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Rashes
I was wondering if lupus rashes are found in the skin fold areas of the body as well as on the trunk. The docs have prescribed dactocort but the rashes havn't gone after 4 months and there are a few more coming. I'm not dx but I've had 2 low level positive ANA results in the past 5 years. The rashes
I was wondering if lupus rashes are found in the skin fold areas of the body as well as on the trunk. The docs have prescribed dactocort but the rashes havn't gone after 4 months and there are a few more coming. I'm not dx but I've had 2 low level positive ANA results in the past 5 years. The rashes
dogtired
in
LUPUS UK
8 years ago
Comfort? :/ Ana positive then negative..
Hi everyone, my Gp had ordered some blood test including Ana which came back positive. So she referred me to a Rheumy, I seen my Rheumy yesterday and got my blood results back today from what I can read online from the results is that my Ana is now negative? I don't understand she did other test like
Hi everyone, my Gp had ordered some blood test including Ana which came back positive. So she referred me to a Rheumy, I seen my Rheumy yesterday and got my blood results back today from what I can read online from the results is that my Ana is now negative? I don't understand she did other test like
Whelp529
in
LUPUS UK
8 years ago
Hi there, I'm new here and confused 🙄
Hi there, I've just joined this group and my story goes like this, my dad had full blown lupus but sadly passed away 16 years ago at the age of 79, but in 2002 I was diagnosed with undifferentiated connective tissue disease, they didn't know then if and what it would become, I managed to have a normal
Hi there, I've just joined this group and my story goes like this, my dad had full blown lupus but sadly passed away 16 years ago at the age of 79, but in 2002 I was diagnosed with undifferentiated connective tissue disease, they didn't know then if and what it would become, I managed to have a normal
ExtremeDuvetDaze
in
LUPUS UK
8 years ago
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ANA test results
I have been told for about 18 months now I have SLE, but I am confused I think I was told the ANA for a normal person should be between 0 - 9. Mine is currently 20, the lowest it's been is 17 and the highest 25. My consultanct said it does excite him till it reaches 100. Can anyone explain this all to
I have been told for about 18 months now I have SLE, but I am confused I think I was told the ANA for a normal person should be between 0 - 9. Mine is currently 20, the lowest it's been is 17 and the highest 25. My consultanct said it does excite him till it reaches 100. Can anyone explain this all to
Louisa65
in
LUPUS UK
8 years ago
1st Rheumatology Appointment?
Hey everyone, so Monday I have my first rheumatology appointment. My doctor did a blood test and found that I'm positive ANA. So she referred me to a Rheum doctor. Im nervous and curious to know what will happen. Had anyone been to a Rheum doctor and what was there first experience. Did you get blood
Hey everyone, so Monday I have my first rheumatology appointment. My doctor did a blood test and found that I'm positive ANA. So she referred me to a Rheum doctor. Im nervous and curious to know what will happen. Had anyone been to a Rheum doctor and what was there first experience. Did you get blood
Whelp529
in
LUPUS UK
8 years ago
ANA positive?
A little confused about my ANA test. Result says positive. Flag for abnormal. Reference interval - negative? Does tgis mean it's positive? BC my dr didn't explain and she just kind of brushed me off...again. Rashes still pop up randomly every day. And tired. So tired of being tired. : (
A little confused about my ANA test. Result says positive. Flag for abnormal. Reference interval - negative? Does tgis mean it's positive? BC my dr didn't explain and she just kind of brushed me off...again. Rashes still pop up randomly every day. And tired. So tired of being tired. : (
Ratana21
in
LUPUS UK
8 years ago
Muscle wasting hands and feet, please help!
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Patricia2015
in
LUPUS UK
8 years ago
At Last.... my results
These are the results from October which the ENT consultant requested. She referred me to Endo and he has refused to see me because bloods are fine TSH 6.2 (REF 0.2-5) FREE T4 11.8 (REF 9-24) Thyroid Peroxidase TPO
These are the results from October which the ENT consultant requested. She referred me to Endo and he has refused to see me because bloods are fine TSH 6.2 (REF 0.2-5) FREE T4 11.8 (REF 9-24) Thyroid Peroxidase TPO
debbymcc60
in
Thyroid UK
8 years ago
Positive AMA, then negative?
Six months ago, my AMA was positive (25.6). I just recently saw the liver specialist, who reran my blood work and just posted my AMA as negative. My follow up is in 3 weeks, so I'll have to ask the doc about it then. (I am also positive ANA, so I'm not sure that it was a lab error or not since I have
Six months ago, my AMA was positive (25.6). I just recently saw the liver specialist, who reran my blood work and just posted my AMA as negative. My follow up is in 3 weeks, so I'll have to ask the doc about it then. (I am also positive ANA, so I'm not sure that it was a lab error or not since I have
Galintx
in
PBC Foundation
8 years ago
What to do?
