Yesterday I went to St T's. They have taken a load of blood tests. I asked if the antibeta2glycoprotein was negative this time would I lose my APS diagnosis - it seems that that depends on my consultant up here. I think he goes along with one positive test means you have it - I hope - I would hate to be back at square 1 with no anticoagulation.
I was also told to re-introduce vit K in my diet as they are now recommending a small amount of green veg each day - but still advise no cranberry stuff. I had stopped as it was the only way I could keep my INR in range. I was also told ST T's is now advising an INR of 3-4 (my range was 3.5 to 5)
I was told I have some lupus symptoms and that my last tests showed I had positive ANA but negative ENA?????
Sadly I was also asked if stress could be causing me to lose my speech - I thought I had long since proven this is not anxiety.
I feel really low about all this. I see my own consultant again in three weeks time. By then the bloods might be back.
I feel like I am still having to fight my corner. And just when I think I know where I'm at it's all change.