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Experiences with
Age-related cataracts
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Cataract Surgery: NHS referral for fast treatment
I’m aware that cataracts are a common side effect of steroids. I’ve developed cataracts in both eyes, rapid growing and last week had surgery for replacement lens in one eye. The waiting time for NHS treatment at the hospital eye clinic is over three years. I was referred for urgent surgery under
I’m aware that cataracts are a common side effect of steroids. I’ve developed cataracts in both eyes, rapid growing and last week had surgery for replacement lens in one eye. The waiting time for NHS treatment at the hospital eye clinic is over three years. I was referred for urgent surgery under
Hulotsholiday
in
PMRGCAuk
1 year ago
25 years of daily heavy drinking
hi, I have been one of the lucky ones, and I’m not writing this to gloat, I’ve read many of the stories on here about the effects of drinking, and it has been through reading these and re-assessing my own lifestyle that I was able to finally go to the doctor and tell him the truth about my drinking.
hi, I have been one of the lucky ones, and I’m not writing this to gloat, I’ve read many of the stories on here about the effects of drinking, and it has been through reading these and re-assessing my own lifestyle that I was able to finally go to the doctor and tell him the truth about my drinking.
Menomosso
in
British Liver Trust
1 year ago
Carvedilol
Hi, I've had my second (annual) gastroscopy since my Cirrhosis was diagnosed last year in February. The results were pretty much as the first one, so no change. The doctor who performed this test, different to the first one, suggested that my GP put me on Carvedilol. GP prescribed it and I have now
Hi, I've had my second (annual) gastroscopy since my Cirrhosis was diagnosed last year in February. The results were pretty much as the first one, so no change. The doctor who performed this test, different to the first one, suggested that my GP put me on Carvedilol. GP prescribed it and I have now
eileenet49
in
British Liver Trust
1 year ago
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Fatty Liver
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Betsy5
in
British Liver Trust
1 year ago
PREDNISONE TAPERING WITH ACTEMRA
This is my second time with GCA- I tapered prednisone slowly over the last 5 years without Actemra. My TAB was negative, but was treated for GCA/PMR. Last summer (after being completely off prednisone) I had several amaurosis fugax incidences, as well as jaw and ear pain). A positive temporal biopsy
This is my second time with GCA- I tapered prednisone slowly over the last 5 years without Actemra. My TAB was negative, but was treated for GCA/PMR. Last summer (after being completely off prednisone) I had several amaurosis fugax incidences, as well as jaw and ear pain). A positive temporal biopsy
Pamk1949
in
PMRGCAuk
1 year ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
Good news
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
scampi2122
in
British Liver Trust
1 year ago
Confused and stressed
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
Missmanor2
in
British Liver Trust
1 year ago
I don’t understand my diagnosis as it’s changed from being overdosed by opiates (hospital error). Now it’s change.
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
In 2019 I was found on the floor & I don’t know or recall nothing. I could not see as I had balloon out so big that I was unrecognisable. It was a while to get my sight back but I was also told that I was had Liver failure. All my different consultants got together and realised that I was on so much
Teanna
in
British Liver Trust
1 year ago
Thiamin
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Hi, my gp has prescribed Thiamine, she hasn't said how long I need to take it for ? I have a little bit of fatty liver, but that's all I know, what sort of question should I be asking and how worried should I be?
Jajay
in
British Liver Trust
1 year ago
Advice for self-injecting.
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
Hello, I am going to experiment with self injecting. Have ordered this off amazon.de: Pascoe® Vitamin B12 Depot Injectopaz 1500 μg 10 x 1 ml Ingredients: 1 ampoule 1 ml contains: active ingredient: hydroxocobalamine acetate 1500 μg. Other ingredients: sodium chloride, water for injection purposes
DocAJB
in
Pernicious Anaemia Society
1 year ago
Return to running after 2 months
I was running week 2 or 3 times a week after completing Couch to 5k in summer 2020. However, my last run was on 20 February 2023. Since then I have been unable to run for various reasons, including cataract surgery. I am hoping to start running again this week and would like advice as to how to re-start
I was running week 2 or 3 times a week after completing Couch to 5k in summer 2020. However, my last run was on 20 February 2023. Since then I have been unable to run for various reasons, including cataract surgery. I am hoping to start running again this week and would like advice as to how to re-start
Notdeterred
Graduate10
in
Bridge to 10K
1 year ago
Official Statistics Liver disease profiles, July 2023 update - published 4 July 2023
For those of you who may be interested, the latest liver disease profiles for England were released this morning at 9:30 am, by the Office for Health Improvement & Disparities. It will come as no surprise to find that liver disease has increased exponentially. These latest set of figures incorporate
For those of you who may be interested, the latest liver disease profiles for England were released this morning at 9:30 am, by the Office for Health Improvement & Disparities. It will come as no surprise to find that liver disease has increased exponentially. These latest set of figures incorporate
Richard-Allen
in
British Liver Trust
1 year ago
Anybody Know Anything About "Nicotinamide Adenine Dinucleotide" (NAD+) Supplement?
