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BCD

Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
Hi, I have been recently diagnosed with Bietti Crystalline Dystrophy. I have been getting intravenous avastin in both eyes for wet macular degeneration since 11 years (when needed). But my diagnosis is relatively recent. I personally have neither met or known anyone with BCD and wanted to see if anyone
GC_0007
in Macular Society

“ Astrocyte dysfunction following molybdenum-associated purine loading could initiate Parkinson’s disease with dementia”

It is a period of transhumance here in my country (Lake Como), so it happens that a friend who currently defines himself as an "observer status only in HU" sent me this research linking purines with mobilden deficiency and neurological problems, but this only happens in humans and sheep due to a capacity
It is a period of transhumance here in my country (Lake Como), so it happens that a friend who currently defines himself as an "observer status only in HU" sent me this research linking purines with mobilden deficiency and neurological problems, but this only happens in humans and sheep due to a capacity
GioCas
in Parkinson's Movement

Has anyone taken Vinpocetine with Rasagiline and Amantadine?

If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
If you have taken this combination please let me know. I want to add Vinpocetine to my daily supplements but I’m concerned about any interactions with Amantadine and Rasagiline. Thank you my enlightened friends.
ShakenNotStirred
in Parkinson's Movement
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Vaccine

Getting my first shot of the Moderna vaccine today. I’m taking 7mg of prednisone and due to give myself my Actemra shot two days later. Is there any info about delaying your injection? Tried to contact my rheumatologist but he is away. His nurse didn’t have an answer for me.
Getting my first shot of the Moderna vaccine today. I’m taking 7mg of prednisone and due to give myself my Actemra shot two days later. Is there any info about delaying your injection? Tried to contact my rheumatologist but he is away. His nurse didn’t have an answer for me.
Blackcatlover
in PMRGCAuk

Advice please!

Hi, after an eye examination I've been advised that I have the very early stages of macular degeneration 'nothing to worry about at this stage' - apparently, but obviously annual checks are essential, and in the meantime, the very best thing I can do is to always wear sunglasses on bright days and to
Hi, after an eye examination I've been advised that I have the very early stages of macular degeneration 'nothing to worry about at this stage' - apparently, but obviously annual checks are essential, and in the meantime, the very best thing I can do is to always wear sunglasses on bright days and to
Chris1945
in AF Association

Key Difference – Thiamine Mononitrate vs Thiamine Hydrochloride

Both Thiamine Mononitrate and Thiamine Hydrochloride are sources of Thiamine (vitamin B1). Thiamine mononitrate is prepared from Thiamine hydrochloride by removing chloride ion and mixing the final product with a nitric acid. This is the key difference between Thiamine mononitrate and Thiamine hydrochloride
Both Thiamine Mononitrate and Thiamine Hydrochloride are sources of Thiamine (vitamin B1). Thiamine mononitrate is prepared from Thiamine hydrochloride by removing chloride ion and mixing the final product with a nitric acid. This is the key difference between Thiamine mononitrate and Thiamine hydrochloride
Farooqji
in Parkinson's Movement

Covid jab update

Received #1 injection ...Pfizer, 24 hours ago. No pain at injection site, not even sore shoulder this morning. All seems ok , so far. The clinic was well organized and seriously efficient. Parking was easy, with traffic directed quickly. The clinic entry was easy to locate, and we were quickly signed
Received #1 injection ...Pfizer, 24 hours ago. No pain at injection site, not even sore shoulder this morning. All seems ok , so far. The clinic was well organized and seriously efficient. Parking was easy, with traffic directed quickly. The clinic entry was easy to locate, and we were quickly signed
Purplecrow
in PMRGCAuk

Anticholinergic Drugs and citicoline

Can someone please tell me if citicoline is the opposite of a anticholinergenic drug and can/ should they be taken together? Do they offset each other’s effects? Does sertraline and sinemet have cholinergenic effects and is this why a drug like Kemadrin which is an anticholinergenic drug offset their
Can someone please tell me if citicoline is the opposite of a anticholinergenic drug and can/ should they be taken together? Do they offset each other’s effects? Does sertraline and sinemet have cholinergenic effects and is this why a drug like Kemadrin which is an anticholinergenic drug offset their
LAJ12345
in Parkinson's Movement

Covid jab, what are side effects for those of us taking pred?

I just received my appointment for my Covid jab, tomorrow afternoon. My question...should I take a bit extra prednisone to mitigate any side effects of the injection? I generally have a mild reaction, anytime I have an immunization injection. Anyone have opinion on this topic?? My PMR diagnosed
I just received my appointment for my Covid jab, tomorrow afternoon. My question...should I take a bit extra prednisone to mitigate any side effects of the injection? I generally have a mild reaction, anytime I have an immunization injection. Anyone have opinion on this topic?? My PMR diagnosed
Purplecrow
in PMRGCAuk

Perhaps raising the head of our bed a few inches. From Ian Fritzell's (a PWP) vlog last week. Who knows?? A mixed bag.

