Search
Search
About
Log in
Join
Experiences with
AndroGel
Posts
Communities
5,702 public posts
Filter results
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
10 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
10 months ago
Vacation from ADT
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was complaining of brain fog. He said to stop the Abi for about three weeks to see if there is any improvement and if not, stop Lupron. My story
gsun
in
Advanced Prostate Cancer
10 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
ADT and bone health
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I have had very little side effects. I have always been a health / exercise buff & continue to exercise everyday to maintain my mental & physical
Stevegr
in
Advanced Prostate Cancer
10 months ago
Genomic testing
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in doing it ahead of things while one is castrate sensitive? Had RP and then salvage radiation with 6 months ADT. 1st lab after.. T of 25 and undectable
runtrails
in
Advanced Prostate Cancer
10 months ago
Questions about progesterone and prostate cancer
My onco continues to resist prescribing low dose E2 to help minimize some of my ADT SEs. Following my last appointment he suggested progesterone as an alternative. - Has anybody here had success with using progesterone while on ADT? - Any reasons to steer clear of progesterone? Thanks
My onco continues to resist prescribing low dose E2 to help minimize some of my ADT SEs. Following my last appointment he suggested progesterone as an alternative. - Has anybody here had success with using progesterone while on ADT? - Any reasons to steer clear of progesterone? Thanks
Carlosbach
in
Advanced Prostate Cancer
10 months ago
CT and Bone Scan 2 weeks after PSMA PET?
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
Note:
for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO when needed. Therefore, there is no relationship between the urologist and RO - the RO is part of the cancer institute, but the urologist is not
sixmongoos
in
Advanced Prostate Cancer
10 months ago
Post-ADT, does one's ability to maintain weight get better?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy weight get better? How long after?
Derf4223
in
Advanced Prostate Cancer
10 months ago
Clinical Trial Considerations??
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
I’ve been presented with a clinical trial and I’m open to feedback. Background: I’m 71 and in pretty good health. I was diagnosed with two Gleason 6 lesions in late 2021 and went on AS. At that point, PSA was in the low 4’s. Earlier this year, PSA rose to 6.7. MRI and guided biopsy uncovered one Gleason
CubFan
in
Prostate Cancer Network
10 months ago
Very promising trial!
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Con't know if it's good for metastatic but still...CRPC is good enough Molecule name: AZD5069 “This is tremendously exciting and it suggests we have an entirely new way to treat prostate cancer on the horizon,” said Johann de Bono, a professor of experimental cancer medicine at the Institute of Cancer
Maxone73
in
Advanced Prostate Cancer
10 months ago
QOL - Keep Going
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
My PSA was ND and my MRI for glioma was OK - so after another Chemo - I took the family to Italy for us to enjoy the espresso at a sidewalk cafe along with gelato. see https://1drv.ms/f/s!Aj3YK_3HR4eZgznhrPKZL62aFeCH?e=nXtJbY I hope the pictures work - I can't seem to get them in chrono order so
PabloK
in
Advanced Prostate Cancer
10 months ago
High-Dose Transdermal Estradiol as ADT
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Does anyone have any experience with this? According to my understanding: It's not FDA approved, but used here in the U.S., and all over the rest of the world. It's at least as effective in lowering T to castrate levels. It carries a far more tolerable profile of SEs than LHRH drugs, presumably
Horse12888
in
Advanced Prostate Cancer
10 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
10 months ago
PSA testing comparison question
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
I know that PSA results can vary, particularly if processed by different labs. Knowing this, I do have a question. Quick recap, I completed 20 rounds of radiation at UCLA with Kishan back in April of this year. At the same time, I began 6 months of ADT. Over the past few months, while getting my
LongevityAT
in
Advanced Prostate Cancer
10 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
10 months ago
De-escalation
So I am following the de-escalation trials as discussed here: https://dailynews.ascopubs.org/do/clinical-conundrum-de-escalating-therapy-patients-metastatic-hormone-sensitive-prostate. I am working with my own MO on de-escalation so no ADT injection for me at the end of September and so am on the
So I am following the de-escalation trials as discussed here: https://dailynews.ascopubs.org/do/clinical-conundrum-de-escalating-therapy-patients-metastatic-hormone-sensitive-prostate. I am working with my own MO on de-escalation so no ADT injection for me at the end of September and so am on the
Brysonal
in
Fight Prostate Cancer
10 months ago
To those who have read Dr Richard Wassersug's book....
As mentioned in other posts, off Erleada as it's contraindicated in my treatment of Multiple Myeloma. I was just approved for Zytiga. Hurray for me. Anyway, I have not read his book yet but it's on my list. I recently watched his Tube Video and found it interesting but covered other higher priority
As mentioned in other posts, off Erleada as it's contraindicated in my treatment of Multiple Myeloma. I was just approved for Zytiga. Hurray for me. Anyway, I have not read his book yet but it's on my list. I recently watched his Tube Video and found it interesting but covered other higher priority
swwags
in
Advanced Prostate Cancer
10 months ago
Does testosterone fluctuate after ADT ends?
My treatment (Radiation/Lupron/Abirateron/Prednisone) ended on May 2. Gradually my testosterone began to come back. In August it was at 3 nmol/L and in Oct 6 it was 11 nmol/L so it is on a upward trend as can be expected. However I am wondering if there are up and down fluctuations because while
My treatment (Radiation/Lupron/Abirateron/Prednisone) ended on May 2. Gradually my testosterone began to come back. In August it was at 3 nmol/L and in Oct 6 it was 11 nmol/L so it is on a upward trend as can be expected. However I am wondering if there are up and down fluctuations because while
Mascouche
in
Advanced Prostate Cancer
10 months ago
Go-forward Treatment Plan
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
First of all, I've been an avid reader of this forum over the past 2 years, and wanted to express my gratitude towards the amount of knowledge everyone has been sharing on this site. My father (62 y.o., very healthy) was diagnosed with aggressive PCa (Gleason 9, PSA 58) in Sep 2021, and underwent RALP
sixmongoos
in
Advanced Prostate Cancer
10 months ago
Supplements that improve brain health
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Declining brain health (cognition et al) is a possible SE of LT ADT. I am on a 2 year ADT plan. Here are some supplements I take for various reasons that also are said to have brain-on-LT-ADT health benefits. (Per Dr. Google) Creatine Taurine L Theanine HMB (long chemical name) Exercise (you
Derf4223
in
Advanced Prostate Cancer
10 months ago
1
...
38
39
40
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4090 results
Prostate Cancer Network
445 results
Endometriosis UK
325 results
View top 10 communities
Sort by
Most Relevant
Newest