Experiences with

Autoimmune hepatitis (AIH)

2,167 public posts

Auto immune hepatitis (AIH) and decompensated cirrhosis

Consultant had taken me off AIH meds Nov 2019 when bloods were normal. A year later I have the above diagnosis. Now they say they will not put me back on AIH meds, it’s not the policy. Am I just being left to die or are others with this well without meds?
in British Liver Trust

Budeonside advice?

Looking for some advice, I was diagnosed with Aih last year but liver results are still elevated so docs have decided too put me on Bude, they say it has less side effects, any advice is grateful.
in British Liver Trust

AIH and NASH

Can anyone share what was your smooth muscle antibody titre value when diagnosed with AIH Mine is 1:100 Dr says it might be due to NASH not because of AIH
in Living with Fatty Liver and NASH
Want to take advantage of all our features? Just log in!
or

AIH Newly diagnosed in April 2020

I had my liver biopsy in April and was diagnosed with AIH the same month. Please could you tell me if it is usual for the Dr to not give me any medication at the beginning? I had a blood test in May but nothing since then. Thank you for reading x
in British Liver Trust

Essex area?

Are there any pbc/aih sufferers in the Essex area?? Don't want to know exact area just wondering if anyone near me in same boat. Thanks in advance xx love and hugs
in PBC Foundation

Low vitamins, underactive thyroid, type 1 diabetes and autoimmune hepatitis.

I’m 23 years old, female and have type 1 diabetes (diagnosed age 3), an underactive thyroid (diagnosed age 16) and autoimmune hepatitis (AIH - diagnosed age 22). After being diagnosed with AIH I’ve really noticed my underactive thyroid making my life even more difficult than before.
in Thyroid UK

Cirrhosis and AIH

I've been living with AIH since 2006. I always thought it was relatively well controlled and I was plodding along nicely until I got to April/May of this year. I began to break out in hives and did the usual things of checking for allergies, washing powder, clothing, food etc.
in British Liver Trust

Pbc/aih symptoms

How long can I live with pbc/aih without the severe symptoms In January I will be 4 years. This concerns me. I feel like my time is up and it’s time to struggle
in PBC Foundation

Immunity levels of covid vaccine when on immunosuppressants

Due to having AIH and being on immunosuppressants I’ve been shielding for a year now.
in British Liver Trust

Query?

I have AIH/PBC and take 1000mg mycophenolate and 3 mg of bud. Daily can any one tell me what venerable group I fall in? Just thinking about the vaccine time which I can’t wait to get!
in British Liver Trust

Dark urine

I had a biopsy for probable AIH a few weeks ago. I won't get the results until I get an outpatients appointment, which I'm still waiting for. Over the last couple of months I've noticed that my urine has got darker and darker. I haven't had a blood test since July.
in British Liver Trust

Speckled black spots in poo

AIH and acute in chronic drug induced liver disease thanku
in British Liver Trust

What a surprise

If you include AIH, PBC , hashimoto's, asthma and osteoporosis, I am very blessed lol. This is going to be interesting. Take care x
in PBC Foundation

AIH diagnoses with asymptomatic patients, questions and my story

Or should ultrasound pick up AIH related cirrhosis? What about fibrosis? 3. Is there any possibility this is drug related and not AIH? From cetiritzine or diclofenac gel? Cetiritzine can rarely cause elevated lfts and diclofenac pills also, although I used diclofenac gel.
in British Liver Trust

Weak ASMA result

Doctor said he can’t treat me For AIH as my numbers are well below the typical range? Even if I have a biopsy he still can’t offer a treatment plan, so I should just see how I get on and maybe retest in six months! Should I get second opinion? I’m very worried
in Liver4Life

Newbie with possible vasculitis

I was then referred to haematology who, over the phone, said it was my medication for the AIH, it couldn't possibly be anything else, and to continue having weekly bloods and she would speak to me again in 3 months!
in Vasculitis UK

PBC/AIH overlap new diagnosis don’t know what to expect

Consultant suspects PBC/AIH overlap because of the high ALT and has said will need liver biopsy. Have since had fibroscan and further bloods and been prescribed URSO. I now haven’t heard anything further from hospital and don’t know result of fibroscan .
in PBC Foundation

PBC poss AIH overlap don’t know what to expect?!

Consultant suspects PBC/AIH overlap because of the high ALT and has said will need liver biopsy. Have since had fibroscan and further bloods and been prescribed URSO. I now haven’t heard anything further from hospital and don’t know result of fibroscan .
in British Liver Trust

Aldara and AIH

I got the diagnosis of AIH in feb 2017 and 3 year later a relapse. Both events were preceded by Aldara-treatment according to actinic keratosis. My hepatolog think that the doses of Aldara is too small. I did a Google and found one case of relapse in Autoimmine disease when a person got Aldara.
in British Liver Trust

Undiagnosed liver problem

One dr thought is AIH but others do not agree. Also some speculate budd chairi but no clots show on MRI. Thanks for any input!
in British Liver Trust
Filter results
Posted in
Sort by