confused thyriod: last week tests where T4 11.... - Thyroid UK

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confused thyriod

star1975 profile image
30 Replies

last week tests where

T4 11.0 pmol/L (7.0-16.0)

THS 27.5 mU/L (0.3-5.0) H

this weeks where

T4 10.0 pml/L (7.0-16.0)

THS 19.1mU/L (0.3-5.0) H

iv no energy. flutters in neck/throat.

tight lump feeling in throat. anxity etc.. dr said she sending me to specialest but that can take months.

she says my thyriod is hypo but iv symptems of hyper.

help does anyone have a clue. only thing i take is st johns wort

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star1975
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30 Replies
whispers profile image
whispers

why has your doctor not started you on medication.p? and you need to read up on st johns wort and hypothyrodism. Have you had all the bloods done for example, iron, ferratin, vit d, b12 etc?

Someine will be along with more advice who knows best how to guide you through this mine filed :-)

dee47 profile image
dee47

You can't take St John's wart with a thyroid problem. It will make you ill xx

star1975 profile image
star1975 in reply todee47

i had no idea. i felt my anxity going threw roof so hadto try something.

Nixbex profile image
Nixbex

A mixture of symptoms points to Hashimoto's. Don't take St John's Wort. I'd ask the same question, why no meds? If the Dr isn't going to treat you, maybe go to a Health Food shop and get some thyroid support in the mean time?

greygoose profile image
greygoose in reply toNixbex

But Don't get one that contains iodine!!!

HLAB35 profile image
HLAB35

Presumably you thought you had mild depression / seasonal affected disorder which is why you were taking the St John's Wort - I can relate!

Looking at your blood tests S.J.W is not the answer and it will be masking the true symptoms of a thyroid which appears to be going through the motions of becoming under-active (primary hypothyroidism) as your TSH is very high. Look up 'primary hypothyroidism'.

Ideally you would be starting a low dose of treatment of thyroxine (25mg) for a month. As your T4 is 'within range' your GP is not being pro-active. I'd go back if I were you.

greygoose profile image
greygoose

Why are you confused? Your are overtly hypo. A lot of hypo and hyper symptoms cross over - anxiety, high blood pressure, etc. No energy can be a symptom of both.

Like the others, I Don't understand why your doctor isn't treating you. Two high TSH results can't be argued with. And she says you are hypo, so why is she leaving you like that? If I were you, I would go back and politely insist that she starts you on 50 mcg Levo whilst waiting for your endo appointment - or gives you a comprehensive explanation why not.

It would also be a good idea to ask for antibodies to be tested - TPOab and TgAB - plus

vit D

vit B12

folate

ferritin

At least one of these is bound to be low - possibly all of them - and that is going to make you feel bad in itself.

HLAB35 profile image
HLAB35 in reply togreygoose

I absolutely agree in getting all the tests done. Sorry, I meant mcg rather than mg for the Levo.

'I would go back and politely insist that she starts you on 50 mcg Levo whilst waiting for your endo appointment - or gives you a comprehensive explanation why not.'

I'd be very interested in hearing any reason / excuse why they're being so laid back about something that needs their immediate attention! The throat lump is probably due to a goiter as the thyroid is swelling and desperately trying to absorb as many minerals to make thyroid hormones and not very successfully by all accounts. The pituitary gland meantime has quite rightly detected this insufficiency and is going crazy right now making an excess of TSH.

Getting the thyroid sorted out with thyroid hormone replacement, diet and vitamins / minerals will treat the cause and hopefully an improvement in symptoms should follow.

eeng profile image
eeng

Depression is also a symptom of hypothyroidism

Treepie profile image
Treepie

Click St.Johns Wort below your post to see many other posts on the herb.Recently there was a warning about some batches being toxic.

mspolly profile image
mspolly

possible side effects' taking st johns' wort are

diarrhoea

headaches'

tiredness

dizziness

confusion

st johns' wort is a enzyme inducer stop taking it you need thyroxine,

go back to your gp tell her you want a trial of t4 while you wait to see endo,

i have underactive thyroid i was taking saint johns' wort before being ,

diagnosed it made me ill.

star1975 profile image
star1975

thanks for your replies. my other tests where normal. liverkidney sugar diabeties iron b12 (i have b 12 injections every 3 months) but every test was normal. but my thyriod witch i posted in my post.

greygoose profile image
greygoose in reply tostar1975

'Normal' is not 'optimal'. Optimal is around 1000, regardless of what the ranges say. Is yours around 1000?

Heloise profile image
Heloise in reply tostar1975

stopthethyroidmadness.com/l...

star1975 profile image
star1975

everytime i went to my dr saying i had flutters tight throat air hunger tired etc...they kept saying here have these antidepressnts because you have anxity and panic attacks! this went on for months . i refused to take the meds as i didnt belive i needed antidepressant meds. it got to a stage my throat was so tight . my air hunger was so bad and flutters in my neck where over the roof i asked my thyriod to be checked the dr said "fine ill let you have a blood test only to help your anxity" but when the tests came back it was what i posted above. then i was asked to do another test monday and that was the 2nd test i posted above. she told me to carry on with the st johns wort and wait for my specialest apoinment witch can take months to get. i told her getting threw a day is a challange for me as my body starts crashing in the afternoon or if im busy. dr said my other tests where all normal.