Hi again, i joined a few months ago after testing positive to an ANA test. My result was 1:640 homogenous. My anti dna test was negative but recently my inflammatory markers were raised and my Dr thinks i have a connective tissue disease so she wants to start me on a course of Hydroxychloroquine. The
Hi again, i joined a few months ago after testing positive to an ANA test. My result was 1:640 homogenous. My anti dna test was negative but recently my inflammatory markers were raised and my Dr thinks i have a connective tissue disease so she wants to start me on a course of Hydroxychloroquine. The
Kate16
in
LUPUS UK
8 years ago
Mrs Miserable
Hi, I'm new to this site and it's taken me a week or so to summon the courage to actually write something. I started to feel unwell last October, it started with sharp pains in my joints, sometimes the pains just spread throughout my whole body, I wondered what was happening to me, I may be 47 but I'm
Hi, I'm new to this site and it's taken me a week or so to summon the courage to actually write something. I started to feel unwell last October, it started with sharp pains in my joints, sometimes the pains just spread throughout my whole body, I wondered what was happening to me, I may be 47 but I'm
DLG682
in
LUPUS UK
8 years ago
Diagnosis confirmed
Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested for SLE? As he'd read my notes, I said no although my sister has had lupus for many yrs. I saw my gp who referred me to a rheumatologist who clinically diagnosed me but wanted me have heaps of blood tests. Just got a copy
Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested for SLE? As he'd read my notes, I said no although my sister has had lupus for many yrs. I saw my gp who referred me to a rheumatologist who clinically diagnosed me but wanted me have heaps of blood tests. Just got a copy
ikandee
in
LUPUS UK
8 years ago
Has anyone hear got TNF receptor associated periodic syndrome.
Had my routine Lupus consultant app today and was telling her how I have been and the usual things as we do..and well she thinks as well as SLE, serousitis etc etc that i may have a condition called TNF receptor associated periodic syndrome they call it TRAPS for short. She's re doing my ANA test as
Had my routine Lupus consultant app today and was telling her how I have been and the usual things as we do..and well she thinks as well as SLE, serousitis etc etc that i may have a condition called TNF receptor associated periodic syndrome they call it TRAPS for short. She's re doing my ANA test as
willowwag
in
LUPUS UK
8 years ago
PBC
Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liver. Been on Urso since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs
Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liver. Been on Urso since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs
Lekkerbek
in
PBC Foundation
8 years ago
Still no dx
I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other tests since I was having so much joint pain and a slight chest and upper back rash. I've tested positive for Lupus Anticoagulant, beta 2 glycoprotein
I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other tests since I was having so much joint pain and a slight chest and upper back rash. I've tested positive for Lupus Anticoagulant, beta 2 glycoprotein
mariannagowens
in
Hughes Syndrome APS Forum
8 years ago
im so unhappy with rheumotologist
I have been suffering symptons for long time and finally I was told my a neurologist that my immune system might be the problem he ran some tests of which I didn't understand at the time, they came back as ANA positive twice, he then referred mt o see a rheumatologist to have it all explained to me and
I have been suffering symptons for long time and finally I was told my a neurologist that my immune system might be the problem he ran some tests of which I didn't understand at the time, they came back as ANA positive twice, he then referred mt o see a rheumatologist to have it all explained to me and
lmrd
in
LUPUS UK
8 years ago
How did you get diagnosed?
Hi, I'm still in the diagnosis process. AMA and ANA positive and symptomatic. I'm just wondering how did others get diagnosed? What investigations did you have? I had an MRI but not had results yet. Thanks, Laura
Hi, I'm still in the diagnosis process. AMA and ANA positive and symptomatic. I'm just wondering how did others get diagnosed? What investigations did you have? I had an MRI but not had results yet. Thanks, Laura
Lauralee851
in
PBC Foundation
8 years ago
FibroScan result
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Hi my FibroScan result Is 6.1kPa CAP 194 Blood test mildly elevated bilirubin, Alt. ANA positive 1/80 with smooth muscle antibody 1/40 she does not have active autoimmune hepatitis this will need monitoring What's all this numbers mean? I have pain in my upper right side for 3years Sorry for the long
Amena1610
in
British Liver Trust
8 years ago
Kenalog injection and trying without hydroxy now..
Hi, just wondering how people get on with kenalog injections? I was given one before xmas. Found not a great deal of difference from it, I have reduced my tramodol intake though. It did seem Up set my bowels, bad constipation to start with. How long should it last too? Was given 80mg Rheumy appoint
Hi, just wondering how people get on with kenalog injections? I was given one before xmas. Found not a great deal of difference from it, I have reduced my tramodol intake though. It did seem Up set my bowels, bad constipation to start with. How long should it last too? Was given 80mg Rheumy appoint
Gizmok9
in
LUPUS UK
8 years ago
A study material in respect of LCHF
It is believed that low-carbohydrate diets work best in reducing weight when producing ketosis.1 We report on a 51-year-old white woman who does not have diabetes but had ketoacidosis while consuming a “no-carbohydrate” diet. There was no family history of diabetes, and she was not currently taking any
It is believed that low-carbohydrate diets work best in reducing weight when producing ketosis.1 We report on a 51-year-old white woman who does not have diabetes but had ketoacidosis while consuming a “no-carbohydrate” diet. There was no family history of diabetes, and she was not currently taking any
brittomonier
in
Diabetes India
8 years ago
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