Experiences with

Age-related cataracts

The first-ever treatment for dry age-related macular degeneration (AMD) will be the topic of our next My Macular and Me webinar. Pegcetacoplan, which will be known as Syfovre, was approved for use in the US in February to treat patients with late-stage dry AMD – often referred to as geographic atrophy

Wondering if anyone has had dental extraction while on Actemra. I was told by my dentist that it affects the jaw and I would need to see a specialist since an extraction would be problematic? I am in the UK and have weekly Actemra injections. Thx

Some years ago I had occasional nose bleeds,usually in the winter and made worse by going into dry atmosphere and from one nostril only. Starting Saturday 6th May I had 5 quite heavy ones,including clots. I managed to see an actual doctor yesterday who diagnosed an infection so prescribed Naseptin cream

Hello, Does anyone have experience with taking clonidine for hypertension? My FWP has been experiencing fluctuating blood pressure (anything from 102/66 or lower to 180/90 or even 200/80 on occasions) and his cardiologist has been adjusting his meds but they don’t seem to be that effective. We

Hi Everyone, I’m wondering if there is anyone on here who is managing their Actemra injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘

Our second My Macular and Me webinar of the month will welcome researchers from the Royal Holloway University of London who will discuss their latest research on Charles Bonnet Syndrome (CBS). Professor Robin Walker and his team are the first to study the effectiveness of recommended techniques to manage

I am down to 4.5 mg of Prednisone. Started at 15 a couple of years ago. Have had about a year of monthly Actemra infusions (monthly infusions not weekly shots). I don’t feel different after them. Why shouldn’t I stop taking them? I still have some heaviness in arms/legs and some minor pains on occasion

I’m wondering if it is a good idea to increase my prednisone dose ahead of cataract surgery next week?. It’s expected to be a routine and ‘non invasive ‘ procedure but all the same sure to be hard body. I’m on 6mg prednisone and started at 60mg for GCA just over four years ago. I’ve been in the care

I have been on long term prednisolone For GCA & PMR since 2014.Since 2020 I have been on 2mg each day and instructed to stay at 2mg for the rest of my life as a maintenance dose( 86 years old In September Last Tuesday Feb.28th I had a cataract operation pleased to say all went well Should I have

Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes

This is my second time with GCA- I tapered prednisone slowly over the last 5 years without Actemra. My TAB was negative, but was treated for GCA/PMR. Last summer (after being completely off prednisone) I had several amaurosis fugax incidences, as well as jaw and ear pain). A positive temporal biopsy

I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it

has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog

Somebody told me they were taking NAD+. I was surprised you could even by NAD+. I thought everybody took NAD precursors (NA, NR) but I see Amazon sells NAD+ https://www.amazon.com/Liposomal-Supplement-Absorption-Nicotinamide-Alternative/dp/B09V6X1PWM?source=ps-sl-shoppingads-lpcontext&ref_=fplfs&smid

Hi, Reading other members' interpretations of their BMB reports has led me to look at mine more closely, and would value your input. I had my second one over a year ago and was told like my first one everything was fine - no fibrosis. I have PV and take Rux. I didn't question it. However, In the Trephine

Like many aspects of life that we're all trying to grapple with, good health comes from a very fine balance. There is no 'one way' to do things, but a sweet spot in the middle. And I believe it's the same with diet, in particular B12. B12 is a regulator of homocysteine. Low B12 is a driver for high

I have had four infusions of Actemra. I am down to 4 mg of prednisone with no real pain. I really would like to stop the Actmera due to the side affects. At what point is it okay to stop it?

Has anyone who is triple antibody positive being converted to the newer Anticoagulants known as DOAC such any of the following medications dabigatran (Pradaxa), rivaroxaban (Xarelto), apixaban (Eliquis), edoxaban (Savaysa), and betrixaban (Bevyxxa) If you have, are you satisfied and would you say its

Actemra shots, specifically the Epi-Pen....still having problems injecting...have to push hard until I feel needle pierce skin....this morning I felt medicine drip down my leg, but some went in because I had blood and a pin hole in my leg. Don't know if i should do another or just wait until next week

Hello All, Not been on line a lot as not long had one cataract sorted. Next one due at the end of January. Was asked to stop apixaban 3 days before with no problems. All quite easy and no problems - apart from my wanting to rub my eyes when tired - which is quite often. Wife doing all the drops and