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Figuring things out - first year since diagnosis
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
Hi, I'm posting here as I don't know anyone in real life with lupus and have been struggling to work out what my expectations should be in terms of symptoms. I was diagnosed just over a year ago following about a year of strange symptoms - GI issues, weight loss, Raynaud's, mouth ulcers, hand and wrist
CGSLE
in
LUPUS UK
2 months ago
Lupus or another Autoimmune Disease?
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
I’m 50 yr old female with issues, RLS, Hashimotos, Autoimmune Atrophic Chronic Gastritis, intestinal Metaplasia, Iron Deficiency Anemia w/transfusions, B12 deficiency, and now this horrible hip and joint pain. I know if you have one Autoimmune Disease you’re likely to have more. I’ve had a full work
Milescircus
in
LUPUS UK
2 months ago
Need Help With Results From Blood Test
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Hello everyone, I recently started having burning sensations, tingling and pain in my head, leg, feet and arms, also brain fog, dry mouth, and muscle pain in chest with extreme fatigue. Also had a red rash under both of my eyes.My GP ordered blood work and my platelets were high, iron low, protein and
Jadaboo4
in
LUPUS UK
1 month ago
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blood tests
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
hi lovely people, I was wondering if you could give me any advice. I’m relatively new to all of this and I’ve had a very bad experience at my last hospital. I was misdiagnosed most of last year with Complex Regional Pain disease. My rheumatologist wouldn’t even consider an autoimmune disease. Anyway
Tonkie
in
LUPUS UK
2 months ago
Positive ANA and Symptoms
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only young then, but in thr last 5 years I've been experiencing symptoms. I have had more blood tests just from a GP who said ANA aas positive and explained
JCM1992
in
LUPUS UK
3 months ago
Does this look like a malar rash? Would it be seen as one by a doctor, do you think?
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my fingers and elbows sometimes. My heel and ankle are also badly affected. The fatigue is debilitating. I have also developed digestive issues
Fluffymella
in
LUPUS UK
3 months ago
Ketogenic diet alters the epigenetic and immune landscape of prostate cancer to overcome resistance to immune checkpoint blockade therapy.
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
Overall, this strikes me as too hypothetical for us to apply, but what do I know? "Overall, these findings illuminate a potential clinical path of using HDACi and optimized KD regimens to enhance ICB therapy for PCa." HDACi = histone deacetylase inhibitor [To date, four HDAC inhibitors, Vorinostat
cigafred
in
Fight Prostate Cancer
26 days ago
New diagnosis
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
I was just diagnosed with fibromyalgia. Four years ago, I was diagnosed with Giant Cell Arteritis and, about 2 years later, Polymyalgia Rheumatica. My life has drastically changed between the pain and total exhaustion. Any words of advice would be most welcome.
Miacaro45
in
Fibromyalgia Action UK
27 days ago
scabies won´t go away, help
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Hello, have anybody scabies won´t go away? I have it for 2 years now and it is horrobil. I try everything (all chemicals / medicine, all natural things with vaseline and sulfur and with all ethereal oils, with enzyme, with borax, CDL, bleech and so on outside , mixed it in all ways. and inside with
Massio
in
BASHH
29 days ago
Nagalase count
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
My nagalase count is declining. 1.55 -1.37 - 1.12 today. The Clioquinol +zinc +ivermicetin is still working on the way to zero. PSA is steady at 32 Nagalase is an enzyme that cancer cells produce to protect themselves from the immune system.
agnut
in
Fight Prostate Cancer
1 month ago
scheduled for Botox and tag removal. Possible hemrrhoidectomy
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
hey everyone! I’ve been dealing with anal fissures on and off ever since giving birth back in 2016. I used to be able to go months and months before having a retear. Then I started noticing I’d tear around my period. Then in 2023 I stopped working out and I noticed I got fissures every month!!! It’s
Sufferedtoolong
in
Pelvic Pain Support Network
1 month ago
Maybe an alternative to Nattokinase et al, though not yet
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
cigafred
in
Fight Prostate Cancer
2 months ago
Anal fissure
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Dubher
in
IBS Network
2 months ago
this might help
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
Tina2479
in
BASHH
2 months ago
Is this Hemmoriod symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
I had some on and off constipation issues last year and occasionally saw small red blood on toilet paper after cleaning Saw a doctor in August 23 who did the examination and diagnosed that I had anal fissure. He gave Diltiazem cream which I used for one month Seem to fixed the problem only for symptoms
AMerchant
in
IBS Network
2 months ago
Rectal Pain
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
I've had rectal pain after bowel movements for 2 years. Pain lasts around 4-5 hours.No Dr. knows what's wrong. MRI was normal. I can't sit over 1 hour and I and when I stand for over an hour I feel like mu insides ar falling out of my vagina. I do not have Hemorrhoids. I do have a 2cm Retrocele but Drs
swanzie
in
Pelvic Pain Support Network
2 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
3 months ago
Rectal pain
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Hi, I had hemmies years ago which I had banded and also injected which seemed to solve the problem but then got an anal fissure and after struggling with it for years finally got surgery. Fast forward to now and I have constant pain in the rectum and am waiting for colonoscopy, my question is, does
Boresum
in
Bowel Disease Support
3 months ago
Oxynorm
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
I'm too .... shattered... to give a nicely put story even a short n sweet would be too much right now. So in the meantime I would love to hear your thoughts on Oxynorm as pain relief for brutal endometriosis. It's helping reasonably well for me (though not fully I may add) Many thanks in advance
Roellen
in
Endometriosis UK
3 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
3 months ago
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