21,407 members25,118 posts

Birmingham open day and update!

Can some one please message with details of open day in Birmingham

times of workshops etc.

I deleted my personal profile of summer accidently when I left another health Unlocked site it took my profile from this one too! and the long awaited reply from NRAS too because once you delete a profile you cant retreive old messages etc.

I am still waiting for letter from rhuematologist from JUNE 3RD appointment re treatment!! not happy cant use hands to make a fist etc in morning.. has passed anti tnf assessment twice at scores both over 5.1.. but she told me not swollen enough!!, bad news was a spurious ana test which was positive,, so considering connective tissue disorder eg lupus!

left with no meds other than painkillers not v happy...

Seeing occy health tue will have nothing to report consultant was meant to write to Her and me re illness re work capabilities re illness/ fatigue.

I will be forced to sign a temporary reduced hours my phased return to my normal hours note ran out on june 25th.. so will have to do a back dated contract to beginning of July for only about 18 HOURS as fatigue and pain with no proper meds mean this is all I can safely work!!

6 Replies

Oh Summer really hope you get some med sorted asp .Soory can't help with info on nras, xxx


Birmingham is on the 18th September at Solihull college, if you book through the helpline. I haven booked a hotel yet but RA Fibro has I believe, i forget which one she said. I am waiting a bit to see how i am first !!!


just checked my diary which has 18 and 19 blocked out!


I Know its the 18Th thur but I Lost the programme details when I accidently deleted myself!! not staying overnight to keep cost down and save leave too x


think its too far for me to try and do in a day, so will think about it but it would be lovely to meet you.


Hi Summer

I'll re-send you the email with all the information in it about the Birmingham Members Day but it is on Thursday 19th September from 10.30am to 4.30pm.



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