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Symptoms suddenly taking a turn for the worse
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
Hello everyone. I am new to the forum, and have some questions to ask, but also want to share my RLS story, as well as some things that I have found helpful in living with RLS. I have had RLS for over 40 years. At first it was fairly easily controlled with a good run or long walk, and later with magnesium
restlegs1
in
Restless Legs Syndrome
11 months ago
Unusual additional symptoms
I have had Fibromyalgia for a number of years, and compared to some sufferers manage reasonably well. The worst of the problems are pins and needles in my legs and feet, and extreme fatigue from time to time. I take Amitriptyline at night, and also evening primrose oil and Q10, which do help. I also
I have had Fibromyalgia for a number of years, and compared to some sufferers manage reasonably well. The worst of the problems are pins and needles in my legs and feet, and extreme fatigue from time to time. I take Amitriptyline at night, and also evening primrose oil and Q10, which do help. I also
Bertiemum
in
Fibromyalgia Action UK
1 year ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
1 year ago
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Trying to make the most of being chronically ill and unemployed 💕
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
✨ Just some ideas on how to make the most of something that sucks and can be very isolating and lonely ✨ *depending on what you can do that day x • Quality time with loved ones • Getting a new pet or spending more quality time with yours. • Developing a self care routine • Free adult learning courses
x_emily_x
in
Endometriosis UK
9 months ago
Endo diet and bowel symptoms
I'm currently trying to deal with a return of bowel symptoms which most like seem to be due to bowel endo (I have a RV lesion plus a second nodule on the bowel). I've had a hysterectomy and oophorectomy and have already had excision. I had an MRI earlier this year which showed adhesions between the rectum
I'm currently trying to deal with a return of bowel symptoms which most like seem to be due to bowel endo (I have a RV lesion plus a second nodule on the bowel). I've had a hysterectomy and oophorectomy and have already had excision. I had an MRI earlier this year which showed adhesions between the rectum
Hidden
in
Endometriosis UK
1 year ago
Recent Blood results - your advice
I have been on Levothyroxine now for about 6 weeks. My results are as follows: I got tested at 8.50 am and hadn't taken any medication from the morning before at 6am. I ate nothing before test. I felt good for a few days but feel as bad as ever again - just low mood and tired and no energy. I was
I have been on Levothyroxine now for about 6 weeks. My results are as follows: I got tested at 8.50 am and hadn't taken any medication from the morning before at 6am. I ate nothing before test. I felt good for a few days but feel as bad as ever again - just low mood and tired and no energy. I was
Sunflower535
in
Thyroid UK
1 year ago
Purpura on w&w?
Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come and go on my left arm, but today, after reaching in to tomato cages to capture the best and presumably scraping my arm, I have developed a whole big area of what I assume to be purpura, spread over about 3 inches and not
Since diagnosis 3 years ago, while on W&W, I have had presume purpura spots come and go on my left arm, but today, after reaching in to tomato cages to capture the best and presumably scraping my arm, I have developed a whole big area of what I assume to be purpura, spread over about 3 inches and not
Vlaminck
in
CLL Support
1 year ago
on going heartburn with esophagitis
I have had an endoscopy that found chronic eosphogstis. I have tried three PPIs ie omeprozole, lanzopropal and the one something like esomprozole. Other than watching what you eat and drink , have you found any natural solutions like peppermint oil or the like. Tried ginger, slippery elm but no relief
I have had an endoscopy that found chronic eosphogstis. I have tried three PPIs ie omeprozole, lanzopropal and the one something like esomprozole. Other than watching what you eat and drink , have you found any natural solutions like peppermint oil or the like. Tried ginger, slippery elm but no relief
Robfromwales
in
Acid Reflux Support
1 year ago
Top tip
Olive oil guys… in a dark can… best you can afford. My ontological perspective..:I’ve always seen that OL and fish/ oil as medicine. My own researcher bias; my own HDL is now over 2 and I eat a supper every night full of crap.
Olive oil guys… in a dark can… best you can afford. My ontological perspective..:I’ve always seen that OL and fish/ oil as medicine. My own researcher bias; my own HDL is now over 2 and I eat a supper every night full of crap.
