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Adrenal cortex extract (ACE)
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Taking Prolia with Rusolitinib (Jakafi)
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
I have been taking Jakafi (15 mg) twice a day for the last 3 years for my polycythemia vera. I also take blood thinners for my thrombocytosis since I have had blood clots in my lungs twice in the last 2 years. I have had osteoporosis for a while, but my T scores from bone density test are really
Buggerbear
in
MPN Voice
2 months ago
Stuck cough on the throat
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Hi Everyone, My mum had her meal this evening and looks like the food went the wrong way, she has been coughing, she feels like there is cough around her throat that she can’t seem to cough, Has anyone experienced this?
Candor8
in
PSP Association
2 months ago
Cold Calling
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
I have suddenly started receiving calls from healthcare businesses. Two this week, I must have clicked on something.
Tykelady
in
Lung Conditions Community Forum
2 months ago
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Cold weather trigger?
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Does anyone else find that getting cold or being out in cold weather / air can cause problems?Cold air in the throat while out power walking, or simply realising I'm cold - it happened today - can combine to make me realise I'm going to become tachy and need warmth and to sit down (get a pip Bisoprolol
Garaidh
in
Atrial Fibrillation Support
2 months ago
Rituximab- cold- flu - covid
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
Good day everyone I’m 8 weeks into my Rtx infusion and was exposed to someone who had one of the above. I’m literally …. bricks. Any thoughts please? Thank you
ks1966
in
NRAS
2 months ago
chest infection
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a chest infection for 2 weeks. It is definitely better this week than last week and the guaifenesin I have taken has helped. I do not feel unwell
kalgoorlie
in
PMRGCAuk
2 months ago
Extrahelp
Does anyone have an update on taking vitB3 niacin? After asking what I could personally do to help with my glaucoma, apart from the obvious healthy eating and regular excercise my consultant wrote down supplements, albeit no strength was mentioned. So since nov 2022 (the last time I saw that particular
Does anyone have an update on taking vitB3 niacin? After asking what I could personally do to help with my glaucoma, apart from the obvious healthy eating and regular excercise my consultant wrote down supplements, albeit no strength was mentioned. So since nov 2022 (the last time I saw that particular
Extrahelp
in
Glaucoma UK
1 year ago
Period flu?
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Just wondering if anyone is experiencing what I am. I underwent excision surgery for stage 3 endo in November, however more recently the pain is worsening again but right now that’s not the worst symptom- the last 3/4 months, either during or instantly after my period I’m hit with the WORST flu/cold
Ps-endo
in
Endometriosis UK
2 months ago
COPD and Pneumonia
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
Hello. My mom has severe COPD and got out of the hospital last week after a 3 week stay for pneumonia. She’s had COPD for 16 years and just went on O2 about a year ago. She’s always done well with the COPD and never had an exacerbation until the pneumonia. I know it can take a very long time for the
nyla668
in
Lung Conditions Community Forum
2 months ago
Asthma
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
I’m on a course of steroids for my asthma is it normal to feel tired after a flare up as I wake up coughing in the night with a silly tickly cough and it has just left me feeling really tired , also what cough syrups are good for nighttime with out upsetting my asthma.
E44E44
in
Asthma Community Forum
2 months ago
Drugs interactions
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
I am on Lupron as the only current PC treatment. Testosterone is <>1% as of Dec/18. PCP is looking to get me on (very expensive , hard to get) Serostim to help me with HIV/PC wasting SE's Thoughts, please be kind as ADT makes me get upset for nothing. Thank you.
Blueribbon63
in
Advanced Prostate Cancer
6 months ago
Issues sleeping, and other things
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
Diagnosed with chronic bronchitis 2 years ago. I had some sort of flare in Jan that never settled. Two weeks ago I started doxy followed by azithro & 10 days of steroids. Some mild SOB on incline walking in the last month. Normally I clear my mucus with sea swimming (fit & active 40 yr old M). A week
PW_R
in
Lung Conditions Community Forum
3 months ago
Bad cold sore should I wait to inject Methotrexate?
I was at the dentist last Thursday - not my usual one - and she was a bit rough! She split my lip in the corner and it's came out with large cold sores which are not healing! 😔 I'm considering not injecting today to give them a better chance to heal - what do you think? They're sore and I can't eat
I was at the dentist last Thursday - not my usual one - and she was a bit rough! She split my lip in the corner and it's came out with large cold sores which are not healing! 😔 I'm considering not injecting today to give them a better chance to heal - what do you think? They're sore and I can't eat
marie66
in
NRAS
3 months ago
Pneumonia and collapsed lung after catching the ‘100 day cough’
For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in hospital. I was diagnosed with Lupus in February 2022. I’ve had a rough ride for the past few years, ending up in hospital every year for one thing
For all you folks who have Lupus, please be careful of this ‘100’ day cough that is going around at the moment, as this is what caused me to end up in hospital. I was diagnosed with Lupus in February 2022. I’ve had a rough ride for the past few years, ending up in hospital every year for one thing
Loopy1971
in
LUPUS UK
3 months ago
Review of medication at GP.
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
Just seen on my GP notes on line my medication review. I have not seen this gp or any other for this review.i am on 4 sheets of prescription pad.is this normal? I would have thought with 3 previous heart attacks ,14 stents, bronchitis, constant pain in legs and feet, diabetes I would have been consulted
jhorsf
in
Lung Conditions Community Forum
3 months ago
Bronchoscopy
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
My mom was diagnosed with pneumonia 2 weeks ago. Unfortunately 10 days of antibiotics were ineffective. She had a bronchoscopy today and while waiting for results, I was wondering if anybody else was in the same situation and what did the bronchoscopy show?
nyla668
in
Lung Conditions Community Forum
3 months ago
Nose bleeds on rivaoxaban
I have nose bleeds but what l have also is a permanent cold and blocked nose.
I have nose bleeds but what l have also is a permanent cold and blocked nose.
444AHENSON01
in
Atrial Fibrillation Support
3 months ago
Influenza A while on W & W,-- the price for not wanting a vaccine
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
I decided to put my pride and lack of articulate writing skills aside to share a my learning experience . It was in Jan of 23 when I was told over the phone of my CLL Dx. I walked around in a panicky daze. First I went to Mr Google. (BIG MISTAKE !) I started clearing out the house and giving things
Sillysand
in
CLL Support
3 months ago
chronic cough / seretide
Hi all. I’ve looked through posts about coughs and Seretide on this forum. Seems there are quite a few who have had similar experiences with this inhaler as i’m having now. I’ve had very loud coughs all my life. Now with allergy season starting, a nasty cough has come come back that I can’t shake
Hi all. I’ve looked through posts about coughs and Seretide on this forum. Seems there are quite a few who have had similar experiences with this inhaler as i’m having now. I’ve had very loud coughs all my life. Now with allergy season starting, a nasty cough has come come back that I can’t shake
Cougher52
in
Asthma Community Forum
3 months ago
Cold & sore throat PAF
hi, I’ve had a cold and cough for 7 days now and having been having AF episodes lasting from 30mins - 5hours almost daily. Normally I would get an episode once a month at worst. Can colds and coughs bring on more regular occurances of AF?
hi, I’ve had a cold and cough for 7 days now and having been having AF episodes lasting from 30mins - 5hours almost daily. Normally I would get an episode once a month at worst. Can colds and coughs bring on more regular occurances of AF?
tom0985
in
Atrial Fibrillation Support
3 months ago
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