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Janj
So so worried I can hardly function and wondering if anyone can help alleviate my troubles. I recently had ANA test for lupus by my Dermatoligist to rule out lupus for marks on my face. This has come back with mitochondrial showing and I now await results of AMA. He said he wasn't unduly worried as
So so worried I can hardly function and wondering if anyone can help alleviate my troubles. I recently had ANA test for lupus by my Dermatoligist to rule out lupus for marks on my face. This has come back with mitochondrial showing and I now await results of AMA. He said he wasn't unduly worried as
Olivia1253
in
PBC Foundation
9 years ago
It's official
Hi everyone - it's official - I have Fibromyalgia. I saw my rheumatologist yesterday who told me that the Lupus has taken a back seat for now with a negative ANA test again, and the 'hurting all over' tenderness/burning/stabbing pains and flu like aches and stiffness are down to Fibro. And the fatigue
Hi everyone - it's official - I have Fibromyalgia. I saw my rheumatologist yesterday who told me that the Lupus has taken a back seat for now with a negative ANA test again, and the 'hurting all over' tenderness/burning/stabbing pains and flu like aches and stiffness are down to Fibro. And the fatigue
Maya23
in
Fibromyalgia Action UK
9 years ago
Happy New Year, bloods update, discussion with GP and honesty time.
Good afternoon everyone. I hope you are all as healthy as possible and had a pleasant Christmas and New Year period. The last time I posted was about three months ago when I had had a full liver panel done and, really, everyone reassured me that my liver was fine - and I finally accepted that. I went
Good afternoon everyone. I hope you are all as healthy as possible and had a pleasant Christmas and New Year period. The last time I posted was about three months ago when I had had a full liver panel done and, really, everyone reassured me that my liver was fine - and I finally accepted that. I went
GavBelfast
in
British Liver Trust
9 years ago
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whats wrong?
I have had lots of blood tests that are out of normal range or positive. I have been pushed from piller to post and seen haematologist, kidney specialist, and now waiting to see a rheumatologist. I know non of my results are very low or high but they are all out of range and lots of them. It seems strange
I have had lots of blood tests that are out of normal range or positive. I have been pushed from piller to post and seen haematologist, kidney specialist, and now waiting to see a rheumatologist. I know non of my results are very low or high but they are all out of range and lots of them. It seems strange
vix66
in
Vasculitis UK
9 years ago
Spinal cord stimulator trial update
Hi Folks, Thought I'd update as its been a roller coaster of emotion over the last week or so. When I got to hospital I was told I was having a tunnelled trial, where the leads for permanent implant are tunnelled in the opposite side of the lower back to where the permanent implant would be sited (
Hi Folks, Thought I'd update as its been a roller coaster of emotion over the last week or so. When I got to hospital I was told I was having a tunnelled trial, where the leads for permanent implant are tunnelled in the opposite side of the lower back to where the permanent implant would be sited (
Curlygirl54
in
Pain Concern
9 years ago
Sudden increase in sgpt and sgot
Hi I was feeling itching in my whole body and notice that I passing yellow coloured Turin for passed few days and as m diabetic I thought I will go for blood check then after blood check I found my sugar level and sgpt/shot and bilirubin total and alkaline phosphatase was in higher side I am worried
Hi I was feeling itching in my whole body and notice that I passing yellow coloured Turin for passed few days and as m diabetic I thought I will go for blood check then after blood check I found my sugar level and sgpt/shot and bilirubin total and alkaline phosphatase was in higher side I am worried
mihir_123
in
British Liver Trust
9 years ago
Compression Fracture of L1 vertebrae and chronic back pain
Hello, first time posting here. Has anyone had ongoing severe chronic back pain from breaking their back? Four years ago a wave at the beach dumped me into the ground breaking my back (L1). It was classed as stable so I was put in a back brace for 5 months. It was excruciating pain. Even though my spinal
Hello, first time posting here. Has anyone had ongoing severe chronic back pain from breaking their back? Four years ago a wave at the beach dumped me into the ground breaking my back (L1). It was classed as stable so I was put in a back brace for 5 months. It was excruciating pain. Even though my spinal
LiaG
in
Pain Concern
9 years ago
Effexor or buspirone or neither??