Hidden
in
British Heart Foundation
1 year ago
castor, oil patch
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
hi was wondering if anyone has ever done this it keeps popping up on my phone that it reduces inflammation and detox his liver. I’m not sure if we can do this being on pegasys just interested if anyone has done this
Nc3500
in
MPN Voice
1 year ago
Zyprexa hangover
I've been taking Zyprexa, 15 mgs at night for years. Idk exactly how long. Anyway, I still get this hangover effect from it the next day. I hate it, it makes me so damn tired and dragging ass. Like, I'm
SO
tired today and I got some sleep. 😴 But, at the same time, it's a medication that I
I've been taking Zyprexa, 15 mgs at night for years. Idk exactly how long. Anyway, I still get this hangover effect from it the next day. I hate it, it makes me so damn tired and dragging ass. Like, I'm
SO
tired today and I got some sleep. 😴 But, at the same time, it's a medication that I
Hidden
in
Anxiety and Depression Support
1 year ago
Cystocele/Rectocele repair all done
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
I'm almost 6 weeks after my repair surgery. Recovery not to bad. First two weeks I was warned were crucial and told not to do anything except rest, which I did. Luckily we had hot sunny weather so I literally layed outside sunbathing in-between medication, meals and sleeping. No pain as I kept taking
Jasparswim
in
Pelvic Pain Support Network
1 year ago
High dose fish oil supplements may increase risk of AF
I saw this in the Consumer Labs newsletter today. Just wanted to posts for those taking high dose fish supplements. Please let me know if link does not open as it’s subscription based. The percentages don’t seem that significant, though I’m not the best person to interpret these studies https://www.consumerlab.com
I saw this in the Consumer Labs newsletter today. Just wanted to posts for those taking high dose fish supplements. Please let me know if link does not open as it’s subscription based. The percentages don’t seem that significant, though I’m not the best person to interpret these studies https://www.consumerlab.com
OzJames
in
Atrial Fibrillation Support
1 year ago
Blood test results Vitamins / Digestive problems
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Blood results done by GP : “ Serum folate 4 ug/L Serum ferritin 21 ug/L low iron stores Serum vitamin B12 513 ng/L. ” Vit D not done. I see Tesco are offering cheap tests for various vits. Thoughts ? I am housebound so I take vit D. 25 ug daily. Also omega 3 fish oil and a multivitamin. I was
Applethorpe
in
Thyroid UK
1 year ago
Nutrafol ... supplement
Hi! Has anyone benefited from taking Nutrafol... a supplement?!?! It helps w hair! And, does anyone have a fish oil supplement to recommend? Thank you!
Hi! Has anyone benefited from taking Nutrafol... a supplement?!?! It helps w hair! And, does anyone have a fish oil supplement to recommend? Thank you!
beaubeau1121
in
Thyroid UK
1 year ago
Fibromyalgia help! Please
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
Hiya, I was wondering if anyone knows of anything that can help symptoms from fibromyalgia, anything that isn't hard medication, I have heard cod liver oil, tumeric and magnesium. I want to know any thoughts on this or anything else that people have found that works. Anything and information at all
sunflower022
in
Fibromyalgia Action UK
1 year ago
Recent results & help needed on next steps
Hi, I'm really grateful for any help please.. My theory is that I am having a gut issue because of the supplements I am taking not making a difference and I have no clue where to start with that. I have been attempting to help myself since November 2022 when I was fed up of feeling crappy. I have been
Hi, I'm really grateful for any help please.. My theory is that I am having a gut issue because of the supplements I am taking not making a difference and I have no clue where to start with that. I have been attempting to help myself since November 2022 when I was fed up of feeling crappy. I have been
Smv95
in
Thyroid UK
1 year ago
update on hubby
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
Hubby was feeling very bad earlier in the year from what turned out to be overdosing of levodopa when they changed him to the ER madopar. This caused severe rigidity even in his throat, agitation and sundowning in the evening, and eventually he kept trying to escape in the night to try and kill himself
LAJ12345
in
Cure Parkinson's
1 year ago
2 year old Toddler with RLS
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
Hi there! Came here out of desperation. My soon to be 2 year old has had terrible sleep since day 1. He is extremely hyperactive, and would be up in the middle of the night for hours. We tried every natural syrup or solution recommended by doctors. Finally saw a neurologist and he suggested RLS. We are
OrangeDino
in
Restless Legs Syndrome
1 year ago
PV and essential oils
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
Hi allJust wondering if I can take essential oils to help with my mood and menopause whilst taking interferon for PV. Anyone any experience of this and whether certain oils interact with interferon? Many thanks
MazzaP74
in
Fight MPN
11 months ago
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