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Age-related cataracts
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Optic nerve narrowing
Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. Stopped Actemra 2 months ago. My eyesight in my left eye has been changing rapidly over the past several months. It's gotten really blurry. I've never needed glasses for distance, but now it's hard to drive at night or see
Hi everyone, I've had PMR & GCA for 16 months. Currently on 15mg prednisone. Stopped Actemra 2 months ago. My eyesight in my left eye has been changing rapidly over the past several months. It's gotten really blurry. I've never needed glasses for distance, but now it's hard to drive at night or see
potterylady
in
PMRGCAuk
5 months ago
In hospital again
Sorry, I'm just letting you all know so I can get it off my chest. So after being in start September my pred went up to 20mg daily and life was great. Slowly it deteriorated, I cut the pred slightly getting down to 13 but this wasn't good so back up to 15. I started abatacept. A few days before I felt
Sorry, I'm just letting you all know so I can get it off my chest. So after being in start September my pred went up to 20mg daily and life was great. Slowly it deteriorated, I cut the pred slightly getting down to 13 but this wasn't good so back up to 15. I started abatacept. A few days before I felt
wilbertjellyfish
in
NRAS
5 months ago
pharyngeal pouch surgery
I had a pharyngeal pouch repair on Wednesday, they put 3 staples in my throat to close it, has anyone else had this done, and how long was it to feel ok again ?
I had a pharyngeal pouch repair on Wednesday, they put 3 staples in my throat to close it, has anyone else had this done, and how long was it to feel ok again ?
jools34
in
NRAS
6 months ago
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Cataracts & GCA
I wear glasses & was told by my Optician in Oct last year that I had the beginnings of
cataracts
('
age
related
') - I'm 64.
I wear glasses & was told by my Optician in Oct last year that I had the beginnings of
cataracts
('
age
related
') - I'm 64.
Janeval
in
PMRGCAuk
10 months ago
cataract surgery and prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
This morning I had my eyes tested. This time last year I was told I had the beginnings of a cataract in my left eye, due to prednisolone. Today I was told that, thanks to prednisolone, the cataract is now ready for surgery. I said I didn't want it yet, because I am trying to get my prednisolone dose
musicalJ
in
PMRGCAuk
19 days ago
UPDATE ON CATARACT SURGERY
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Hi all! Had my right eye done yesterday. Seems to have gone very well. Easy peezy. Good drugs. Took about 20 minutes at the most. Everything is so much brighter today. I can now see the dirt on my floors. Nasty! I didn't realize how difficult reading was and my specs weren't helping. Lol. I do have 3
Missus835
in
PMRGCAuk
29 days ago
CATARACT SURGERY & PRED
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Hi all. On Monday past I was supposed to drop my pred down to 10 mg. Instead, since Ive been in so much arm, shoulder, and neck pain I felt like I was flaring due to the fast taper rheumy has me on - I upped it to 16 mg for a few days. Today they called to say I could have my right eye cataract surgery
Missus835
in
PMRGCAuk
1 month ago
abatacept
hello, I’m about to start abatacept (Orencia) and would like to know if anyone here uses abatacept in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen. Could anyone confirm so that I can ask my rheumatologist
hello, I’m about to start abatacept (Orencia) and would like to know if anyone here uses abatacept in a prefilled pen. My gp seems to think it only comes as an infusion or as a prefilled syringe but I’m sure I have seen it referred to on fb as a pen. Could anyone confirm so that I can ask my rheumatologist
Emye343
in
NRAS
6 months ago
upcoming cataract surgery
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Any advice? do I take prednisone after surgery since I will be fasting overnight? How long do I have to wait until I can bend over? Does it take longer to heal with prednisone? I'm on 3 mg.