Angus1 profile image
Angus1

Hi Star1975, If you haven't already I would begin reading Paul Roninsons recovering with T3 and STTM, it will reduce you recovery time possibly by years, also with mainstream medicine you may never recover.

Maybe get T3 and RT3 checked although T3 can be in range and you won't feel better until its elevated. First treatment is normally T4 (thyroxine) then NDT/T4 and T3 then T3 only if they don't work.

Good luck

Regards Angus1

silverfox7 profile image
silverfox7

I was told many years ago never to take St John's Wort if have a thyroid problem. Shortly after I was looking around Holland and Barrett and I was collared by an assistant trying to say how efficient they were etc and plugging their state of the heart guidelines as to which medicines to take when. So I asked if SJW could betaken with thyroid medicines and was told ire perfectly safe. So don't assume every thing you hear is correct. Keep looking and check things are faultless

"Anti depressants and all the pharmecutical junk handed out like sweets"

Those life saving medicines that some people need in order to be able to function normally, you mean?

I'm far more leery of homeopathists and those that endorse their proven-to-not-work money-grabbing than I am of medicines that have been proven to work and been tested rigourously and that all evidence points to being a solution for people that have often taken great courage to reach out to ask for the help they need.

Just saying.

humanbean profile image
humanbean

I've never taken St John's Wort myself and I've never researched it, so I have no opinion on whether it is safe or otherwise with thyroid treatment.

I wrote about a non-prescription supplement called 5-HTP yesterday, and thought it might interest you as an alternative :

healthunlocked.com/thyroidu...

star1975 profile image
star1975

im going back to dr soon but a different dr. and ill see what they say.

star1975 profile image
star1975

iv been to see another dr. she told me stop the st johns wort and to start

levothyroxine. does anyone have feed back on that medication. i have to have blood tests every 3 weeks aswell

mspolly profile image
mspolly in reply tostar1975

Really good that you are no longer taking saint johns' wort, everbody is different thyroxine [t4] did not work for me others do really well on it its,' trial and error your doctor will start you off on a low dose, give it time to, work but if you still feel hypo dont be afraid to go back and get your doctor, to increase dose.

in reply tostar1975

I've been taking 25mcg levo since september. I've been started on a low dose because I also have a heart condition, and starting too high with a heart condition can be extremely dangerous. If/when I increase my dose it will have to be an upward taper done over time.

Even with the low dose, my blood test numbers have been slowly but surely improving, and while I don't *feel* any benefit yet, that could also be because I have a lot of other health conditions, ( EDS, AS, POTS, OSAHS) many of which are currently still being investigated. I remain hopeful that with time and eventually, effective treatment for my other conditions, that I will feel an improvement in overall wellbeing.

Don't be afraid to take the meds. With any luck, and assuming your health is otherwise good, you'll start to feel better once your blood test results come min line with *your* normal.

I've never met anyone that's tried all 23 different types of anti depressant, so if you have, then I unwaveringly bow down to your first hand experience.

However, it's possible that if none of the 23 types worked for you, that depression was not actually the primary condition and was, rather, a side effect or complication of your primary condition. Thyroid disease is well known to have depression as a symptom, for example, as with most chronic health issues and autoimmune diseases.

I'm afraid I must disagree on your final point though - NO homeopath is good. Herbalists are an entirely different thing, and I'll happily agree that some of them can be brilliant. While it has been repeatedly proven that homeopathy's positive effects have been at best at the level of a placebo effect, I simply can not agree that anyone selling homeopathic products is out to help anyone other than themselves, by lining their pockets with the funds of desperate people who are often trying their hand at whatever the latest fad presented to them is, out of sheer desperation to improve their health.

I'm happy for you that you found something that worked for you, of course, but is it possible you're meaning herbalist products rather than homeopathy? SJW is an herbalist product, for example. It is both proven to be effective for purpose, and contraindicated for use with many medicines. Advice on all SJW products should advise to seek advice from a doctor before taking it, for this very reason.

Jaybrooke profile image
Jaybrooke

Hi star , I agree with the others your GP should have given you a trial of thyroxine . The fluttering and the feeling of a lump in your throat and neck sounds like could be auto immune thyroiditis ( hashimotos) why don't you push for a thyroid ultrasound the result might give your doctor a kick up the bum he/ she needs.

star1975 profile image
star1975

iv just taken my 1st pill of levothyroxine 50mcg. i hope this works also i hope it helps with the weight. im so over this.

star1975 profile image
star1975

she is sending me to a specialest aswell

You're the one that said you had "witnessed at first hand" - if you're talking about someone else, that's second hand. It's only ever first hand if it's about yourself.

As for the rest of your post, I'm done trying to talk reason. I am not responsible for educating you. If you wish to live in ignorance of proven scientific facts, have fun with that.

I can only hope that if ever you do indeed need actual medicine, you will remember this conversation.

EB74 profile image
EB74

I'm glad you saw another GP and she has started you on levo. When I first started to take it it didn't take too long for me to feel the benefits. Although it took me a year to get to the point of feeling as normal as I think I can do.

My tsh was not as high as yours at 15 but I responded well to levo. I hope this is the start of your road to feeling better.

star1975 profile image
star1975

i dont think levothyroxin is agreeing with me. i feel nauseous. fluttery heart and in my throat. i dnt no what to do anymore. i feel ill

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