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Experiences with
Androgen deprivation therapy (ADT)
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intro / husband in critical care
Hi My husband has a road accident on 24/11 suffered an tbi and is currently in critical care. He has been off sedation since about the 27/11 but is still unconcious. He is responding to pain and has started to lift both arms when nurses fiddle with his tubes. He was off the ventilator all day yesterday
Hi My husband has a road accident on 24/11 suffered an tbi and is currently in critical care. He has been off sedation since about the 27/11 but is still unconcious. He is responding to pain and has started to lift both arms when nurses fiddle with his tubes. He was off the ventilator all day yesterday
Lunalg
in
ICUsteps
7 months ago
? Cover required for endometrial biopsy
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
PPop
in
PMRGCAuk
7 months ago
My friend feeling numbness in feet and legs and losing weight
My friend with PC had RT and is on
ADT
.... since march 2022. However, doctor did not go for Pet scan....in France they stay with MRI, CAT scan and bone scan....
My friend with PC had RT and is on
ADT
.... since march 2022. However, doctor did not go for Pet scan....in France they stay with MRI, CAT scan and bone scan....
Karmaji
in
Advanced Prostate Cancer
2 years ago
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Ascende RT-trial
Basically it said for high risk patients the combo of
ADT
, Radiation and Brachy was the way to go. Brachy Boost is the term I think. I look on the internet for updates but can't find any. Anybody heard about any updates on this info or know anything more?
Basically it said for high risk patients the combo of
ADT
, Radiation and Brachy was the way to go. Brachy Boost is the term I think. I look on the internet for updates but can't find any. Anybody heard about any updates on this info or know anything more?
esperandrich
in
Prostate Cancer Network
2 years ago
Endocronologist experience
Hi there, I recently had a top end and very experienced endocrinologist tell me that the 1.6mcg of levo per KG in weight was an old fashioned and outdated theory. Is this the case? I have just upped to 100mcg and was just wondering if I’m on the right dose. He seems to think that’s ok for me.
Hi there, I recently had a top end and very experienced endocrinologist tell me that the 1.6mcg of levo per KG in weight was an old fashioned and outdated theory. Is this the case? I have just upped to 100mcg and was just wondering if I’m on the right dose. He seems to think that’s ok for me.
Needlehaystax
in
Thyroid UK
9 months ago
what’s typically after taxotere?
My father did 10 days radiation to lumbar spine and pelvis, is doing
ADT
(zytiga,Lupron) as well the xgeva. He just did his first round of taxotere last week and we’re gonna get him through the 6 rounds, god willing. What’s typically the next step after chemo? Does he then do immunotherapy?
My father did 10 days radiation to lumbar spine and pelvis, is doing
ADT
(zytiga,Lupron) as well the xgeva. He just did his first round of taxotere last week and we’re gonna get him through the 6 rounds, god willing. What’s typically the next step after chemo? Does he then do immunotherapy?
Shelboop
in
Advanced Prostate Cancer
2 years ago
PSA after the radical prostatectomy
I started Diphereline shot (
ADT
) and Casodex pill two weeks ago. I don't have radiation as my leakage is bad and I am 80 Any advise? Thank
I started Diphereline shot (
ADT
) and Casodex pill two weeks ago. I don't have radiation as my leakage is bad and I am 80 Any advise? Thank
Formosan
in
Advanced Prostate Cancer
1 year ago
Get a bone density test if you have PC and are taking Abiraterone etc
ADT
leads to accelerated bone loss. So does being 70 years plus of age. A bone density test is painless and quick and can see signs well before osterporesis fractures etc. I'm on 5 months of
ADT
(Firmagon first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
ADT
leads to accelerated bone loss. So does being 70 years plus of age. A bone density test is painless and quick and can see signs well before osterporesis fractures etc. I'm on 5 months of
ADT
(Firmagon first, RT with Lupron, then after RT added Abiraterone plus Prednisone.) GLTA
Derf4223
in
Advanced Prostate Cancer
2 years ago
Stability of NDT at 5C - stored in the fridge
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
Hello lovely people I am an idiot! It’s official. I’ve been storing my NDT in the fridge instead of at room temperature. Efra (the manufacturer) have said they have no data to confirm if it’s still effective, so said I should stop taking it. That’s £300 worth of NDT, which I just cannot afford to throw
PixieElv
in
Thyroid UK
9 months ago
ADT working well
PSA was rising , went to 0.5 so back on systemic treatment, took casodex for a month then had a 3 month zoladex injection at the beginning of December , had bloods done yesterday and great result already 0.01 .. we are so happy and hoping the treatment will be intermittent..
