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Hello! First post...
Hi everyone! I've been a lurker for a couple months as I await a follow up with my Gastro; however I decided to write. Back in November, I tested positive for Ama. I was sent a note with this information and asked to follow up in 6 months...no other explanation. I'm also ANA positive and currently
Hi everyone! I've been a lurker for a couple months as I await a follow up with my Gastro; however I decided to write. Back in November, I tested positive for Ama. I was sent a note with this information and asked to follow up in 6 months...no other explanation. I'm also ANA positive and currently
Galintx
in
PBC Foundation
8 years ago
Diagnosis
Hi. I was diagnosed with discoid lupus 3 years ago and had bloods done at that time. was told all was clear until about a year later my gp mentioned I was ANA positive, other things too I would have to look up print out he gave me. Its all very confusing, how am I meant to know if I have anything or
Hi. I was diagnosed with discoid lupus 3 years ago and had bloods done at that time. was told all was clear until about a year later my gp mentioned I was ANA positive, other things too I would have to look up print out he gave me. Its all very confusing, how am I meant to know if I have anything or
mistycat
in
LUPUS UK
8 years ago
Janj
So so worried I can hardly function and wondering if anyone can help alleviate my troubles. I recently had ANA test for lupus by my Dermatoligist to rule out lupus for marks on my face. This has come back with mitochondrial showing and I now await results of AMA. He said he wasn't unduly worried as
So so worried I can hardly function and wondering if anyone can help alleviate my troubles. I recently had ANA test for lupus by my Dermatoligist to rule out lupus for marks on my face. This has come back with mitochondrial showing and I now await results of AMA. He said he wasn't unduly worried as
Olivia1253
in
PBC Foundation
8 years ago
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It's official
Hi everyone - it's official - I have Fibromyalgia. I saw my rheumatologist yesterday who told me that the Lupus has taken a back seat for now with a negative ANA test again, and the 'hurting all over' tenderness/burning/stabbing pains and flu like aches and stiffness are down to Fibro. And the fatigue
Hi everyone - it's official - I have Fibromyalgia. I saw my rheumatologist yesterday who told me that the Lupus has taken a back seat for now with a negative ANA test again, and the 'hurting all over' tenderness/burning/stabbing pains and flu like aches and stiffness are down to Fibro. And the fatigue
Maya23
in
Fibromyalgia Action UK
8 years ago
whats wrong?
I have had lots of blood tests that are out of normal range or positive. I have been pushed from piller to post and seen haematologist, kidney specialist, and now waiting to see a rheumatologist. I know non of my results are very low or high but they are all out of range and lots of them. It seems strange
I have had lots of blood tests that are out of normal range or positive. I have been pushed from piller to post and seen haematologist, kidney specialist, and now waiting to see a rheumatologist. I know non of my results are very low or high but they are all out of range and lots of them. It seems strange
vix66
in
Vasculitis UK
9 years ago
Just found out I have PBC
Hi there I am 36 and I have just found out I have PBC. At this moment in time I am in complete shock and the doctors say don't worry. Ha well easy for them to say. I think I have been in denial as it began in 2013 when I started with a rash on my chest. They took a biopsy and it was confirmed I had hives
Hi there I am 36 and I have just found out I have PBC. At this moment in time I am in complete shock and the doctors say don't worry. Ha well easy for them to say. I think I have been in denial as it began in 2013 when I started with a rash on my chest. They took a biopsy and it was confirmed I had hives
emmawat1
in
PBC Foundation
9 years ago
Quite Confused SLE
Hi, I have been seeing so many different doctors for the past 2.5 years now and always seem to get different opinions. I am constantly fatigued, constant pain im my right shoulder which goes down my arm into my fingers, High Anxiety, have lost interest in all my sporting activities which I use to love
Hi, I have been seeing so many different doctors for the past 2.5 years now and always seem to get different opinions. I am constantly fatigued, constant pain im my right shoulder which goes down my arm into my fingers, High Anxiety, have lost interest in all my sporting activities which I use to love
Hidden
in
LUPUS UK
9 years ago
Scleroderma Remission? Is it possible to do well?
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
Natasha1975
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Scleroderma Remission? Is it possible to Do Well??
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
Natasha1975
in
International Scleroderma Network
9 years ago
Diagnosis Today
I went to the Gastroenterologist today to follow up after my MRI. Here's a little history and the results of today's visit: AST and ALT have been elevated for 2 years Fatigue for many years Bloodwork October 2015: AST 113 (normal 0-40) ALT 170 (normal 0-32) Mitochondrial (M2) Antibody 118.8 (normal
I went to the Gastroenterologist today to follow up after my MRI. Here's a little history and the results of today's visit: AST and ALT have been elevated for 2 years Fatigue for many years Bloodwork October 2015: AST 113 (normal 0-40) ALT 170 (normal 0-32) Mitochondrial (M2) Antibody 118.8 (normal
chynablue
in
PBC Foundation
9 years ago
Raynauds and investigations
Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (52 now) and although pretty severe- have coped well and kept smiling. However recently in hospital with severe kidney infection and now have inflammatory bowel disease and some random joint swelling that comes up, resolves
Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (52 now) and although pretty severe- have coped well and kept smiling. However recently in hospital with severe kidney infection and now have inflammatory bowel disease and some random joint swelling that comes up, resolves
JenniferClaireA
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Viread, peginterferon alfa-2a more effective in combination for reducing HBsAg
http://www.healio.com/hepatology/chronic-hepatitis/news/online/%7B625d1cdc-2b04-42c8-9e2f-9e73931fc5c6%7D/viread-peginterferon-alfa-2a-more-effective-in-combination-for-reducing-hbsag?utm_source=maestro&utm_medium=email&utm_campaign=hepatology%20news
http://www.healio.com/hepatology/chronic-hepatitis/news/online/%7B625d1cdc-2b04-42c8-9e2f-9e73931fc5c6%7D/viread-peginterferon-alfa-2a-more-effective-in-combination-for-reducing-hbsag?utm_source=maestro&utm_medium=email&utm_campaign=hepatology%20news
kcohen
in
HFI Connect - Hepatitis
9 years ago
Help with my labs
Hi everyone, I've had 3 tests now come up positive for Anticardiolipin IGM and Phosphatidylserine AB IGM. I've had so many other tests looking for lupus and other Autoimmune Diseases but the only things coming back positive are these two plus a slight positive ANA (1:40). I've had no clotting incidence
Hi everyone, I've had 3 tests now come up positive for Anticardiolipin IGM and Phosphatidylserine AB IGM. I've had so many other tests looking for lupus and other Autoimmune Diseases but the only things coming back positive are these two plus a slight positive ANA (1:40). I've had no clotting incidence
Crogers
in
Hughes Syndrome APS Forum
9 years ago
Rundown woman syndrome?
