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Experiences with
Autoimmune hepatitis (AIH)
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Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
5 months ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
5 months ago
Cortisol saliva test results
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
I’ve just had my third cortisol saliva test done and am interested to get advice from the experts on here eg the very knowledgeable humanbean! It basically tells the story of how I feel. Unable to get out of bed without a cup of tea. Able to do some light jobs/activities in the morning. Tired after
CornishChick
in
Thyroid UK
6 months ago
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Further to my post of 9 months ago
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Hi Until December last I was taking 40 mg iron bisglycinate with orange juice every two days. Since this had little impact on my RLS I increased the iron dose to 40mg every day from December until now. As yet I have noticed little change to my RLS symptoms. A blood test this month showed my ferritin
Rameau
in
Restless Legs Syndrome
6 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
6 months ago
Xtandi (enzalutimide) SEs Part 2
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
Since I've increased my Xtandi from 80 mg to 160 mg, I am now experiencing a bad case of the jimmy legs (restless legs) at night. I take my Xtandi around 8 pm. I still work full time and I've read that taking it at night helps avoid the fatigue during the day. So far that seems to be the case with
MoonRocket
in
Advanced Prostate Cancer
8 months ago
Check your Thyroid
So I talked to my consultant at my clinic and said I thought I was having an
AIH
flare up. Took a month of steroids - no change.
So I talked to my consultant at my clinic and said I thought I was having an
AIH
flare up. Took a month of steroids - no change.
Readlots
in
British Liver Trust
1 year ago
Taking hours to fall asleep
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Gabapentin has controlled my RLS for last year or so. I only take 600 mg at bedtime for last 3/4 months now. I have recently started having difficulty falling asleep (no RLS, just wide awake for 3/4 hours). I thought about asking for a sleep aid from GP but didn't want to take anything that would aggrevate
Opie__
in
Restless Legs Syndrome
8 months ago
Limbo
I was sent to a specialist again and had an ultrasound which didn’t find anything of note, then a biopsy of which the pathologist said the samples were characteristic of
AIH
. Being quite rare especially in men the consultant seemed wary as my ASM was only very slightly elevated.
I was sent to a specialist again and had an ultrasound which didn’t find anything of note, then a biopsy of which the pathologist said the samples were characteristic of
AIH
. Being quite rare especially in men the consultant seemed wary as my ASM was only very slightly elevated.
MrMidnight2021
in
British Liver Trust
11 months ago
Morning check in
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
Well the melatonin was a little bit of help bur still woke up every 2 hours ... talk to anxiety support contacted my doctor about using prescription sleep aid. He's starting me on trazadonne 50 MG..will take before bedtime any suggestions... also gonna get word search fill in books to help during
jojo15210
in
Anxiety and Depression Support
9 months ago
AIH/PBC Overlap Anyone on urso & Mercap
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
Eternity6
in
British Liver Trust
1 year ago
First time ivf - hello 👋
Hi everyone, I'm 38 with an AMH of 9.1. I'm day 4 of injections. I'm on meriofert 300 dose for 6 days. I start ganirelix 0.25mgs on day 6 to day 9. On day 7 to 9 my meriofert dose reduces down to 150 dose and I start Gonal F 150 dose. Day 10 is my first scan and then we go from there. I already messed
Hi everyone, I'm 38 with an AMH of 9.1. I'm day 4 of injections. I'm on meriofert 300 dose for 6 days. I start ganirelix 0.25mgs on day 6 to day 9. On day 7 to 9 my meriofert dose reduces down to 150 dose and I start Gonal F 150 dose. Day 10 is my first scan and then we go from there. I already messed
Harlo86
in
Fertility Network UK
3 days ago
IVF vs trying naturally with low AMH
Just had second round of IVF with a failed fresh blastocyst transfer and a first round with no blastocysts (I am 43 with an AMH of 0.8). When I had my initial consultation, I’m pretty sure that the consultant told us that our chances if trying naturally were at around 5%. He said (I think) that
Just had second round of IVF with a failed fresh blastocyst transfer and a first round with no blastocysts (I am 43 with an AMH of 0.8). When I had my initial consultation, I’m pretty sure that the consultant told us that our chances if trying naturally were at around 5%. He said (I think) that
Greenfig123
in
Fertility Network UK
4 days ago
intralipids without the steroids?
