and see if they drop more. Do testosterone
Simpson80
in
Advanced Prostate Cancer
2 months ago
PSA rising after salvage RT. What next?
My PSA is low but on the rise. <.006 in January and .042 now. I'm not on ADT. See bio for history. I hate to stand on the sidelines and watch it rise. Is there something I can do, or do I have to wait until PSA rises then have a scan? What is SOC? Your comments are appreciated.
My PSA is low but on the rise. <.006 in January and .042 now. I'm not on ADT. See bio for history. I hate to stand on the sidelines and watch it rise. Is there something I can do, or do I have to wait until PSA rises then have a scan? What is SOC? Your comments are appreciated.
SCreader
in
Advanced Prostate Cancer
2 months ago
Success with PSMA-lutamide
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
Hi Everyone, I might get long winded in this, so the brief summary is: rechallenged with Pluvicto after a 4-year break while enhancing PSMA expression with darolutamide. PSA dropped from 44 to 3 after two treaments. I have lymph-node metastatic disease with neuroendocrine differentiation. I was on
TeleGuy
in
Advanced Prostate Cancer
2 months ago
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PSA going up. Next on the agenda.
My PSA has been going up steadily for a couple of years. In Jan. of this year it was 0.052 and now is 0.25. It went up 25% in the last month. I am on Lupron and Abi. Seems like they are failing. I know, it is still low, but I am looking at my next options. I am not one to prolong life at any cost. I
My PSA has been going up steadily for a couple of years. In Jan. of this year it was 0.052 and now is 0.25. It went up 25% in the last month. I am on Lupron and Abi. Seems like they are failing. I know, it is still low, but I am looking at my next options. I am not one to prolong life at any cost. I
gsun
in
Advanced Prostate Cancer
2 months ago
ADT and Increased Blood Sugar
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
805guy
in
Prostate Cancer And Gay Men
2 months ago
Rise in PSA
Hello everyone, I am 72 and have been on active surveillance for prostate cancer since I was diagnosed in August 2021 but probably had it prior to my first MRI in 2020. I have had 2 biopsies and 5 MRI's and countless PSA tests. The first bx showed 3 cores at 3+3 and 2 cores suspicious, confirmatory bx
Hello everyone, I am 72 and have been on active surveillance for prostate cancer since I was diagnosed in August 2021 but probably had it prior to my first MRI in 2020. I have had 2 biopsies and 5 MRI's and countless PSA tests. The first bx showed 3 cores at 3+3 and 2 cores suspicious, confirmatory bx
ironmanburg
in
Active Surveillance - Prostate Cancer
2 months ago
Dexa scan
Well, that was refreshing. I have just had a repeat dexa scan, and the radiographer took the time to question me about PMR and PsA. When I told her I had managed to reduce to 5mgs of pred, she said' Slowly, slowly now then, at that level don't reduce by more than 1/2 mg ' I was amazed she had more understanding
Well, that was refreshing. I have just had a repeat dexa scan, and the radiographer took the time to question me about PMR and PsA. When I told her I had managed to reduce to 5mgs of pred, she said' Slowly, slowly now then, at that level don't reduce by more than 1/2 mg ' I was amazed she had more understanding
Jooster
in
PMRGCAuk
2 months ago
prostate cancer that does not produce psa
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Hi everyone. My dad’s PSA has always been low, so when he was diagnosed, we were very shocked. His team checks his PSA, although PSMA have been more telling for him. His PSA today is the highest it has ever been at 17. His last PSMA was better than the one before. Is it possible for prostate cancer
Concerneddaughter123
in
Advanced Prostate Cancer
2 months ago
Stopping Lupron?
I have been on Lupron and Xtandi for 2 years and 4 months. My lupron injections are for 3 months, and with insurance it is costing me about $1,300 per injection OOP due to my $8,700 total TOOP. I'm thinking about stopping Lupron, it's such a beat down and it's made life very difficult. The fatigue alone
I have been on Lupron and Xtandi for 2 years and 4 months. My lupron injections are for 3 months, and with insurance it is costing me about $1,300 per injection OOP due to my $8,700 total TOOP. I'm thinking about stopping Lupron, it's such a beat down and it's made life very difficult. The fatigue alone
DalTx
in
Prostate Cancer And Gay Men
2 months ago
Orgovyx: Check, Barrigel: Check, Next Up: Ray-Gunz!
After 16 weeks on Orgovyx (relugovix) my PSA: 0.71 (from 16.5) and my Testosterone: 25-ng/dl (from I don't know what. Normal T is 250-800 I'm told.) I want to pass on that I've been able to greatly diminish some SEs from the drug. I now take the pill in the evening vs morning, at approx. 9 to 10 pm.
