Migraine aura and Lupus?

Hello all, hope you are feeling well today!

I was wondering if any of you get Migraine with aura along with Lupus?

I was diagnosed with Migraine Aura, after it being ignored by GPs for a long time. I get horrible episodes of light, halos and zig zags, so much I can hardly see. I go slightly numb down my left side and feel very confused, slurring my words and go dizzy. A dull headache appears after. Other times I just get a dull headache. Light always makes it worse, sunlight or even bright bulbs.

All of my doctors seem to think my endometriosis, migraines and my possible Lupus (GP thinks Lupus, positive ANA but waiting to see Rheumatologist) are unrelated. As this is all happening at the exact same time in my body, I find that hard to believe!

Does anyone else with Lupus get migraines, especially with Aura?

Thanks all! xx

12 Replies

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  • Hi Kalmillar,

    Headaches and migraine are common symptoms in lupus. You can read more about this in our Factsheet, 'Lupus and the Brain' here - lupusuk.org.uk/images/pdf/1...

  • I have gone through phases of having these migraines quite frequently. This time last year I actually ended up taking time off work because of them. They stopped as suddenly as they started and I'm still baffled as to what caused them. They stopped once I started taking a calcium channel blocker for Raynaud's. I also have Essential Thrombocythaemia which causes an excess of platelets and can cause this type of headache although haematology didn't think this was the cause of my headaches. The haematologist thought it might have been related to Scleroderma. It's intersting trying to figure out what illness has caused which symptom sometimes.

  • yes, I get migraines too, but not with aura, just dizziness and numbness on my left side of the face. Strangely Paracetamol seems to work to reduce the symptoms. Most migraine-specific drugs have a sulfa component which is not indicated in lupus, so ask your neuro/GP to prescribe one without, if there is an alternative.

  • I don't get numbness on my face, but I did have a strange aura in my left eye. Funny you used that word. It seems the only way to describe it. Happened the other night after my husband gave me a nice back massage. I got up and had this weird circular light from my left eye. Like I couldn't see out of that eye. It scared me, but went away after a few minutes. I remember blinking trying to get something out of my eye, and that didn't work. I have been getting headaches here and there. Can't isolate where they are coming from other than I have been worried about my scarred kidneys and found headaches were a sign of poor kidney function. Just my experience. Headaches can be anything...hope you can find an answer...feel better

  • I get migraine with aura. The first time it really kicked off (migraines every 3 days) was after I tapered down my steroids. My rheumatologist referred me to a neurologist to rule out lupus as a cause. The neurologist said there was no link between migraine and lupus.

    Since then I've had bouts of migraine when my lupus or vasculitis is active.

    Currently I am migraine free, since starting methotrexate one year ago. This reinforces to me that actually there is a link!

  • I hate doctors Lupylass...they really don't know anything. I went to my GP today worried about monitoring my scarred kidneys. He told me even with a positive ANA that doesn't mean lupus, and my kidney report said, "may represent an area of scarring" and the dr now believes my kidneys aren't scarred because of that maybe. OMG! Cortical calcification in the upper pole of the right kidney and a lobular contour to the midpole of the left kidney, and he still says I am fine. Just need to check once a year. No protein or infection. I should have said, you can thank me for figuring it out on my own by taking a cranberry supplement daily to prevent infection and a Natto k enzyme for preventing protein leakage. Geez! Why do I bother seeing a dr?

  • Yes I too get the symptoms you have described , I too have lupus . It usually comes on when under stress or tired. Gp and optician not too concerned about it bus yes very alarming when it comes.

  • Hi, Before I had a diagnosis I used to wake up at night and not be able to see out of one or both eyes. What I could see instead was very bright light, slowly followed by a pin point of normal sight returning, followed by back to normal sight. Also, at this time I got a sudden bright flashes of light in both eyes during the daytime, almost like an explosion. This happened on several occasions. The first time I actually thought it was outside as I was looking out of the window. Since being on several drugs including methotrexate I no longer get this. I didn't get headaches at the same time. However, I am now extremely light sensitive and over exposure causes me to flare. Good Luck x

  • Yes i suffer with these, and loos of control on my left had side, aura mirgraines and tia's oh thd joy of lupus hay x

  • Hi Kalmillar

    I too get migraines with aura, cutting down on cheese and no chocolate have helped them be much less than they used to be!. X

  • I was diagnosed with migraine at the age of 9 and Lupus in my 40s. I assumed that all the symptoms (as you describe) were 'just' migraine. However it's got so bad this year I was referred to the Headache clinic and the Dr said I was describing a mixture of Migraine and Lupus headaches. So I've been for a brain scan. I'm hoping they found one :D

  • Hi KittyIM ,

    I suffer with migraine with aura and have done for years before my diagnoses. Apparently it is a symptom of Lupus .

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