Search
Search
About
Log in
Join
Experiences with
Air embolism
Posts
Communities
1,796 public posts
Filter results
Vision Disturbance and Warfarin
Hi, long term AF controlled by Pacemaker + Warfarin. I self test (Coaguchek) and usually I'm in therapeutic range (for me 3.0 after DVT 2011. Just before Xmas I experienced vision Disturbance (including peripheral flashes) in my right eye. Eye Clinic clinician diagnosed 'Posterior Vitreous Detachment
Hi, long term AF controlled by Pacemaker + Warfarin. I self test (Coaguchek) and usually I'm in therapeutic range (for me 3.0 after DVT 2011. Just before Xmas I experienced vision Disturbance (including peripheral flashes) in my right eye. Eye Clinic clinician diagnosed 'Posterior Vitreous Detachment
Kempsh0tt
in
Anticoagulation Support
4 years ago
Day before halfway with 6 cycle Taxotere Chemo
What's up fellow travellers, So just know going into this update I've been on this trip since 2009, gleason 9. No mets until late 2019(Lymph nodes). On Androgen blockers since 2012. My labs continue to excel. In 6 weeks the PSA has dropped by 52 points, and all the Immune system, kidney, and liver
What's up fellow travellers, So just know going into this update I've been on this trip since 2009, gleason 9. No mets until late 2019(Lymph nodes). On Androgen blockers since 2012. My labs continue to excel. In 6 weeks the PSA has dropped by 52 points, and all the Immune system, kidney, and liver
zenbee13
in
Advanced Prostate Cancer
4 years ago
Yasmin and dianette experiences...
Hi everyone, Please can you share positive and negative experiences of these OCPs? I get terrible PMS, period pain, have hirsutism and hair thinning. I diet and exercise to keep my weight under control and take supplements as recommended but still have these symptoms really badly so considering the
Hi everyone, Please can you share positive and negative experiences of these OCPs? I get terrible PMS, period pain, have hirsutism and hair thinning. I diet and exercise to keep my weight under control and take supplements as recommended but still have these symptoms really badly so considering the
Pipppco
in
PCOS UK (Verity)
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Intravenous steroids
I have had PMR for nearly two years and am now down to 3mg Pred and doing ok and apart from hair loss have no other side effects. When it started I was on holiday in America and the medics acted promptly as my blood tests were sky high and I was showing possible GCA symptoms. I was hospitalised and
I have had PMR for nearly two years and am now down to 3mg Pred and doing ok and apart from hair loss have no other side effects. When it started I was on holiday in America and the medics acted promptly as my blood tests were sky high and I was showing possible GCA symptoms. I was hospitalised and
Hidden
in
PMRGCAuk
4 years ago
Hashitoxicosis and mental health
Just wondering if anyone had any experience of hashitoxicosis? What symptoms did you experience and how long did it last? I have Hashimotos and am seeing a psychiatrist soon about various mental health issues, a diagnosis of bipolar has been mentioned but am worried it could acutally be hashitoxicosis
Just wondering if anyone had any experience of hashitoxicosis? What symptoms did you experience and how long did it last? I have Hashimotos and am seeing a psychiatrist soon about various mental health issues, a diagnosis of bipolar has been mentioned but am worried it could acutally be hashitoxicosis
felix1234
in
Thyroid UK
4 years ago
Hi everyone I’m new to this community. I’m wondering if anyone is having slight breathing problems when having a cold after having PE twice.
I had unprovoked pulmonary embolism in September 2016 ,treated with 3 months of heparin injections. In July 2017 I had another one. Now I’m on lifelong Warfarin. My life /lungs never been the same again. When it was diagnosed I had shortness of breath on any physical activity. I don’t smoke, never did
I had unprovoked pulmonary embolism in September 2016 ,treated with 3 months of heparin injections. In July 2017 I had another one. Now I’m on lifelong Warfarin. My life /lungs never been the same again. When it was diagnosed I had shortness of breath on any physical activity. I don’t smoke, never did
Bakery40
in
Lung Conditions Community Forum
4 years ago
Best painkillers
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Morning all. I have been taking hydroxychloroquine since 25th Feb, 200 mg for two weeks and now 400 mg since Tuesday past. The joint pains seem to be getting worse. I was taking motifene, seen GP on Mon and he prescribed celebrex instead. So far, not any relief to be honest. What are your experiences
Charlie_25
in
LUPUS UK
4 years ago
...A monumental Government Virus Contradiction ...