Hi 👋 After 3 failed embryo transfers and x1 chemical, I had some more tests done and weighing up whether to do more cycles The dr I saw advised my AMH level had gone up and everything looked good so he saw no reason not to do more I had various tests along the way eg hysteroscopy all fine. Anyway
Hi 👋 After 3 failed embryo transfers and x1 chemical, I had some more tests done and weighing up whether to do more cycles The dr I saw advised my AMH level had gone up and everything looked good so he saw no reason not to do more I had various tests along the way eg hysteroscopy all fine. Anyway
Flounder84
in
Fertility Network UK
6 days ago
AMH Increasing?!
Seneitive post.... Don't want to upset anyone as realise others really struggle with this. Just had my AMH results come in. 1 year since checkedLast year at age 37 - amh was 10 Now aged 38 - amh 14.8 It's gone up? Anyone else had fluctuations? I'm pleased but just wondering why it's better...
Seneitive post.... Don't want to upset anyone as realise others really struggle with this. Just had my AMH results come in. 1 year since checkedLast year at age 37 - amh was 10 Now aged 38 - amh 14.8 It's gone up? Anyone else had fluctuations? I'm pleased but just wondering why it's better...
aso328
in
Fertility Network UK
7 days ago
Endo and FET protocol
Hi, I was hoping to get some advice regarding a FET protocol for stage 4 endometriosis/adenomyosis. We had our egg collection last week and due to extent of my endo/endometriomas on both ovaries and low AMH I only had two follicles after stims which produced one egg. We had ICSI and now have a day
Hi, I was hoping to get some advice regarding a FET protocol for stage 4 endometriosis/adenomyosis. We had our egg collection last week and due to extent of my endo/endometriomas on both ovaries and low AMH I only had two follicles after stims which produced one egg. We had ICSI and now have a day
Mim9
in
Fertility Network UK
7 days ago
Very low AMH
Hi all I've just had my AMH results and it's 1.4pmol/l. The letter is pretty damning and I'm wondering if it's at all worth putting myself through all this as the chances are so low? Has anyone on here had such a low AMH and had success? The letter does say they'll give me the highest dosage meds during
Hi all I've just had my AMH results and it's 1.4pmol/l. The letter is pretty damning and I'm wondering if it's at all worth putting myself through all this as the chances are so low? Has anyone on here had such a low AMH and had success? The letter does say they'll give me the highest dosage meds during
DogMum7
in
Fertility Network UK
10 days ago
Day 2 Embryo transfer TWW
Hi everyone ☺️ this is my first post here, I’m so glad I have found this forum to connect with people who are going through similar things, what a fantastic community 🩷 I am 35 yrs old and have a very low AMH of 2.9. Last week I had egg retrieval and despite having a good number of follicles for my
Hi everyone ☺️ this is my first post here, I’m so glad I have found this forum to connect with people who are going through similar things, what a fantastic community 🩷 I am 35 yrs old and have a very low AMH of 2.9. Last week I had egg retrieval and despite having a good number of follicles for my
Mallorca89
in
Fertility Network UK
11 days ago
cicle Cancelled follicles not growing,any advice?
Hi All As anyone experienced this?this is my 4th circle with the clinic and it has been cancelled after 6 days of stim due to follicles not growing and the blood test came out estrogen is very low, I have very low AMh,first circle only 2 egg retrived nothing to transfer,short protocol, 2nd circle
Hi All As anyone experienced this?this is my 4th circle with the clinic and it has been cancelled after 6 days of stim due to follicles not growing and the blood test came out estrogen is very low, I have very low AMh,first circle only 2 egg retrived nothing to transfer,short protocol, 2nd circle
KHMSJ
in
Fertility Network UK
12 days ago
Protocol tips for low AMH?
Hi everyone, just finished my 2nd cycle (just turned 43, low AMH, ok FSH, base follicle count of about five total). 2nd cycle: Had a 5 day fresh transfer of a ‘good’ rated embryo, sadly without success. 6 follicles, 5 eggs, 5 fertilised, one blastocyst, on long protocol. 1st cycle: no transfer, 5
Hi everyone, just finished my 2nd cycle (just turned 43, low AMH, ok FSH, base follicle count of about five total). 2nd cycle: Had a 5 day fresh transfer of a ‘good’ rated embryo, sadly without success. 6 follicles, 5 eggs, 5 fertilised, one blastocyst, on long protocol. 1st cycle: no transfer, 5
Greenfig123
in
Fertility Network UK
17 days ago
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