Aches, not pain, feels like flu

[Fibo81]

Hi, so I may have fibromyalgia or it may be lupus, or both. I did have a positive ANA of 1:160, which isn't that high as I understand it. My dr is leaning more towards fibro, as I don't think I have sensitivity to sun. At any rate I do have a referral to a rheumatologist, but I'm in Canada, and it may be a long time before I get in to see one. So, I guess we are going with fibro until (if ever) proven otherwise. Just wondering, I wouldn't say I have "pain". Just more aches, like with the flu or after over exercising. Also, I get intermittent night sweats, migraine like headaches, nausea and sometimes sore throat/cough/phlegm type issues. My temperature is rarely high, if anything a bit low or normal, but I'll feel like I'm burning up. Does this sound like fibro to you?? Thanks!

[TheAuthor]

I am so genuinely sorry to read that you are suffering and struggling in this way and I sincerely hope that you can find the answers that you are looking for. I have pasted you a link to our parent sites cache on Fibromyalgia and it goes through the symptoms so I hope that you find this useful:

fmauk.org/information-packs...

I want to genuinely and sincerely wish you all the best of luck with getting a diagnosis one way or the other.

All my hopes and dreams for you

Ken

[Fibo81 in reply to TheAuthor]

Thank you!

[Keeleybee]

Sounds very similar hun. I also describe it as can't get comfortable no matter how I sit or lye? Welcome to the site x x

[milo4 in reply to Keeleybee]

Hi Keeleybee,

Haven't heard from you for a while.

How have you been keeping?

Trace xxx

[Keeleybee in reply to milo4]

Hey trace I no iv not been on much. My bloody back is killing g today so had the day off work. You ok? How you been?

Hugs hun x

[milo4 in reply to Keeleybee]

Oh sorry to hear that.

Yea i am ok, yesterday first day pains were ok maybe it was because I took my tramadol lol.

Just hate taking pills.

Still waiting to get my new nipple lol.

Trace xxx

[Keeleybee in reply to milo4]

Lol

Im the same always try not to take them 😣

Today will consist of me watching telly with my water bottle x

[milo4]

Hi and welcome.

I have fibro, and have the sweats,a sore throat most of the time, and i am in pain everyday, your symptoms sound very much like fibromyalgia.

But a rheumatologist is probably the best one to make diagnoses

Hope you're wait is not to long.

But in the meantime I am sure you will find everyone on here very supportive.

They are a lovely bunch and I would have been lost without them.

Hope you have a lovely day.

Trace xxx

[claralove]

Sound very familiar.. That's pretty much me too.. Hope ur ok x

[MariLiz]

Hi there, it could be lots of things that cause the same symptoms. Have you had your thyroid function tested? Also, B12, ferritin and folate, low levels of these can cause pain and aching in joints and muscles. I have got all three conditions, low thyroid, low B12 and fibromyalgia, so many things overlap and can occur together. The flu-type achiness was worse when my B12 was very low. Good luck with getting some help. MariLiz

[Zita71 in reply to MariLiz]

You and me both mariliz I have all three to X X

[MariLiz in reply to Zita71]

I sympathise totally! Maybe we should start a club? MariLiz x

[Fibo81 in reply to MariLiz]

Yeah, I've had a lot of blood work done and Thyroid, Iron, B12 and Folate are all normal. Would have made sense if it were B12 as for no apparent reason my blood cells are enlarged which would point to a B12 deficiency...but nope, just a random anomaly it would seem. My GP is quite confident it's fibro, but has put in a referral to a rheumatologist to make sure it isn't Lupus (as many symptoms overlap, and I also had a positive ANA test in the pattern type most indicative of Lupus).... So who knows! I will have say a week where I feel pretty good, and I start to wonder if I'm just blowing things out of proportion, but then it comes back and I remember how sick I feel. I guess it's about enjoying the good and riding out the rough patches.

[MariLiz in reply to Fibo81]

Hi again, definitely ask for copies of your blood test results. Often the doctors say we are "in range", but things are far from good. Whatever is in your test result, doesn't show how much is reaching your cells, and large blood cells are often a Low B12 sign. I don't know much about Lupus, but my sister in law was recently diagnosed with it. We meet up for lunch on Sunday, so I will quiz her about blood cell size! Best wishes MariLiz

[Fibo81 in reply to MariLiz]

Ok thanks!

[MariLiz in reply to Fibo81]

I spoke to my sister in law at lunch today, she knows nothing about increased size in blood cells, although she will be seeing her haematologist again in the next few weeks. She has been told that her platelets become "sticky" and have a tendency to clump together. They can't understand yet why her blood test results are not consistent. Hope you get the help you need. Best wishes MariLiz

[Fibo81 in reply to MariLiz]

Yeah mine couldn't figure out my enlarged cells either, and it appeared like they were destroying and reproducing a bit too fast, but not anything the hematologist was too concerned about - they said to review again in a year and make sure nothing has developed further. Wonder if it's connected or just something random that doesn't mean much of anything? The body sure is mysterious!

[rosewine]

Welcome to the forum it us lovely to have so many people from across the pond joining us. Hope you dont have to wait for an official diagnosis us not too long.

Yes unfortunately that sounds just like me. I think some of my other different pains is caused by my osteo. Ken has given you a very good link for more information and do ask away if you have any questions and I am sure someone will try and help.x

[mimiwen]

Hi Fibo81, good to meet you!

I have all the symptoms you describe all the time, so it does sound like fibro. However fibro shares so many symptoms with other conditions and many of us have more than one illness.

I hope you get a definite diagnosis and some effective help soon.

[Fibroman]

Sounds like early stages of Fibro. The pain will come. I started off exactly as you described. I would like to say it becomes better and it does but after it becomes much worse. The flare ups are triggered by stress. Took my doctors 3 years to give me a name for my condition and it takes many more years before you accept it and learn to live with it. Hope you feel better soon, try not to stress as it will trigger flare ups.