Experiences with Aih | HealthUnlocked

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AIH Survey for current research

Autoimmune Hepatitis (AIH)? Please complete this Patient Survey on Acceptability of Treatments in AIH. the electronic link for the survey is: https://fmsv01.ncl.ac.uk/webformsAutoimmune Hepatitis (AIH)? Please complete this Patient Survey on Acceptability of Treatments in AIH. the electronic link for the survey is: https://fmsv01.ncl.ac.uk/webforms

LIVErNORTH1LIVErNORTHin LIVErNORTH

Survey for AIH patients

Patient Survey on Acceptability of Treatments in AIH Dr Jess Dyson (Newcastle) is the principal investigator for a national study relating to AIH. As part of the study, a survey has been launched to understand the key themes for patients with AIH in improving their care.Patient Survey on Acceptability of Treatments in AIH Dr Jess Dyson (Newcastle) is the principal investigator for a national study relating to AIH. As part of the study, a survey has been launched to understand the key themes for patients with AIH in improving their care.

Trust1Administratorin British Liver Trust

AIH

Has an9had a diagnosis of AIH ?Has an9had a diagnosis of AIH ?

Jeanmfsin British Liver Trust

had a liver biopsy 2 weeks ago for suspected AIH overlap with PBC that I have been DX already with. I am having a flair and pain in liver 😪

Pbc biopsy AIH overlapPbc biopsy AIH overlap

W_larksin British Liver Trust

Mycophenolate

Hi if there are any of you taking this medication for AIH PBC overlap could you tell me if it caused pain in the liver....I never had pain that was present all day before starting this medication 2 weeks ago. They have me on prednisolone as well 20 mg now, and want to swap me to budesonide.Hi if there are any of you taking this medication for AIH PBC overlap could you tell me if it caused pain in the liver....I never had pain that was present all day before starting this medication 2 weeks ago. They have me on prednisolone as well 20 mg now, and want to swap me to budesonide.

Alley27in PBC Foundation

Pbc/Aih

Well people I'm off to see my consultant at st james today to find a new treatment as I had to stop my ursalic acid due to unbearable itching. Although after being off it 2 months the itch is as unbearable as ever it only stopped for 4 week Hope everyone else is okWell people I'm off to see my consultant at st james today to find a new treatment as I had to stop my ursalic acid due to unbearable itching. Although after being off it 2 months the itch is as unbearable as ever it only stopped for 4 week Hope everyone else is ok

janine541in PBC Foundation

Newly diagnosed

I was just diagnosed in December with PBC/AIH. I’m sure I’ll have more questions than answers but I am so glad I found this groupI was just diagnosed in December with PBC/AIH. I’m sure I’ll have more questions than answers but I am so glad I found this group

jzlzin PBCers Organization

AIH PBC and AI Pancreatitis

I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment) In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!)I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment) In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!)

Curedreamerin Vasculitis UK

New to Health Unlocked

I was diagnosed with PBC/AIH overlap in 2006, stage 3 at that time by biopsy. I’ve had no further testing but now have cirrhosis and although I’ve had about 13 good years, am now having more problems.I was diagnosed with PBC/AIH overlap in 2006, stage 3 at that time by biopsy. I’ve had no further testing but now have cirrhosis and although I’ve had about 13 good years, am now having more problems.

Mimiof1in PBCers Organization

AIH-PBC and AI Pancreatitis

(I posted the same at Vasculitis UK) I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment) In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!)(I posted the same at Vasculitis UK) I’m from Chile, I’m 42 yo and a math teacher (unemployed for the moment) In February this year I was diagnosed with AIH and in May I had a nasty Vasculitis flare (which I didn’t know what it was yet!)

Curedreamerin British Liver Trust

Pbc

Pbc /Aih Hi everyone had to stop treatment and then went on holiday Been poorly with asthma and sinus but ok Hope everyone else ok ... has anyone else had to stop treatment through severe itchingPbc /Aih Hi everyone had to stop treatment and then went on holiday Been poorly with asthma and sinus but ok Hope everyone else ok ... has anyone else had to stop treatment through severe itching

janine541in PBC Foundation

Cold Medicines that are ok to take?

Hi everyone Newly diagnosed and wondering what Cold Medicines are good for PBC/AIH? I feel a cold coming on especially my throat is feeling quite sore. And as an added detail, I am visiting my son in Japan from the US and worried I might be getting sick in a foreign country.Hi everyone Newly diagnosed and wondering what Cold Medicines are good for PBC/AIH? I feel a cold coming on especially my throat is feeling quite sore. And as an added detail, I am visiting my son in Japan from the US and worried I might be getting sick in a foreign country.

positivethoughts03in PBC Foundation

what a roundabout

Hi everyone...I posted a while ago about me being put on a new medication called mycophenolate..it's not new to AIH/PBC, but it is new to me. I have been on this for around two and a half months now. In the beginning lots of side effects which seem to have settled down.Hi everyone...I posted a while ago about me being put on a new medication called mycophenolate..it's not new to AIH/PBC, but it is new to me. I have been on this for around two and a half months now. In the beginning lots of side effects which seem to have settled down.

Alley27in British Liver Trust

Bone fracture and immunosuppressants

I have vasculitis anca, overlap syndrome (AIH and PBC) and autoinmune pancreatitis I’m in a lot of pain because I can’t take painkillers for the fractureI have vasculitis anca, overlap syndrome (AIH and PBC) and autoinmune pancreatitis I’m in a lot of pain because I can’t take painkillers for the fracture

Curedreamerin Vasculitis UK

AIH

Anyone with an insight into AIH could you give me any advice. Thanks TracyAnyone with an insight into AIH could you give me any advice. Thanks Tracy

tray1970in British Liver Trust

Massachusetts Support

Looking for support as I was diagnosed a month ago and still learning about PBC (I have AIH as well). I feel a bit lonely and would love some local support. If anyone knows how I should go about finding local PBCers, I would appreciate it!Looking for support as I was diagnosed a month ago and still learning about PBC (I have AIH as well). I feel a bit lonely and would love some local support. If anyone knows how I should go about finding local PBCers, I would appreciate it!

positivethoughts03in PBC Foundation

Medication

Could you please tell me what other medications are available for treatment AIH. My mercaptopurin is not working properly and tomorrow I have an emergency appointment with a hepatolagist at Selby war memorial hospital. ThanksCould you please tell me what other medications are available for treatment AIH. My mercaptopurin is not working properly and tomorrow I have an emergency appointment with a hepatolagist at Selby war memorial hospital. Thanks

Alley27in PBC Foundation

Autoimmune hepatitis (AIH)