I have a consistently positive ANA with a low titer. I have been pregnant 14 times, 10 second trimester miscarriages, 1 late term still birth, and 3 live births. I suffered the HELLP syndrome during the first pregnancy and showed signs of preeclampsia with the next. This included liver and kidneys shutting
I have a consistently positive ANA with a low titer. I have been pregnant 14 times, 10 second trimester miscarriages, 1 late term still birth, and 3 live births. I suffered the HELLP syndrome during the first pregnancy and showed signs of preeclampsia with the next. This included liver and kidneys shutting
Csteam12
in
World According to Lupus
9 years ago
Aches, not pain, feels like flu
Hi, so I may have fibromyalgia or it may be lupus, or both. I did have a positive ANA of 1:160, which isn't that high as I understand it. My dr is leaning more towards fibro, as I don't think I have sensitivity to sun. At any rate I do have a referral to a rheumatologist, but I'm in Canada, and it may
Hi, so I may have fibromyalgia or it may be lupus, or both. I did have a positive ANA of 1:160, which isn't that high as I understand it. My dr is leaning more towards fibro, as I don't think I have sensitivity to sun. At any rate I do have a referral to a rheumatologist, but I'm in Canada, and it may
Fibo81
in
Fibromyalgia Action UK
9 years ago
Grateful for any advice
Dear all, I am in a panic this evening as I think I might have dealt with this in the wrong way. I know that lots of you are really suffering with our bodies getting sick and when I read some of the posts on this site I think that I've had it very easy, but don't know how to deal with it now. I would
Dear all, I am in a panic this evening as I think I might have dealt with this in the wrong way. I know that lots of you are really suffering with our bodies getting sick and when I read some of the posts on this site I think that I've had it very easy, but don't know how to deal with it now. I would
puffyface
in
Thyroid UK
9 years ago
Anti dsdna positive twice now negative
So about 6 months ago i had a really bad infection in me breast i was on antibiotic for 2 months about a month later i woke up with a tight headache and a lot of anxiety and panic attacks they did an mri and showed nothing anyways they did a ana test which came back low positive 1:40 and anti dsdna came
So about 6 months ago i had a really bad infection in me breast i was on antibiotic for 2 months about a month later i woke up with a tight headache and a lot of anxiety and panic attacks they did an mri and showed nothing anyways they did a ana test which came back low positive 1:40 and anti dsdna came
Mariar
in
LUPUS UK
9 years ago
Round and Round we go
Well one would have been forgiven for presuming that the diagnosis of fybromyalgia was the end of the road, but no, the bloods for immunology threw up a little bit of a surprise and the all too rare (in my recent history ) of positive ANA reared it's little head again and has forced a follow up appointment
Well one would have been forgiven for presuming that the diagnosis of fybromyalgia was the end of the road, but no, the bloods for immunology threw up a little bit of a surprise and the all too rare (in my recent history ) of positive ANA reared it's little head again and has forced a follow up appointment
adrian_holland
in
LUpus Patients Understanding and Support
9 years ago
Hashi's and gluten, latest research
I've shortened the paper below.... a lot of people with autoimmune diseases like Hashi's who are not celiac are sensitive to wheat (so possibly gluten too, given the findings on DNA), it finds. This seems to be a distinct group from those with Irritable Bowel Syndrome. Which comes first, the Hashis
I've shortened the paper below.... a lot of people with autoimmune diseases like Hashi's who are not celiac are sensitive to wheat (so possibly gluten too, given the findings on DNA), it finds. This seems to be a distinct group from those with Irritable Bowel Syndrome. Which comes first, the Hashis
Hidden
in
Thyroid UK
9 years ago
Zentiva and Plaquenil
Hello, I'm new to this forum/community and have joined to see if anyone can be more knowledgable than my doctors about the Plaquenil/Zentiva change!!?? Just for a bit of background I was diagnosed with lupus about 6 years ago now, after a spell of being incredibly unwell. My symptoms started off as
Hello, I'm new to this forum/community and have joined to see if anyone can be more knowledgable than my doctors about the Plaquenil/Zentiva change!!?? Just for a bit of background I was diagnosed with lupus about 6 years ago now, after a spell of being incredibly unwell. My symptoms started off as
SarahLuna
in
LUPUS UK
9 years ago
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