Somebody told me they were taking NAD+. I was surprised you could even by NAD+. I thought everybody took NAD precursors (NA, NR) but I see Amazon sells NAD+ https://www.amazon.com/Liposomal-Supplement-Absorption-Nicotinamide-Alternative/dp/B09V6X1PWM?source=ps-sl-shoppingads-lpcontext&ref_=fplfs&smid
Somebody told me they were taking NAD+. I was surprised you could even by NAD+. I thought everybody took NAD precursors (NA, NR) but I see Amazon sells NAD+ https://www.amazon.com/Liposomal-Supplement-Absorption-Nicotinamide-Alternative/dp/B09V6X1PWM?source=ps-sl-shoppingads-lpcontext&ref_=fplfs&smid
Bolt_Upright
in
Cure Parkinson's
1 year ago
Understanding BMB
Hi, Reading other members' interpretations of their BMB reports has led me to look at mine more closely, and would value your input. I had my second one over a year ago and was told like my first one everything was fine - no fibrosis. I have PV and take Rux. I didn't question it. However, In the Trephine
Hi, Reading other members' interpretations of their BMB reports has led me to look at mine more closely, and would value your input. I had my second one over a year ago and was told like my first one everything was fine - no fibrosis. I have PV and take Rux. I didn't question it. However, In the Trephine
JP1952
in
MPN Voice
1 year ago
steroid injections
has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog
has anybody had triamcinolone injection for macular oedema. I am having a cataract op in 3 weeks time and I will be having this injection around the eye at the same time. I think it is also called Kenalog
Koalajane
in
Macular Society
1 year ago
osteopenia worse, im on enoxaparin/ lovenox any thoughts on vitk2?
I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
I had repeat dexascan says my hips are getting worse, anyone on enoxaparin/lovenox taking vit k2 for “calcium to bone absorption”? Docs are talking about fosamex, etc, but I would rather do vitamins if possible. Not looking for medical advice but would like to know if others with APS are taking it
Wittycjt
in
Hughes Syndrome APS Forum
1 year ago
New test reliable?
Hello everyone. I hope your Saturday is going well. I spoke with my GP this morning to receive blood test results. She said my liver tests are good, my ALT only 50. She explained they did a fairly new test too, called fibrosis 4, known as fib 4 and that assessed scarring of the liver. It was really low
Hello everyone. I hope your Saturday is going well. I spoke with my GP this morning to receive blood test results. She said my liver tests are good, my ALT only 50. She explained they did a fairly new test too, called fibrosis 4, known as fib 4 and that assessed scarring of the liver. It was really low
LtAngua52
in
British Liver Trust
1 year ago
Gamma GT
I was previously a heavy binge drinker, i had liver function tests which were ok but slightly raised GGT. I stopped drinking completely a couple of months ago and had the blood test again, it has risen rather than going down. i am otherwise very fit, healthy BMI and a good diet. Does anyone know why
I was previously a heavy binge drinker, i had liver function tests which were ok but slightly raised GGT. I stopped drinking completely a couple of months ago and had the blood test again, it has risen rather than going down. i am otherwise very fit, healthy BMI and a good diet. Does anyone know why
annebyrne21
in
British Liver Trust
1 year ago
Post Pred motivation?
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hi all, I'm finally off Pred after starting at 50mg back in Aug '21 for a crippling PMR attack. I took my final (hopefully) 0.5 mg about three weeks ago. However, I'm now often feeling very slow and lacking in motivation to do much at all. "Brain dead" would be a good way to express it. This is not
Hidden
in
PMRGCAuk
1 year ago
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