Most Recent MRI: Hello everyone, I am... - Active Surveillan...

Active Surveillance - Prostate Cancer

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Most Recent MRI

ironmanburg profile image
11 Replies

Hello everyone, I am 72 and have been on active surveillance for prostate cancer since I was diagnosed in August 2021 but probably had it prior to my first MRI in 2020. I have had 2 biopsies and 5 MRI's and countless PSA tests. First bx showed 3 cores at 3+3 and 2 cores suspicious, confirmatory bx a year later showed 1 core at 3+3 and 1 core suspicious. My PSA has risen from 3.9 in 2018 to 12.7 and back to 11 this year. My previous MRI's showed a bladder outlet obstruction and BPH and one probable subcentimeter utricle cyst rated Pirads 2, the latest MRI report showed the probable subcentimeter utricle cyst as Pirads 3 (grew a bit) and didn't say anything about the bladder outlet obstruction or BPH. All surrounding areas were fine. When I saw my Urologist I brought this up and he had no answer for me other than to say I moved up to an intermediate unfavorable risk since my PSA was up. Said the size of my prostate was borderline enlarged anyway. I suggested that maybe riding my bike 5000 miles a year for over 20 years may have something to do with my rising PSA since the prostate may be in a constate state of proctitis and he had no answer. Of course he suggested a prostatectomy which I am not going to do at this point. I have no other symptoms, I train and compete in Ironman triathlons, eat a Vegan diet and get plenty of rest/sleep. My question is, has anyone else have a similar journey and where did you end up? Thanks for your time.

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ironmanburg
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11 Replies
pd63 profile image
pd63

If you are unfavourable intermediate AS is not appropriate, treatment is needed.Seems to me you are trying to convince yourself otherwise, what is your gleason score?

ironmanburg profile image
ironmanburg in reply topd63

3+3 in one core.

EJC61 profile image
EJC61

What were the GS scores for the suspicious cores?

ironmanburg profile image
ironmanburg in reply toEJC61

There wasn’t a score. Not enough presence to make a determination.

EdinBmore profile image
EdinBmore

Start with a second opinion from uro and radiation oncologist and, depending upon their input, a medical oncologist. I do not have a MD but, given my experience, I'd be concerned about your PSA and PIRADS score. FYI: I was "on" AS for 7 yrs and I think that my Hopkins uro waited too long to recommend treatment. As a result of this delay, I was treated with IMRT, brachyboost, and ADT. ADT was awful for me. Keep on top of this. Btw, remember that uros are surgeons; they recommend surgery. Radiation was the better choice for me. Weigh the pros and cons of each.

Good luck to you,

EdinBaltimore

ironmanburg profile image
ironmanburg in reply toEdinBmore

Thanks.

aceace12 profile image
aceace12

i would thik riding your bike would have something to do with this

ironmanburg profile image
ironmanburg in reply toaceace12

That’s what I’m thinking too.

Estaban2021 profile image
Estaban2021

If you're a Gleason 6 (3+3) it doesn't really sound like you need a prostatectomy, which could potentially ruin your quality of life. Sounds like you need a second opinion.

ironmanburg profile image
ironmanburg in reply toEstaban2021

Thanks. I’m transferring my care to an oncologist at a cancer treatment center.

DGLSky profile image
DGLSky

Outside of you having pc you are going through life as well as anyone. I have had pc since 2021 at 54 years old with PSA at 4 and Gleason at 6. Now PSA is 6.25 and still Active surveillance. I do not do iron man or much of anything. You keep going.

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