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Muscle wasting hands and feet, please help!
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Dear fellow lupies(alike), Like you know I have since 2 years a diagnosis of UCTD (undifferentiated connective tissue disease). My rheumatologist prescribed Plaquenil 200mg per day. Some of my symptoms are reduced, but for over a year I have increasingly suffered from muscle weakness, muscle atrophy
Patricia2015
in
LUPUS UK
8 years ago
Anti-anxiety treatment
Hi all, Posted last week about my anxiety issues. Although I accept there are some dietary factors in my IBS I think anxiety is my major trigger. Went out last night and had a few drinks and a curry but because I have planned to stay home all day today I've not experienced any symptoms at all. The
Hi all, Posted last week about my anxiety issues. Although I accept there are some dietary factors in my IBS I think anxiety is my major trigger. Went out last night and had a few drinks and a curry but because I have planned to stay home all day today I've not experienced any symptoms at all. The
littlemissbee
in
IBS Network
8 years ago
Starting PSA was 5,006.4
In November 2013 I was in a Northern California emergency room with severe lower back pain at age 65. Turned out I had previously undiagnosed, widespread metastatic prostate cancer. PSA was 5,006.4, with testosterone level of 908, and Alkaline Phosphatase around 424. Nuclear medicine bone scan lighted
In November 2013 I was in a Northern California emergency room with severe lower back pain at age 65. Turned out I had previously undiagnosed, widespread metastatic prostate cancer. PSA was 5,006.4, with testosterone level of 908, and Alkaline Phosphatase around 424. Nuclear medicine bone scan lighted
ctarleton
in
Advanced Prostate Cancer
8 years ago
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New to epilepsy/seizures.
Hi I'd like to tell a bit of my story and grateful for any advice or feedback. I am a Community Mental Health nurse and driving is close to an essential requirement. I suffered a severe head injury around age 20. I'm now 49 and qualified as a nurse in 2005. I do have a long history of anxiety and depression
Hi I'd like to tell a bit of my story and grateful for any advice or feedback. I am a Community Mental Health nurse and driving is close to an essential requirement. I suffered a severe head injury around age 20. I'm now 49 and qualified as a nurse in 2005. I do have a long history of anxiety and depression
Pauley
in
Epilepsy Research Institute
8 years ago
confused thyriod
last week tests where T4 11.0 pmol/L (7.0-16.0) THS 27.5 mU/L (0.3-5.0) H this weeks where T4 10.0 pml/L (7.0-16.0) THS 19.1mU/L (0.3-5.0) H iv no energy. flutters in neck/throat. tight lump feeling in throat. anxity etc.. dr said she sending me to specialest but that can take months. she says my
last week tests where T4 11.0 pmol/L (7.0-16.0) THS 27.5 mU/L (0.3-5.0) H this weeks where T4 10.0 pml/L (7.0-16.0) THS 19.1mU/L (0.3-5.0) H iv no energy. flutters in neck/throat. tight lump feeling in throat. anxity etc.. dr said she sending me to specialest but that can take months. she says my
star1975
in
Thyroid UK
8 years ago
Back again!
Hi, I was on here a few years back as 'inkedup' -unfortunately due to some online bulling i came off. I have Scleroderma, Sjogren's, Hypothyroidism and osteoarthritis. I,ve been AMA pos for many years, but no one wanted to help me, and as i have 3 other autoimmune probs, i knew i was heading for issues
Hi, I was on here a few years back as 'inkedup' -unfortunately due to some online bulling i came off. I have Scleroderma, Sjogren's, Hypothyroidism and osteoarthritis. I,ve been AMA pos for many years, but no one wanted to help me, and as i have 3 other autoimmune probs, i knew i was heading for issues
MissusTee
in
PBC Foundation
8 years ago
At Last.... my results
These are the results from October which the ENT consultant requested. She referred me to Endo and he has refused to see me because bloods are fine TSH 6.2 (REF 0.2-5) FREE T4 11.8 (REF 9-24) Thyroid Peroxidase TPO
These are the results from October which the ENT consultant requested. She referred me to Endo and he has refused to see me because bloods are fine TSH 6.2 (REF 0.2-5) FREE T4 11.8 (REF 9-24) Thyroid Peroxidase TPO
debbymcc60
in
Thyroid UK
8 years ago
First blood draw after diagnosis, and pain...
