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Fibro and possible Lupus
Hi everyone, I am new here but have fibro with all the little extras that go along with it, ibs, chronic fatigue, fibro fog which just kicked in and I can't think of the others at the moment. I am hearing two different things and don't know what to think. My doctor who has been my doctor for almost
Hi everyone, I am new here but have fibro with all the little extras that go along with it, ibs, chronic fatigue, fibro fog which just kicked in and I can't think of the others at the moment. I am hearing two different things and don't know what to think. My doctor who has been my doctor for almost
Tereslove
in
Fibromyalgia Action UK
9 years ago
New and Unsure about me
Hi I am new here and was wondering about symptoms of Lupus. My doctor is sending me to a rheumatologist to see what he says about my latest blood work. I had a positive ANA but the double strand was negative. My red blood cells are low, I am anemic for no reason, b12, and iron are fine, and the folic
Hi I am new here and was wondering about symptoms of Lupus. My doctor is sending me to a rheumatologist to see what he says about my latest blood work. I had a positive ANA but the double strand was negative. My red blood cells are low, I am anemic for no reason, b12, and iron are fine, and the folic
Tereslove
in
LUpus Patients Understanding and Support
9 years ago
Does Pegylated interferon alfa-2a cure ET? Some paper show yes. Is this credible?
I found a paper Quintás-Cardama A, Kantarjian H, Manshouri T, et al. Pegylated interferon alfa-2a yields high rates of hematologic and molecular response in patients with advanced essential thrombocythemia and polycythemia vera[J]. Journal of Clinical Oncology, 2009, 27(32): 5418-5424. This show the
I found a paper Quintás-Cardama A, Kantarjian H, Manshouri T, et al. Pegylated interferon alfa-2a yields high rates of hematologic and molecular response in patients with advanced essential thrombocythemia and polycythemia vera[J]. Journal of Clinical Oncology, 2009, 27(32): 5418-5424. This show the
Midas_
in
MPN Voice
9 years ago
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Clotting question
I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and said because I can bike ride far, I do not have lupus. My question is, for anyone that has clotty blood from SLE could it be that when I have several
I have been taking a natto k enzyme (helps with sticky blood) since rheumy said my bloodwork even though I had a positive ANA, doesn't mean I have lupus and said because I can bike ride far, I do not have lupus. My question is, for anyone that has clotty blood from SLE could it be that when I have several
Natura
in
LUPUS UK
9 years ago
Fibromyalgia? and more tests
Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were 'clear' and when I looked at the screen and asked why one was 'flagged' he said 'oh yes, your vitamin D is low', the third just sent me away with
Well, saw a fourth GP yesterday. My first GP who'd sent me to the neuro has left, the second was a guy who clearly didn't care and told me all my tests were 'clear' and when I looked at the screen and asked why one was 'flagged' he said 'oh yes, your vitamin D is low', the third just sent me away with
achydunlin
in
LUPUS UK
9 years ago
Stopped taking all meds
Hi, I am after some advice. I was diagnosed with sle January 2012 after years of joint pain, rash and fatigue. I was prescribed hydroxychloroquine 400mg daily. It made no difference so I was prescribed methotrexate 17.5mg. Again it made no difference. Over the summer things were pretty bad so I was also
Hi, I am after some advice. I was diagnosed with sle January 2012 after years of joint pain, rash and fatigue. I was prescribed hydroxychloroquine 400mg daily. It made no difference so I was prescribed methotrexate 17.5mg. Again it made no difference. Over the summer things were pretty bad so I was also
Mandymerritt
in
LUPUS UK
9 years ago
What to expect
Hi I am new to the community and would welcome any self help advice also what to expect. I had an infection and sepsis 18months ago following this I felt constantly tired and aching joints following several tests it was determined I was ANA positive so referred to a rheumatologist. I continue to be
Hi I am new to the community and would welcome any self help advice also what to expect. I had an infection and sepsis 18months ago following this I felt constantly tired and aching joints following several tests it was determined I was ANA positive so referred to a rheumatologist. I continue to be
butch54
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Lupus? Any Advice??
I have a couple of questions about this. I had 2 positive ANA tests and 2 negative. The drs all mentioned lupus. It started when i couldnt use either of my hands, even to lift a drink to my mouth and my arm dr checked my ANA and asked if i knew of lupus. (then followed was hemotologist) not ONE has said
I have a couple of questions about this. I had 2 positive ANA tests and 2 negative. The drs all mentioned lupus. It started when i couldnt use either of my hands, even to lift a drink to my mouth and my arm dr checked my ANA and asked if i knew of lupus. (then followed was hemotologist) not ONE has said
gemini2tru
in
LUPUS UK
9 years ago
Loss of sense of smell
I suddenly realised about 18 months ago that I have lost some of my sense of smell. This started with bleach and cat pee (!!) but has gradually got worse until when I was out with my Mum a couple of weeks ago I realised I couldn't smell the flowers she was raving about :( Similarly my sense of taste
I suddenly realised about 18 months ago that I have lost some of my sense of smell. This started with bleach and cat pee (!!) but has gradually got worse until when I was out with my Mum a couple of weeks ago I realised I couldn't smell the flowers she was raving about :( Similarly my sense of taste
ShellyB1
in
LUPUS UK
9 years ago
Now what?
Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my CNS apparently but they don't know what. They found O bands in my spinal fluid which may/may not be MS (my neurologist had ruled it out after clear
Following on my 'pushed pillar to post' post. Have seen my GP who confirms I have an auto-immune response throughout my nervous system - inflammation in my CNS apparently but they don't know what. They found O bands in my spinal fluid which may/may not be MS (my neurologist had ruled it out after clear
achydunlin
in
LUPUS UK
9 years ago
Lupus?
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
I've have had positive ANA for over two years and other symptoms and have been on medication for Lupus im now confused as when I had a check up the other day the specialist said it might not be lupus but also told me my blood test is showing that there's a problem with my Liver so I've now got to see
steph1
in
LUPUS UK
9 years ago
Positive ANA&Positive DsDna/ Negative ANA & Positive DdDna
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Hello everyone, I am from the United Statesand saw your blog and thought I'd join. I am 33 recently had tests done positive ANA positive DsDna then sent to rheumatologist who retested Neg ANA and slightly higher still positive DsDna. I have a lot of the symptoms of SLE my mother also has and was diagnosed
Stormyweather541
in
LUPUS UK
9 years ago
Unsure if have lupus
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
Hi, I'd be grateful for any advise as I'm feeling really stuck. I saw gp back in sept as had been suffering bad fatigue, migraine type headaches aggravated by light, muscle aches and feeling really down, this had been ongoing for 2-3 months after bad chest infection and I was also pregnant at the time
mrs_t
in
LUpus Patients Understanding and Support
9 years ago
Migraine aura and Lupus?
Hello all, hope you are feeling well today! I was wondering if any of you get Migraine with aura along with Lupus? I was diagnosed with Migraine Aura, after it being ignored by GPs for a long time. I get horrible episodes of light, halos and zig zags, so much I can hardly see. I go slightly numb down
Hello all, hope you are feeling well today! I was wondering if any of you get Migraine with aura along with Lupus? I was diagnosed with Migraine Aura, after it being ignored by GPs for a long time. I get horrible episodes of light, halos and zig zags, so much I can hardly see. I go slightly numb down
kittyIM
in
LUPUS UK
9 years ago
Flares
Hi all I have posted before but not had a diagnosis of any SLE but have diagnosed Raynauds think it was ANA test I had for this , i also suffer mainly right sided joint pain, oral lichen planus ,small intermittent itchy rash on right ankle headaches and constant UTI and microscopic haematuria even when
Hi all I have posted before but not had a diagnosis of any SLE but have diagnosed Raynauds think it was ANA test I had for this , i also suffer mainly right sided joint pain, oral lichen planus ,small intermittent itchy rash on right ankle headaches and constant UTI and microscopic haematuria even when
kazhodluckymilo17
in
LUPUS UK
9 years ago
ANA blood test in September, results back end of November...
Hi all, I've been feeling very ill for a long time, I am 21 years old but feel like I'm 80. I've seen countless doctors and I've been pushed around, ignored and patronised. Finally, I got the diagnosis of endometriosis. Before that I had an ANA blood test done, for weeks after all was silent. I began
Hi all, I've been feeling very ill for a long time, I am 21 years old but feel like I'm 80. I've seen countless doctors and I've been pushed around, ignored and patronised. Finally, I got the diagnosis of endometriosis. Before that I had an ANA blood test done, for weeks after all was silent. I began
kittyIM
in
LUPUS UK
9 years ago
Good doctors in Bournemouth?
After being let down time and time again, I've not been to a doctor for about 4 years. I have had a chest infection for 3-4 weeks and I honstly felt I'd rather end up in A&E than ever have to look at my doctors face ever again. I had 2 positive ANA tests, positive lupus coagulant test, low end of normal
After being let down time and time again, I've not been to a doctor for about 4 years. I have had a chest infection for 3-4 weeks and I honstly felt I'd rather end up in A&E than ever have to look at my doctors face ever again. I had 2 positive ANA tests, positive lupus coagulant test, low end of normal
MaverickUK
in
Thyroid UK
9 years ago
NDT/T3 only in UK
Hey guys, I'm new here. I have suffered with extreme fatigue for 20 years, mostly mental but also physical. The mental is what stops me living my life though. 4 years ago I had many tests done. I had low end of normal thyroid, positive lupus coagulant test, positive ANA tests, low end of acceptable
Hey guys, I'm new here. I have suffered with extreme fatigue for 20 years, mostly mental but also physical. The mental is what stops me living my life though. 4 years ago I had many tests done. I had low end of normal thyroid, positive lupus coagulant test, positive ANA tests, low end of acceptable
MaverickUK
in
Thyroid UK
9 years ago
Waiting on Diagnosis
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
I have recently been to Rheumatology after being referred by my GP following a positive ANA result. I have now been recalled for more blood tests including Haemochromatosis due to high transferrin saturation. My Cons thought I maybe 'borderline' Lupus and I am a bit confused. My symptoms have included
mctag44
in
LUPUS UK
9 years ago
What does it all mean?
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Hi lovely peeps I'm new to this journey and after some pointers into what's going on??? Doctor is clueless / his words...., Tsh 6.4 Ferritin 25 No thyroid antibodies Weak positive ana Folate 21.8 B12 987 On armor 2 grains - and symtpoms have gotten better (usual symtoms) but still have Tiredness
Natalie286
in
Thyroid UK
9 years ago
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