What the hell is going on- re this Virus ?… one minuet the Government tells us to " AVOID CROWDED PLACES " , then allows over = 75, 000 people to attend the " CHELTANHAM RACES the other day …- I watched it on tv = COLOSSAL CROWDS - , it is the supreme irony , that reports came in later, via the
What the hell is going on- re this Virus ?… one minuet the Government tells us to " AVOID CROWDED PLACES " , then allows over = 75, 000 people to attend the " CHELTANHAM RACES the other day …- I watched it on tv = COLOSSAL CROWDS - , it is the supreme irony , that reports came in later, via the
vittorio
in
Lung Conditions Community Forum
4 years ago
Here I go again....
It’s 2am I’m wide awake I feel dizzy my stomach feels Hungary and tense I think maybe can’t breath weird but I don’t want my night to end maybe that’s why I don’t want to or more like can’t sleep any suggestions before I have to go to doctors to get a sleep aid to put me in a good sleep routine .i know
It’s 2am I’m wide awake I feel dizzy my stomach feels Hungary and tense I think maybe can’t breath weird but I don’t want my night to end maybe that’s why I don’t want to or more like can’t sleep any suggestions before I have to go to doctors to get a sleep aid to put me in a good sleep routine .i know
Binkynoo
in
Anxiety Support
4 years ago
All packed and as ready as I will ever be
About to head to bed and try and get some sleep before my alarm goes off at silly o’clock in the morning. I have checked and double checked my kit and my trail pack is now loaded with everything other than my soft flasks which I will fill in the morning. It felt strange packing a warm top to go for
About to head to bed and try and get some sleep before my alarm goes off at silly o’clock in the morning. I have checked and double checked my kit and my trail pack is now loaded with everything other than my soft flasks which I will fill in the morning. It felt strange packing a warm top to go for
tiggs1
Marathon
in
Fun Beyond 10K & Race Support
4 years ago
Still here.
2019 brought a massive pulmonary embolism in May followed by a bleed in the brain from a blood thinning med. Then a second, bigger, bleed in September from a different blood thinner. I'm now half way through 6 cycles of Taxotere chemo. The point is that we all have setbacks. My stamina is reduced and
2019 brought a massive pulmonary embolism in May followed by a bleed in the brain from a blood thinning med. Then a second, bigger, bleed in September from a different blood thinner. I'm now half way through 6 cycles of Taxotere chemo. The point is that we all have setbacks. My stamina is reduced and
jholmq
in
Advanced Prostate Cancer
4 years ago
DVT and Thrombophilia
Hi everyone! I’m new here... diagnosed with APS in 2011, alongside UCTD. Fast forward to 2018 and I was tested at the recurrent miscarriage clinic but the APS blood tests came back negative (twice). I wasn’t told that this could happen and it doesn’t affect your diagnosis but my gynaecologist was basically
Hi everyone! I’m new here... diagnosed with APS in 2011, alongside UCTD. Fast forward to 2018 and I was tested at the recurrent miscarriage clinic but the APS blood tests came back negative (twice). I wasn’t told that this could happen and it doesn’t affect your diagnosis but my gynaecologist was basically
MrDarcydog
in
Hughes Syndrome APS Forum
4 years ago
Bezafibrate with Urso really helps
Everyone with PBC and increasing ALP should ask for the combi-therapy with Bezafibrat. Your doctor can prescribe it with the diagnosis: metabolic fat disorder, so to avoid that it is not yet approved for PBC, because studies are so expensive for this cheap medicine. (We all Pbc-ers have metabolic fat-disorder
Everyone with PBC and increasing ALP should ask for the combi-therapy with Bezafibrat. Your doctor can prescribe it with the diagnosis: metabolic fat disorder, so to avoid that it is not yet approved for PBC, because studies are so expensive for this cheap medicine. (We all Pbc-ers have metabolic fat-disorder
gardenfun
in
British Liver Trust
4 years ago
Imraldi
I’m about to start the adalimumab injection I have received them , I know I take them every two weeks but as I’m on mtx as well when is the best time to take my imraldi ? Do I take it the day if mtx or leave if a couple of days later
I’m about to start the adalimumab injection I have received them , I know I take them every two weeks but as I’m on mtx as well when is the best time to take my imraldi ? Do I take it the day if mtx or leave if a couple of days later
Buckybri
in
NRAS
4 years ago
Nintedanib , Pros and Cons ?
