In hospital again

[wilbertjellyfish]

Sorry, I'm just letting you all know so I can get it off my chest. So after being in start September my pred went up to 20mg daily and life was great. Slowly it deteriorated, I cut the pred slightly getting down to 13 but this wasn't good so back up to 15.

I started abatacept. A few days before I felt a bit fluey, I mentioned to the nurse when she demonstrated the injection but she didn't seem concerned.

Next week feeling a bit worse but variable then one day felt awful. This pattern continued.

Got bloods last Friday, Tuesday just couldn't get dressed to go work.

Rang rheumy nurse CRP 120 go to a+e..don't pass go etc etc.

So here I am. They think Maybe I have an infection.

Will I ever be ok? I can't believe I feel this crap on 20mg pred . I can't see myself getting better ever.

I'm just having a bad run but it's been an awful year.

[vonniesims]

So sorry .Hope they get this sorted and you start to feel better

[medway-lady]

I’m so sorry to read this and hop you get some relief soon, I had Abatercept fora while but it never did much except give me dreadful eczema. I stopped it as the skin was really painful and so sore. Will you be able to change ?

[Boxerlady]

So sorry - hope that the hospital sort you out quickly and that things are much better for you in 2024 💐

[Fruitandnutcase]

Really sorry you are feeling so awful. Hopefully now that you’re in hospital they will sort you out, if it’s an infection they can give you IV antibiotics that ought to sort out any infection. 💐

[Gnarli]

Oh bless you. Let's hope that the hospital can sort your problems out pdq. I'm sending huge virtual hugs

[Deeb1764]

Sending hugs and hope you are out soon. I know what you mean re 2023 feels like a constant battle to be upright x

[Amnesiac3637]

When you feel so crap and nothing helps it drags you down and down till you do feel as if normal service’ll never be resumed. If you’ve got an infection, though it may take longer than you’d like, it’s treatable. It’s usually a combination of factors that clobber you but with any luck, now you’ve been admitted to hospital they should be able to sort you out. Don’t leave till they have! All the very best and hope you feel much better very soon.

[springcross]

Sorry to hear that wjf. Hope they can sort it soon and that you'll feel much better.

[J1707-]

God bless you hope you improve quickly. Off load any time.

[Stills]

wishing you well soon

[Oshgosh]

that’s rubbish for you. I’ve had 4 admissions this this year 3 with chest related stuff. The latest was with a broken hip.

Being me I had a heart attack on the table the surgeon told my husband that it was the safest place for it to happen!

7 weeks in hospital and 2 weeks in rehab I’m going home soon.

I’m frightened what will happen next.

I really hope you get sorted soon

[Pythagorus in reply to Oshgosh]

Poor you , you have had a bad time. It will take a little time to regain your confidence but I am sure you will feel a lot better when you are back home . I hope your hip is mending well and best wishes for the future.

[wilbertjellyfish in reply to Oshgosh]

Poor you. I've just got an infection of some discription but having been a healthy person I've now been in hospital three times in the past year.Be kind to yourself and give your self time to heal.

[smilelines]

This is terrible and I really think having inflammatory arthritis is terrible and sucks big time for so many reasons. May you feel OK soon (I feel like OK is realistic).

[wilbertjellyfish in reply to smilelines]

Thanks. I could cope with the joint pain most of the time but the whole body inflammation and feeling like you've been run over by a bus is just hard to manage.

[Kati66]

Sorry to hear you’ve had such a bad time and to be in hospital sucks!! 😞😞😞 I hope they will be able to get on top of the infection asap 🤞🏻🤞🏻🤞🏻hugs xxx

[Memaw21]

hope you feel better soon 💜💚

[Haz58]

Im so sorry to read this. I hope they get you feeling much better very soon! The nurse that rang me to train me for benepali jab did the same to me, iitold her I had a bit if a cough and cold but she didn't bother. After 3 weeks of jabs I'm now off them and on antibiotics as I've got crackles in my lungs and the cough is worse. Xx

[wilbertjellyfish in reply to Haz58]

Sorry to hear that. Makes you wonder doesn't it. Hopefully your antibiotics are working.

[Plumcrumble]

Hope they sort you out quickly and you feel better soon 💐💕

[oldtimer2]

It is so frustrating to feel so unwell on 20mg prednisolone (I share your problem right now, usually, I too, feel hypomanic on that dose and it's concerning when you don't!). It's worrying and you feel as if the medical team don't share your anxiety that something nasty is going on in the depths of your immune system.

I do wish you a speedy recovery on this antibiotic course and a return to the feeling that you are in control of your body again.

[Typsey]

bless you. Hope the hospital help and you get relief and back on track asap. Sending hugs 🤗

[Blackberrywine]

I'm so sorry to hear this. Wishing you a very speedy recovery.

[Evie3]

I feel for u😭. Don’t think my ESR has ever been that high but no wonder you feel so so poorly. Annoying I know but at least u r in the right place for them to treat and monitor you and get back on track. 🙏

[Green230461]

This is not great news ! Hopefully some genius will come and help you out soon! In the meantime count on us we are routing for you 🌻

[Monkeysmum]

So sorry to read this wjf. Sending you a big hug 🤗 and hoping that they work out what is going on and start appropriate treatment quickly. Xx

[spartacus101]

I am sorry to hear that the inflamation isn't yet under control . It is tiring and frustrating when there doesn't seem to be a let up and you don't get time off for good behaviour. I hope the hospital are able to find something that is really effective for you.

[Happy5]

Awww poor you hope they sort you asap ? 🤗

[Moonandm]

Hope you get sorted soon. It’s so hard for you.

My son has been on prednisolone all year for ulcerative colitis,just come out of hospital for the 6th time this year. Every time they tell him he can’t have any more steroids but then give them to him as they don’t seem to know what else to do. He’s started on a biologic but has only had 2 doses before he got bacteremia and flu.

You will be ok one day,you need a nurse or dr to become your champion and find the right treatment combination but it’s very frustrating for you .

Good luck

[Mmrr]

What a year you have had, hopefully 2024 will be better for you. Best wishes.