Experiences with

Autoimmune hepatitis (AIH)

I was told it was mild fibrosis but online charts indicate f2 as 'significant fibrosis with evidence of progressive liver disease' I have AIH & am taking budesonide 9mg daily. My LFTs have started to normalise so it will be pretty accurate.

I have AIH and am on budesonide and azathioprine. This week I’ve been getting some pain in my liver is that normal or should I be calling my doctor? I’m pretty newly diagnosed so not sure what’s normal or not just yet. Any advice would be great

Hi is there anyone on here with pbc or aih from n. Ireland?

Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?

Positive PANCA and ANA do I have PBC PSC Aih? How can I know

Hi got PBC/AIH . Recently diagnosed , been in Urso for 6 weeks with no side effects. Started today on immuno suppressants and feel totally washed out/ woozy …. Is this usual ?

I have AIH and was recommended this by a nutritionist.

Are there alternative medications for AIH (ie other than Azathioprine & Mycophenolate )?

I’ve been diagnosed with pbc crossed over with AIH … caused cirrhosis. People keep posting about all their blood numbers and figures . I’ve not had theses , nor do i understand them … any advice please 😬 North East England

Hi I’ve got pbc/aih since yesterday I’ve had achy pain in my liver area . This is worse when I lie on it . Any ideas of what it could be ? Recently diagnosed so new to this

Hi I’ve got pbc/aih since yesterday I’ve had achy pain in my liver area . This is worse when I lie on it . Any ideas of what it could be ? Recently diagnosed so new to this

Hi I have always had deranged levels with my liver 2017 biopsy said zero negative AIH started prednisone numbers didnt change much ...pain in right side but low down...April numbers under levels...

Hi I have always had deranged levels with my liver 2017 biopsy said zero negative AIH started prednisone numbers didnt change much ...pain in right side but low down...April numbers under levels...

Hello I was recently diagnosed with aih. Still on prednisolone reducing dose and now taking azathyaprin. I am so very tired abs now have the classic moon face due to the steroids.

Said I had sero negative AIH. Refused to show me any results or give me any info (???). Hes put me on pred 15mg and wants me to start 6mp (tried azathioprine & was bad) but need more info about it. On Dec 22, 2021 I saw him for face to face app.

Hi last month I was diagnosed pbc aih stage 4 cirrhosis. In the past week I’ve started have hot flushes like people describe from the menopause. I completely finished the menopause 7 years ago (no symptoms from it ) so know these flushes won’t be from that .

Hi last month I was diagnosed pbc aih stage 4 cirrhosis. In the past week I’ve started have hot flushes like people describe from the menopause. I completely finished the menopause 7 years ago (no symptoms from it ) so know these flushes won’t be from that .

Off to Freemans to continue the study on AIH for research 😁

For the last 2 days my skin has been really itchy does anyone else with AIH get this

Very confusing, I have AIH Jill