I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
I have not tried this myself, so I do not vouch for it, but I find Ian to be a reliable, objective source and a good guy, so I'll try it tonight. Vlog #154 My Progress With Glycine, Thiamine, nocturia and Inclined Bed Therapy 4 min VLOG https://www.youtube.com/watch?v=PJX318q7ang 5 min https://www.youtube.com
MBAnderson
in Parkinson's Movement

Chalazion after injection - how long should we leave it after shot before using hot compresses?

Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Hi guys, I had my lucentis shot last Tuesday (and a very scratchy shot it was too - my worst in two years). I have a repeated chalazion that comes up on the lid of that eye, and it's in the process of flaring now. Has anyone been given guidance on how long we should leave using microwavable compresses
Sianana
in Macular Society

Double or blurred vision

Does anyone get double or blurred vision for a short time after taking either apixaban or Bisoprolol?
Does anyone get double or blurred vision for a short time after taking either apixaban or Bisoprolol?
allanmichael
in AF Association

Macular degeneration

I have been receiving injection in my eye since September 2019, for what I thought was a gramuloma in the macula.. I asked the nurse today what I have a she said macular degeneration. The eye dr never mentioned this to me, she just kept telling me injection were for fluid or odema ... I am worried
I have been receiving injection in my eye since September 2019, for what I thought was a gramuloma in the macula.. I asked the nurse today what I have a she said macular degeneration. The eye dr never mentioned this to me, she just kept telling me injection were for fluid or odema ... I am worried
Moddy22
in Macular Society

I just joined today

So happy I found this place! It is a treasure trove of information. I am an 83-year-old woman from California with macular degeneration. It has been very slowly progressing for about 10 years, but recently one eye progressed to the wet form. I have had two Avastin injections and am due for a third next
So happy I found this place! It is a treasure trove of information. I am an 83-year-old woman from California with macular degeneration. It has been very slowly progressing for about 10 years, but recently one eye progressed to the wet form. I have had two Avastin injections and am due for a third next
oldoakowl
in Macular Society

My fasting Blood sugar test was repeated and found to be 77mg/dL

In continuation to my previous three posts ( which you must read ), I am pleased to post my fasting blood sugar readings. The screen also shows my vitamin B12 & vitamin D level . My sufficient D level in my blood seems to have protected me from Covid19 so far 🙏with all blessings from "SUN GOD" , though
In continuation to my previous three posts ( which you must read ), I am pleased to post my fasting blood sugar readings. The screen also shows my vitamin B12 & vitamin D level . My sufficient D level in my blood seems to have protected me from Covid19 so far 🙏with all blessings from "SUN GOD" , though
namahaAdministrator
in Diabetes India

Anyone only taking Actemra

I’ve been on Actemra injections over 3 seems like there is no light at the end of the tunnel. I really am against using Prednisone
I’ve been on Actemra injections over 3 seems like there is no light at the end of the tunnel. I really am against using Prednisone
mpl615
in PMRGCAuk

Will I ever be off pred with GCA?

Quick question. I have been told by my rheumatologist , that I will be on Actemra and 5mg pred for the rest of my life. I visited an eye doc for some problems with my eyes, and he was very surprised to find out I was still on prednisone after 2 years of my diagnosis. I know things are different over
Quick question. I have been told by my rheumatologist , that I will be on Actemra and 5mg pred for the rest of my life. I visited an eye doc for some problems with my eyes, and he was very surprised to find out I was still on prednisone after 2 years of my diagnosis. I know things are different over
luv2read
in PMRGCAuk

COLONOSCOPY AS A PD PATIENT

Hi anyone who has had a colonoscopy done before, please share your experiences as regards medication management, bowel movements with laxative and Pd symptoms. Also how long was your recovery from anesthesia? I had one procedure done before I was diagnosed with Pd, so did not know I had Pd then , no
Hi anyone who has had a colonoscopy done before, please share your experiences as regards medication management, bowel movements with laxative and Pd symptoms. Also how long was your recovery from anesthesia? I had one procedure done before I was diagnosed with Pd, so did not know I had Pd then , no
OREOLU
in Parkinson's Movement

Blue toe syndrome

Re Blue Toe Syndrome. I have been on Apixaban for 4 years now and only had 2 bouts of AF , fingers crossed. I have however had a terrible week, 2 of my toes have gone blue with a small plaque breaking off and blocking the blood supply. The pain is agonising. There is some thought it could be related
Re Blue Toe Syndrome. I have been on Apixaban for 4 years now and only had 2 bouts of AF , fingers crossed. I have however had a terrible week, 2 of my toes have gone blue with a small plaque breaking off and blocking the blood supply. The pain is agonising. There is some thought it could be related
Cabert
in AF Association

Actemra fatigue

I’ve been giving myself my Actemra injection every Monday morning at 7:00 am. By 10:00 I feel like a freight train has hit me- not sick just really tired. I’m thinking maybe I should inject at night. Anyone else feel like this? Is it alright to inject at night?
I’ve been giving myself my Actemra injection every Monday morning at 7:00 am. By 10:00 I feel like a freight train has hit me- not sick just really tired. I’m thinking maybe I should inject at night. Anyone else feel like this? Is it alright to inject at night?
Blackcatlover
in PMRGCAuk
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