After 16 weeks on Orgovyx (relugovix) my PSA: 0.71 (from 16.5) and my Testosterone: 25-ng/dl (from I don't know what. Normal T is 250-800 I'm told.) I want to pass on that I've been able to greatly diminish some SEs from the drug. I now take the pill in the evening vs morning, at approx. 9 to 10 pm.
mababa
in
Advanced Prostate Cancer
2 months ago
Dramatic change to palliative from treatable after 6 and a half years
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
Back at the start of the yhis year my PSA continued to rise: 670 > 900 > 1167> 1600 so we stopped the trial. I was anaemic and had low haemaglobin. I felt awful, weak, nautious and had 4 days in hospital for pain management. I hadn't had this before the trial but they said I have a fractured 4th lumbar
konichiwa12
in
Advanced Prostate Cancer
2 months ago
rising PSA
My PSA started rising after 6 years of being undetectable. July 2023 , PSA 0.10 and July 2024 PSA 0.70 . I had a PSMA pet scan when my PSA hit 0.30 in November 2023 , scan did not show any cancer. I have another PSA test scheduled for early October; my doctor wants to wait until my PSA hits 1 before
My PSA started rising after 6 years of being undetectable. July 2023 , PSA 0.10 and July 2024 PSA 0.70 . I had a PSMA pet scan when my PSA hit 0.30 in November 2023 , scan did not show any cancer. I have another PSA test scheduled for early October; my doctor wants to wait until my PSA hits 1 before
Rfs1975
in
Advanced Prostate Cancer
2 months ago
Leflunamide
Good morning, I've been diagnosed with PsA and been on mtx 15mg injections for 8 months. No noticeable change. Rheumy wants me to try leflunamide now but I'm not happy as I have stomach problems due to a burst stomach ulcer so need to be careful. Anyone have experience of this drug and if so was
Good morning, I've been diagnosed with PsA and been on mtx 15mg injections for 8 months. No noticeable change. Rheumy wants me to try leflunamide now but I'm not happy as I have stomach problems due to a burst stomach ulcer so need to be careful. Anyone have experience of this drug and if so was
Cheylann
in
NRAS
2 months ago
PSMA PET Scan results
For those that asked, we received my dad's PSMA PET Scan results (full resultsin bio). We were devastated to see some bone metastasis was uncovered but knew this was likely due to his high PSA score (150) and Gleason score of 9. If anyone could provide any advice and or encouragement, that would be much
For those that asked, we received my dad's PSMA PET Scan results (full resultsin bio). We were devastated to see some bone metastasis was uncovered but knew this was likely due to his high PSA score (150) and Gleason score of 9. If anyone could provide any advice and or encouragement, that would be much
SKKALH528
in
Advanced Prostate Cancer
2 months ago
Zanda after Zytiga
Orgovyx and Zytiga brought my Gleason 9 cancer to a PSA of 0.67, but after 5 months my PSA has slowly risen to 1.59. Would it help to switch from Zytiga to Zanda? Poollover
Orgovyx and Zytiga brought my Gleason 9 cancer to a PSA of 0.67, but after 5 months my PSA has slowly risen to 1.59. Would it help to switch from Zytiga to Zanda? Poollover
Poollover
in
Advanced Prostate Cancer
2 months ago
Brand new here. Whopping high first PSA test
I see Urology tomorrow. I'm 68 and had my first PSA test ever last week. The result was 33 ng/ml and my family practice MD was alarmed and referred me right away. For the past 2 yrs I've been taking Flomax, 1 at night, to help with frequent urination at night. It also has helped with starting/stopping
I see Urology tomorrow. I'm 68 and had my first PSA test ever last week. The result was 33 ng/ml and my family practice MD was alarmed and referred me right away. For the past 2 yrs I've been taking Flomax, 1 at night, to help with frequent urination at night. It also has helped with starting/stopping
RazorSaw
in
Active Surveillance - Prostate Cancer
2 months ago
Next treatment?
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
We just left the Oncologist office and not good news. PSA is still climbing. It went from 64 to 74 in 6 weeks. Hubby has been through XTANDI, Chemo, targeted radiation, RADIUM 223. Been on Eligard for 7 years. Oncologist would like him to go in a clinical trial at Princess Margaret hospital in Toronto
Docker53
in
Advanced Prostate Cancer
2 months ago
psma findings
Haven’t heard from my Mo but I just opened the psma report and I don’t have any finding of metastasis. So I guess I run another psa? Monitor I guess? Anyway I’m happy for sure. I guess we will stay on top of it with psma and psas. Surprised my mo hasn’t called yet lol. She last said she was intrigued
Haven’t heard from my Mo but I just opened the psma report and I don’t have any finding of metastasis. So I guess I run another psa? Monitor I guess? Anyway I’m happy for sure. I guess we will stay on top of it with psma and psas. Surprised my mo hasn’t called yet lol. She last said she was intrigued
Mikes21
in
Advanced Prostate Cancer
2 months ago
What's typical PSA drop over time after SBRT?
Hi All, I'm 10 months post SBRT w/o ADT (on a study that randomized me for no ADT with low Decipher score), so wondering if anyone has any info on what I would expect for PSA percentage drop over time? A year ago my PSA was 11.0 and this past week, I'm at 5.3. I'm happy that it is less than half what
Hi All, I'm 10 months post SBRT w/o ADT (on a study that randomized me for no ADT with low Decipher score), so wondering if anyone has any info on what I would expect for PSA percentage drop over time? A year ago my PSA was 11.0 and this past week, I'm at 5.3. I'm happy that it is less than half what
LiveLongAndPropser
in
Prostate Cancer Under 60
2 months ago
Blood tests - what frequency?
Generally at what frequency do most people do blood tests to check PSA, testosterone and ALP ?
Generally at what frequency do most people do blood tests to check PSA, testosterone and ALP ?
Simpson80
in
Advanced Prostate Cancer
2 months ago
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