Who has experience with medication? what worked and what didn't work for you? I also have the option of St johns wort... I don't know which route to go and am terrified of all of them especially after a bad experience with Zoloft. Any suggestions would be greatly appreciated... thanks
Who has experience with medication? what worked and what didn't work for you? I also have the option of St johns wort... I don't know which route to go and am terrified of all of them especially after a bad experience with Zoloft. Any suggestions would be greatly appreciated... thanks
tdawgg123
in
Anxiety Support
9 years ago
Just found out I have PBC
Hi there I am 36 and I have just found out I have PBC. At this moment in time I am in complete shock and the doctors say don't worry. Ha well easy for them to say. I think I have been in denial as it began in 2013 when I started with a rash on my chest. They took a biopsy and it was confirmed I had hives
Hi there I am 36 and I have just found out I have PBC. At this moment in time I am in complete shock and the doctors say don't worry. Ha well easy for them to say. I think I have been in denial as it began in 2013 when I started with a rash on my chest. They took a biopsy and it was confirmed I had hives
emmawat1
in
PBC Foundation
9 years ago
Quite Confused SLE
Hi, I have been seeing so many different doctors for the past 2.5 years now and always seem to get different opinions. I am constantly fatigued, constant pain im my right shoulder which goes down my arm into my fingers, High Anxiety, have lost interest in all my sporting activities which I use to love
Hi, I have been seeing so many different doctors for the past 2.5 years now and always seem to get different opinions. I am constantly fatigued, constant pain im my right shoulder which goes down my arm into my fingers, High Anxiety, have lost interest in all my sporting activities which I use to love
Hidden
in
LUPUS UK
9 years ago
Southampton
Pete will have his spinal cord stimulator lead adjusted tomorrow afternoon so l am really hoping it works this time. Don't need to be there till 11 which is ok. Take care all. Xxx
Pete will have his spinal cord stimulator lead adjusted tomorrow afternoon so l am really hoping it works this time. Don't need to be there till 11 which is ok. Take care all. Xxx
sassy59
in
Lung Conditions Community Forum
9 years ago
Spinal Cord Stimulator update
Well, this thing that has been on the horizon for such a long time now is right in front of my nose! I'll be going into St Thomas' Thursday afternoon to have the trial stimulator fitted on Friday. It's a two week trial of a Nevro high frequency, which means there will be no buzzing or tingling - which
Well, this thing that has been on the horizon for such a long time now is right in front of my nose! I'll be going into St Thomas' Thursday afternoon to have the trial stimulator fitted on Friday. It's a two week trial of a Nevro high frequency, which means there will be no buzzing or tingling - which
Curlygirl54
in
Pain Concern
9 years ago
Scleroderma Remission? Is it possible to do well?
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
Natasha1975
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
Scleroderma Remission? Is it possible to Do Well??
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
I am reading that many times the first 3-5 years are the most aggressive with Systemic Scleroderma. And that many times the disease "burns itself out" or goes into remission. Anyone experience this? Would love to hear positive stories. I have no skin involvement, an arrhythmia from two years ago for
Natasha1975
in
International Scleroderma Network
9 years ago
Hypothyroid/AIH
Hi, my son been tested for AIH at the minute...Here are blood results from 05/11/15 ALT.... 70 (7*56) ALP......74 (44-147) Bilirubin 16 SGPT....... 24 (7-56) Feritin 40 (24-336) B12 541 (180-914) Folate 4.3...(4.5-45.3) TSH 5.09.....(.05-5.0) 05/11/15 TSH 4.02.....(.05-5.0) 28/10/15 gastro doc wants
Hi, my son been tested for AIH at the minute...Here are blood results from 05/11/15 ALT.... 70 (7*56) ALP......74 (44-147) Bilirubin 16 SGPT....... 24 (7-56) Feritin 40 (24-336) B12 541 (180-914) Folate 4.3...(4.5-45.3) TSH 5.09.....(.05-5.0) 05/11/15 TSH 4.02.....(.05-5.0) 28/10/15 gastro doc wants
dzmum
in
Thyroid UK
9 years ago
depression?
I am considering taking st johns wort. I cannot motivate myself and have felt like it for a couple of months but it is becoming harder to even get dressed on a morning, when I say morning I cannot get out of bed before 11am even though I have had a good nights sleep. Daily tasks seem like mountains
I am considering taking st johns wort. I cannot motivate myself and have felt like it for a couple of months but it is becoming harder to even get dressed on a morning, when I say morning I cannot get out of bed before 11am even though I have had a good nights sleep. Daily tasks seem like mountains
rommelandremus
in
Gluten Free Guerrillas
9 years ago
Diagnosis Today
I went to the Gastroenterologist today to follow up after my MRI. Here's a little history and the results of today's visit: AST and ALT have been elevated for 2 years Fatigue for many years Bloodwork October 2015: AST 113 (normal 0-40) ALT 170 (normal 0-32) Mitochondrial (M2) Antibody 118.8 (normal
I went to the Gastroenterologist today to follow up after my MRI. Here's a little history and the results of today's visit: AST and ALT have been elevated for 2 years Fatigue for many years Bloodwork October 2015: AST 113 (normal 0-40) ALT 170 (normal 0-32) Mitochondrial (M2) Antibody 118.8 (normal
chynablue
in
PBC Foundation
9 years ago
Anxiety and depression after father passed away. St. John's wort! Can someone please give me some tips on this herbal supplement.
Hey guys, anyone use St. John's wort and can you advise. Thanks
Hey guys, anyone use St. John's wort and can you advise. Thanks
SamSik1
in
Anxiety Support
9 years ago
Spinal Cord Stimulator update
Well folks, my decision day with the consultant at St Thomas' is done - I have signed consent form for trial surgery 😁 I met with different Consultant than the one who started me on the assessment process for Spinal Cord Stimulation back in June, but the one yesterday who made the decision with me to
Well folks, my decision day with the consultant at St Thomas' is done - I have signed consent form for trial surgery 😁 I met with different Consultant than the one who started me on the assessment process for Spinal Cord Stimulation back in June, but the one yesterday who made the decision with me to
Curlygirl54
in
Pain Concern
9 years ago
Raynauds and investigations
Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (52 now) and although pretty severe- have coped well and kept smiling. However recently in hospital with severe kidney infection and now have inflammatory bowel disease and some random joint swelling that comes up, resolves
Hi everyone. New to this.. I've had a diagnosis of Raynauds for over 30 years (52 now) and although pretty severe- have coped well and kept smiling. However recently in hospital with severe kidney infection and now have inflammatory bowel disease and some random joint swelling that comes up, resolves
JenniferClaireA
in
Scleroderma & Raynaud's UK (SRUK)
9 years ago
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