Hi friends...so I have good news, but troubling symptoms. First the good news. 12/18/2015 (Pre-diagnosis) Alt 116, AST 89, Alk Phos 388; GGt 165, AMA 158 (!) On January 4, 2016 my decaying gallbladder was removed, and liver biopsied, confirming pbc (stage 2, with some stage 3 inflammation. still confused
Hi friends...so I have good news, but troubling symptoms. First the good news. 12/18/2015 (Pre-diagnosis) Alt 116, AST 89, Alk Phos 388; GGt 165, AMA 158 (!) On January 4, 2016 my decaying gallbladder was removed, and liver biopsied, confirming pbc (stage 2, with some stage 3 inflammation. still confused
JennyCville
in
PBC Foundation
8 years ago
Positive AMA, then negative?
Six months ago, my AMA was positive (25.6). I just recently saw the liver specialist, who reran my blood work and just posted my AMA as negative. My follow up is in 3 weeks, so I'll have to ask the doc about it then. (I am also positive ANA, so I'm not sure that it was a lab error or not since I have
Six months ago, my AMA was positive (25.6). I just recently saw the liver specialist, who reran my blood work and just posted my AMA as negative. My follow up is in 3 weeks, so I'll have to ask the doc about it then. (I am also positive ANA, so I'm not sure that it was a lab error or not since I have
Galintx
in
PBC Foundation
8 years ago
What to do?
Hi again, i joined a few months ago after testing positive to an ANA test. My result was 1:640 homogenous. My anti dna test was negative but recently my inflammatory markers were raised and my Dr thinks i have a connective tissue disease so she wants to start me on a course of Hydroxychloroquine. The
Hi again, i joined a few months ago after testing positive to an ANA test. My result was 1:640 homogenous. My anti dna test was negative but recently my inflammatory markers were raised and my Dr thinks i have a connective tissue disease so she wants to start me on a course of Hydroxychloroquine. The
Kate16
in
LUPUS UK
8 years ago
Mrs Miserable
Hi, I'm new to this site and it's taken me a week or so to summon the courage to actually write something. I started to feel unwell last October, it started with sharp pains in my joints, sometimes the pains just spread throughout my whole body, I wondered what was happening to me, I may be 47 but I'm
Hi, I'm new to this site and it's taken me a week or so to summon the courage to actually write something. I started to feel unwell last October, it started with sharp pains in my joints, sometimes the pains just spread throughout my whole body, I wondered what was happening to me, I may be 47 but I'm
DLG682
in
LUPUS UK
8 years ago
Peter
As you know, Pete has sarcoidosis and copd. He also has a back problem that we hoped could be corrected with a spinal cord stimulator. Sadly that does not appear to have worked and it's back to Southampton on Friday. Not sure what can be said or done but just have to wait and see. It is possible that
As you know, Pete has sarcoidosis and copd. He also has a back problem that we hoped could be corrected with a spinal cord stimulator. Sadly that does not appear to have worked and it's back to Southampton on Friday. Not sure what can be said or done but just have to wait and see. It is possible that
sassy59
in
Lung Conditions Community Forum
8 years ago
Diagnosis confirmed
Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested for SLE? As he'd read my notes, I said no although my sister has had lupus for many yrs. I saw my gp who referred me to a rheumatologist who clinically diagnosed me but wanted me have heaps of blood tests. Just got a copy
Hi, while in hospital for another issue, a surgeon asked if I'd ever been tested for SLE? As he'd read my notes, I said no although my sister has had lupus for many yrs. I saw my gp who referred me to a rheumatologist who clinically diagnosed me but wanted me have heaps of blood tests. Just got a copy
ikandee
in
LUPUS UK
8 years ago
Has anyone hear got TNF receptor associated periodic syndrome.
