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So sorry! Another supplement enquiry. B vitamins, excluding b12?
I received my sublingual b12 vitamins today (1000 mcg Methylcobalamin, taking 2 to begin with as level is 372 ng/L [> 180]) but I wonder whether I should still be supplementing with other b vits as well, including folic acid (my folate is 16 ng/ml [4.6 - 34.8)? I don't want to miss important ones out
I received my sublingual b12 vitamins today (1000 mcg Methylcobalamin, taking 2 to begin with as level is 372 ng/L [> 180]) but I wonder whether I should still be supplementing with other b vits as well, including folic acid (my folate is 16 ng/ml [4.6 - 34.8)? I don't want to miss important ones out
sip1
in
Thyroid UK
7 years ago
Giant cell arteritis
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis....particularly if you are experiencing fatigue.
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis....particularly if you are experiencing fatigue.
Buddyk
in
PMRGCAuk
7 years ago
Bone marrow transplant on the cards
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
Meeting with a BMT consultant yesterday. Nice chap. Laid it all on the line warts and all. 6-9 months for the Ibutrinin to do it's job then in for BMT. Good news is that I will only be in 4 weeks and can more or less choose when it's best for me to start. Sisters tissue is done, mine is not ready but
KAS8
in
CLL Support
7 years ago
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Once again, sad relapse
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Sad news 😢 I was in remission only a few months for systematic NHL in 2015 after 6 rounds of R-EPOCH, then I had a recurrence in my Central nervous system once the NHL had crossed the blood brain barrier. I then had 8 rounds of Methotrexate/Rituxin prior to a stem cell transplant in Nov 2016 (the chemo
Jennchap1
in
Non Hodgkin's Lymphoma Friends
7 years ago
arterial arteritis
Hi all, I have just joined . I was was diagnosed with pmr 17months ago and am on 7mg of predisolone every 2nd day and managing. However I have recently been experiencing headaches, problems reading and an excelleration of most of the symptoms and I am suspecting arterial arteritis. Appointment with gp
Hi all, I have just joined . I was was diagnosed with pmr 17months ago and am on 7mg of predisolone every 2nd day and managing. However I have recently been experiencing headaches, problems reading and an excelleration of most of the symptoms and I am suspecting arterial arteritis. Appointment with gp
blackstone1
in
PMRGCAuk
7 years ago
Journey begins
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Hello ladies , a few hours since my first appointment with consultant following ultrasound diagnosis of a complex cyst two weeks ago. Surgery in three weeks to remove ovaries and Fallopian tubes he asked me to consent to further surgery when He's already there but warned he may have to go back in
Christie22
in
My Ovacome
7 years ago
Sickle cell trait
I have trait of sickle cell and was told that I probably could never travel to Colorado because of the high altitude and that I may get a shortness of breath being that I have sickle cell trait. Is this true and if so what's the worse that can happen
I have trait of sickle cell and was told that I probably could never travel to Colorado because of the high altitude and that I may get a shortness of breath being that I have sickle cell trait. Is this true and if so what's the worse that can happen
Mont107
in
Sickle Cell Society
7 years ago
Sickle trait 's' blood count percentages.
Hi All, it's been a while since I've posted on here :-) I just wondered whether anyone here has had their sickle trait blood [u]percentage[/u] tested? My son has been very lethargic and complaining of leg pains for a number of weeks now. He was anaemic eighteen months ago and his vitamin d levels were
Hi All, it's been a while since I've posted on here :-) I just wondered whether anyone here has had their sickle trait blood [u]percentage[/u] tested? My son has been very lethargic and complaining of leg pains for a number of weeks now. He was anaemic eighteen months ago and his vitamin d levels were
Linda0076
in
Sickle Cell Society
7 years ago
Jeanie 1960
My daughter actually both of them have been diagnosed with fibromyalga but recently found out there is sickle cell trait in the family just wondering if any of you have been doagnosed with fibro or anyone 1 with fragile x carriers ir full blown seems the syptons are quite alike and just so happens we
My daughter actually both of them have been diagnosed with fibromyalga but recently found out there is sickle cell trait in the family just wondering if any of you have been doagnosed with fibro or anyone 1 with fragile x carriers ir full blown seems the syptons are quite alike and just so happens we
Jeanie1960
in
Sickle Cell Society
7 years ago
First time here
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
Hi everyone. I really don't know how to start and I honestly feel kind of embarrassed just throwing my business out for the entire world to see but I'm not sure what else to do. I'll keep this short, try to at least. I've been through Hodgkins Lymphoma twice, as recently as last year and beat it again
AntonioAndEmilio
in
Anxiety and Depression Support
7 years ago
Perplexing
Two painful crisis this year- had to unpaid leave! Why is sickle cell not given the same sort of respect say like diabetes?