Paperroses
in
PMRGCAuk
2 months ago
cataracts b.c. of long-term steroids
Does anyone know what the symptoms of cataracts developing are, after long-term use of inhaled steroids and/or prednisolone? I've heard cataracts are common symptoms, and I wonder how one knows one is developing them. I've been on Trimbow 172.5 for 6 months and on 2 mg prednisone for 2.5 years; prior
Does anyone know what the symptoms of cataracts developing are, after long-term use of inhaled steroids and/or prednisolone? I've heard cataracts are common symptoms, and I wonder how one knows one is developing them. I've been on Trimbow 172.5 for 6 months and on 2 mg prednisone for 2.5 years; prior
runcyclexcski
in
Asthma Community Forum
7 months ago
Frequent Eye Prescription Changes and Cataract Surgery
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
montebello
in
PMRGCAuk
3 months ago
Lab Tests Indicate High Lipase
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Has anyone taking prednisone and Actemra had a high lipase on their routine lab tests. I’m on 4 mg prednisone and bi-weekly injections of Actemra for GCA. I get lab tests every month, and the past several months Lipase is high (usually around 60-70). I’ve done a CT scan with the dye, and was told
Pamk1949
in
PMRGCAuk
7 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
7 months ago
Stopped Actemra, new questions
Hi community, I decided to stop Actemra after 1 year so I am not on so many drugs. I was concerned about the risk of infections, diverticulitis, etc. I figured that so many people have done this with only Prednisone, that I can too. Here's what has happened since. I stopped Actemra 1 month ago. I
Hi community, I decided to stop Actemra after 1 year so I am not on so many drugs. I was concerned about the risk of infections, diverticulitis, etc. I figured that so many people have done this with only Prednisone, that I can too. Here's what has happened since. I stopped Actemra 1 month ago. I
potterylady
in
PMRGCAuk
7 months ago
diabetic macular oedema or not!
I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am
I went for my review at the eye clinic today and the doctor there said she couldn’t understand why my right eye was not improving but my right eye had. She also said that it was strange as my blood sugars were very well controlled. She went off to speak to a consultant and the result of that was I am
Koalajane
in
Macular Society
7 months ago
Cataract Laser Treatment
Within the last 18 months I have had cataracts removed in both eyes, all of a sudden my sight deteriorated! I went back to the hospital who then told me I needed Laser treatment in both eyes! My problem is I have now been on Hydroxychloroquine 400mg for 7 years and I feel worried 😟 that the drug is
Within the last 18 months I have had cataracts removed in both eyes, all of a sudden my sight deteriorated! I went back to the hospital who then told me I needed Laser treatment in both eyes! My problem is I have now been on Hydroxychloroquine 400mg for 7 years and I feel worried 😟 that the drug is
wakeham
in
NRAS
8 months ago
Tikosyn/Dofetilide
Just spent 2 1/2 day in hospital to get Tikosyn dosage right and get heart back into sinus rhythm. It Worked! I feel great. I using the generic Dofetilide. Much cheaper. I lost 7 1/2 lbs. on the bland meals. I call it "The Hospital Diet". 😊
Just spent 2 1/2 day in hospital to get Tikosyn dosage right and get heart back into sinus rhythm. It Worked! I feel great. I using the generic Dofetilide. Much cheaper. I lost 7 1/2 lbs. on the bland meals. I call it "The Hospital Diet". 😊
dixiedad
in
AF Association
8 months ago
cataract op
I am on Methotrexate and Benepali for RA and due to have a cataract op in about five weeks time. Has anybody who has had similar op and taking similar medication been advised to stop meds for a while.
I am on Methotrexate and Benepali for RA and due to have a cataract op in about five weeks time. Has anybody who has had similar op and taking similar medication been advised to stop meds for a while.
Pythagorus
in
NRAS
8 months ago
GCA symptoms
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
I have been suffering with PMR for going on 2 yrs. now. Developed GCA after cataract surgery within 4 days. Finally recognized by great Rheumatologist. I'm being treated with 8mls. liquid prednisolone twice a day. So far so good. Dr. recommended slow taper 1mls per week. Will start tomorrow.
pomeranion
in
PMRGCAuk
6 months ago
GCA and Ear Swelling, Pressure
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Can GCA cause ear swelling ? I have GCA and constant ear pressure, soreness. My general practitioner couldn’t find any thing that would cause it, nor could an ear-nose-throat doctor. Even did a hearing test and all said everything is good. Would this be a flare? I’m on Actemra and 4 mg prednisone
Pamk1949
in
PMRGCAuk
8 months ago
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