Nintedanib , Pros and Cons , Hi everybody , I have an appointment on the 6th February to possibly start taking Nintedanib to slow down the process of Idiopathic Pulmonary Fibrosis , I also have COPD and Emphysema , I would like to hear from anyone who has or is taking Nintedanib and I would like to know
Nintedanib , Pros and Cons , Hi everybody , I have an appointment on the 6th February to possibly start taking Nintedanib to slow down the process of Idiopathic Pulmonary Fibrosis , I also have COPD and Emphysema , I would like to hear from anyone who has or is taking Nintedanib and I would like to know
Jaxleo
in
Lung Conditions Community Forum
4 years ago
Leg Hairs....
Another strange topic from me. On one side of my calf muscles I go bald grow hair back and then go bald again. It’s really weird.... Is it prednisolone withdrawals or am I getting up and sleep shaving?
Another strange topic from me. On one side of my calf muscles I go bald grow hair back and then go bald again. It’s really weird.... Is it prednisolone withdrawals or am I getting up and sleep shaving?
Hidden
in
PMRGCAuk
4 years ago
Hairloss on pred
Hi all, I know I've talked about my hairloss before but just wondering how low on pred do you have to be before the hairloss stops, I'm down to 9mg now from 40 originally, I'm taking all the right vitimins and using shampoo and conditioner for thinning hair but it's not letting up, it's also in really
Hi all, I know I've talked about my hairloss before but just wondering how low on pred do you have to be before the hairloss stops, I'm down to 9mg now from 40 originally, I'm taking all the right vitimins and using shampoo and conditioner for thinning hair but it's not letting up, it's also in really
Poppylop
in
PMRGCAuk
4 years ago
Prolia. Info please.
I was reading some posts on here...always informative and helpful...and discovered that the injection I was given of Prolia two months ago is not a straight forward treatment. My family doctor just ordered it for me and I was given no warning of any potential problems. I had a bone density done...-2.4
I was reading some posts on here...always informative and helpful...and discovered that the injection I was given of Prolia two months ago is not a straight forward treatment. My family doctor just ordered it for me and I was given no warning of any potential problems. I had a bone density done...-2.4
agingfeminist
in
PMRGCAuk
4 years ago
Denosumab vs Celebrex and Zometa
I discussed the Celebrex + Zometa combo with my MO (in the context of ~20% lower mortality rate in metastatic setting), and he suggested I take Denosumab (no Celebrex). I see studies comparing Denosumab to Zometa, but I don't see anywhere comparing it to the combo of Celebrex and Zometa, or used by itself
I discussed the Celebrex + Zometa combo with my MO (in the context of ~20% lower mortality rate in metastatic setting), and he suggested I take Denosumab (no Celebrex). I see studies comparing Denosumab to Zometa, but I don't see anywhere comparing it to the combo of Celebrex and Zometa, or used by itself
snoraste
in
Advanced Prostate Cancer
4 years ago
Is One Statin Better than Another.
I’ve been reading a few articles on statins and metformin for APC including this one . https://www.newsmax.com/t/health/article/954116?ns_mail_uid=d1160051-e959-4a6f-8dd6-76965eebe151&ns_mail_job=DM91378_02172020&s=acs&dkt_nbr=0101248dkfpz§ion=health-news&keywords=cholesterol-drugs-statins-metformin-prostate-cancer
I’ve been reading a few articles on statins and metformin for APC including this one . https://www.newsmax.com/t/health/article/954116?ns_mail_uid=d1160051-e959-4a6f-8dd6-76965eebe151&ns_mail_job=DM91378_02172020&s=acs&dkt_nbr=0101248dkfpz§ion=health-news&keywords=cholesterol-drugs-statins-metformin-prostate-cancer
Schwah
in
Advanced Prostate Cancer
4 years ago
1
...
27
28
29
...
90
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Thyroid UK
183 results
PBC Foundation
125 results
Hughes Syndrome APS Forum
121 results
View top 10 communities
Sort by
Most Relevant
Newest