Two painful crisis this year- had to unpaid leave! Why is sickle cell not given the same sort of respect say like diabetes?
Darrenmason1978
in
Sickle Cell Society
7 years ago
Transplant Patients - SCT/BMT
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Have you had or are a candidate for a Stem Cell Transplant or someone who is a caregiver of a SCT patient? If so, there is a fantastic Facebook support group for SCT and BMT patients and their caregivers. If you would like the link, please message me and I would be happy to provide it to you. NOTE:
Tinkerbellcgy
in
Non Hodgkin's Lymphoma Friends
7 years ago
Multiple myeloma
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yo everyone I have mutiple myeloma colapse playing tennis back in may 2016 though I rip tenons and hip joint which they thought had come away from hip joint back wards forwards to doctor s for the pain in my left leg and thigh and hip joint could sleep pain was horrible got diagnosis in Feb 2017 with
Yobigfoot247
in
Myeloma UK
7 years ago
Searching for a TKO
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
I am seeking out others who may have a shared experience as am in a frustrating and nerve wracking place. I was diagnosed in Aug 2016 with DLBC Lymphoma, stage OK ...dr felt so confident that 6 rounds "gold standard treatment with RCHOP" would CURE this. 3 cycles and scan, good progress (original
buttrflymeme
in
Non Hodgkin's Lymphoma Friends
7 years ago
Atypical CML / MPN
Hi, I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept. to 96 and a few 80's in April-May
Hi, I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept. to 96 and a few 80's in April-May
Acml
in
Leukaemia Support
7 years ago
Atypical CML / MPN
Hi, (Age 69 yrs + 9 mos now) I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept.
Hi, (Age 69 yrs + 9 mos now) I was diagnosed with Atypical Chronic Myeloid Leukemia (aCML) in September 2016 (WBC 37,000 on 8/23/16) - classed as an MPN. ("Looks" like CML, but no Philadelphia chromosome.) High neutrophils, thrombocytopenia (platelets have drifted down from roughly 130-140 in Sept.
Acml
in
Fight MPN
7 years ago
Leeds Forum
Hi everyone I would like to that Maz and her team for organising the Patients forum in Leeds yesterday. It was a great day full of information from Maz and the specialist Drs and nurses. Chris did a fantastic speech about his journey through MF and a Bone marrow transplant. I was diagnosed with MF last
Hi everyone I would like to that Maz and her team for organising the Patients forum in Leeds yesterday. It was a great day full of information from Maz and the specialist Drs and nurses. Chris did a fantastic speech about his journey through MF and a Bone marrow transplant. I was diagnosed with MF last
Skye333
in
MPN Voice
7 years ago
Stem Cell Transplants
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
This might be of interest to anybody who has to undergo a stem cell transplant: http://tinyurl.com/mnkrk78
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Bone Marrow Transplant for MCRPC
I have tried everything but chemo, and they haven't worked, so I am getting a new immune system. My next clinical trial is 'Sex-Mismatched Allogeneic Bone Marrow Transplantation for Men With Metastatic Castration-Resistant Prostate Cancer' https://clinicaltrials.gov/ct2/show/NCT02995330 I hear the
I have tried everything but chemo, and they haven't worked, so I am getting a new immune system. My next clinical trial is 'Sex-Mismatched Allogeneic Bone Marrow Transplantation for Men With Metastatic Castration-Resistant Prostate Cancer' https://clinicaltrials.gov/ct2/show/NCT02995330 I hear the
Beauxman
in
Advanced Prostate Cancer
7 years ago
COPD V STAGE, ALPHA-1ANTITYPSN,CGD
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Hi my name is Connie Im 45-year-old with Aplha-1 Antitypsn zz Genetic disorder and Chronic Granumotous Disease (CGD) with several other health issues that seem to be connected with two major diseases. Im in my last stage of COPD V. I use oxygen 24/7 My O2 levels are 96-98 with oxygen yet I struggle to
Cywebber
in
Lung Conditions Community Forum
7 years ago
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