PSA was rising , went to 0.5 so back on systemic treatment, took casodex for a month then had a 3 month zoladex injection at the beginning of December , had bloods done yesterday and great result already 0.01 .. we are so happy and hoping the treatment will be intermittent..
Merlin1960
in
Advanced Prostate Cancer
2 years ago
NDT Supplier - from America
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
dear everyone just wondered if we are allowed- if anyone could pm me a supplier for NDT. I am currently with an Endo who will prescribe T3 but is really not keen to give me NDT. I did have it many years ago from a UK private doctor but since he passed away I have not been able to get it. my apologies
Delilahmy
in
Thyroid UK
9 months ago
Patting the Shark - A Surfers Journey, Learning to Live Well with Cancer
Ultimately, to bring better understanding, provide better support and insight into what for many is the devastating impact of
ADT
especially, but not confined to, younger men.
Ultimately, to bring better understanding, provide better support and insight into what for many is the devastating impact of
ADT
especially, but not confined to, younger men.
marnieg46
in
Advanced Prostate Cancer
2 years ago
Results are in (Update 2/17/23)
So recurrent after radiation and 2 years
ADT
. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear.
So recurrent after radiation and 2 years
ADT
. PSA pretty close to 3 by now. Bone and CT scan done because my cheap insurance company denied the Pylarify until after the other 2. I don't mind the extra contrasts, barium or whatever hell else they gave me. I keep asking is it nuclear.
treedown
in
Advanced Prostate Cancer
1 year ago
please could I have feedback on my results?
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
I’ve been on NDT under a private consultant now since March and these are my latest results. I feel like my symptoms are mostly managed with the exception of sleep. Do you think I need a 1/4 grain increase or should I just leave be? My waking temperatures are still low although my general coldness has
Knackeredandcross
in
Thyroid UK
9 months ago
NDT range
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
wanted to ask you … Iam on NDT currently and wanted to ask what are tsh , t4 and t3 ideal range please ? Where the numbers should be ?
Ari3
in
Thyroid UK
9 months ago
what’s 1 grain of NDT in Levo please?
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
hello lovely people How much T4 and T3 are in 1 grain of NDT please? Thank you
PixieElv
in
Thyroid UK
9 months ago
NDT Thiland
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Hi, I’ve been taking armour thyroid for 9 months or so now. I’m now up to 2.5 grains and the private clinic I use don’t think I’m at my optimal dose yet. I feel a lot better but the problem is that it’s very expensive. Dose anyone have any advice about getting NDT from Thailand and what brand. Thanks
Bigfraz76
in
Thyroid UK
9 months ago
No SOC treatment. Metastatic lymph nodes by PSMA-PET. Rising PSA. Bone/CT scans neg. Waiting to die.
I had a radical prostatectomy early but not radiation or
ADT
. I worried about the side effects of
ADT
in particular, which turned out to be warranted. I had my third bone scan and a new CT scan two weeks ago. Both unremarkable with no cancer identified.
I had a radical prostatectomy early but not radiation or
ADT
. I worried about the side effects of
ADT
in particular, which turned out to be warranted. I had my third bone scan and a new CT scan two weeks ago. Both unremarkable with no cancer identified.
maggiedrum
in
Advanced Prostate Cancer
2 years ago
so many supplements, so much money - any advice for lowering the cost?
hi everyone, I’ve just added up how much I’m spending on ndt and supplements and it’s an awful lot of money. I wondered if anyone had advice on cheaper options or those they think are unnecessary. I’ve got hashimotos and have also been diagnosed with ME/ CFS - these are a mixture of things recommended
hi everyone, I’ve just added up how much I’m spending on ndt and supplements and it’s an awful lot of money. I wondered if anyone had advice on cheaper options or those they think are unnecessary. I’ve got hashimotos and have also been diagnosed with ME/ CFS - these are a mixture of things recommended
Mazes
in
Thyroid UK
9 months ago
Metastatic PC
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
First diagnosed in 2017 with high grade PCand put on hormone therapy until Nov. 2019. At that time I had 28 radiation treatments and PSA dropped to 0.05. No therapy from Jan 2023 and ongoing. PSA started rising in early 2023 from 0.05, 0.08, 0.66, to 2.8 in June 2023. PSMA Pet scan shows the cancer
saniku
in
Advanced Prostate Cancer
1 year ago
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