Had my routine Lupus consultant app today and was telling her how I have been and the usual things as we do..and well she thinks as well as SLE, serousitis etc etc that i may have a condition called TNF receptor associated periodic syndrome they call it TRAPS for short. She's re doing my ANA test as
Had my routine Lupus consultant app today and was telling her how I have been and the usual things as we do..and well she thinks as well as SLE, serousitis etc etc that i may have a condition called TNF receptor associated periodic syndrome they call it TRAPS for short. She's re doing my ANA test as
willowwag
in
LUPUS UK
8 years ago
PBC
Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liver. Been on Urso since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs
Hi, I've been diagnosed in 2014, stage 2 Pbc, AMA and ANA positive and fatty liver. Been on Urso since then and I have been going very well, but out of no where, I've had a set back where I am extremely tired, pain in bones, itching flared up again. Does it work that way that you have like set backs
Lekkerbek
in
PBC Foundation
8 years ago
Still no dx
I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other tests since I was having so much joint pain and a slight chest and upper back rash. I've tested positive for Lupus Anticoagulant, beta 2 glycoprotein
I've been seeing a rheumatologist for about 4 months, after my General Dr. Referred me. She did bloodwork that revealed positive ANA of 1:320, among other tests since I was having so much joint pain and a slight chest and upper back rash. I've tested positive for Lupus Anticoagulant, beta 2 glycoprotein
mariannagowens
in
Hughes Syndrome APS Forum
8 years ago
St Johns Wort
Anybody on this should check BBC web site top stories. Some Batches produced in2013 and to be used by May-August this year contain toxin . Brands were Asda ,Superdrug and HRI Good Mood. Batch numbers and details are given on the BBC site.
Anybody on this should check BBC web site top stories. Some Batches produced in2013 and to be used by May-August this year contain toxin . Brands were Asda ,Superdrug and HRI Good Mood. Batch numbers and details are given on the BBC site.
Treepie
in
Thyroid UK
9 years ago
Supplements vs drugs
Hi everyone I hope you are having a decent Sunday. I was diagnosed with FM in January. My consultant has recommended certain drugs (amyltriptyline and Duloxetine) but I want to try out a natural approach first so see if this works. I'm so sensitive to drugs that I want to avoid taking a daily dose of
Hi everyone I hope you are having a decent Sunday. I was diagnosed with FM in January. My consultant has recommended certain drugs (amyltriptyline and Duloxetine) but I want to try out a natural approach first so see if this works. I'm so sensitive to drugs that I want to avoid taking a daily dose of
Maya23
in
Fibromyalgia Action UK
9 years ago
im so unhappy with rheumotologist
I have been suffering symptons for long time and finally I was told my a neurologist that my immune system might be the problem he ran some tests of which I didn't understand at the time, they came back as ANA positive twice, he then referred mt o see a rheumatologist to have it all explained to me and
I have been suffering symptons for long time and finally I was told my a neurologist that my immune system might be the problem he ran some tests of which I didn't understand at the time, they came back as ANA positive twice, he then referred mt o see a rheumatologist to have it all explained to me and
lmrd
in
LUPUS UK
9 years ago
Brachial plexus pain
Due to a first rib resection a few years ago, I've developed neuropathy in my brachial plexus. Waiting for an mri then see what happens. If treatments fail, I've to get my spinal cord stimulator extended up to my neck!! Oh the joys of even more chronic pain argh!!!!!!
Due to a first rib resection a few years ago, I've developed neuropathy in my brachial plexus. Waiting for an mri then see what happens. If treatments fail, I've to get my spinal cord stimulator extended up to my neck!! Oh the joys of even more chronic pain argh!!!!!!
Hidden
in
Pain Concern
9 years ago
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